#APSAwareness
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#CSFleak #livingwithss #GoFundMe #APSAwareness #pwme

gofund.me/a64906f2b
Donate to Help Me Get Life-Saving Treatment in Germany, organized by Birgitta Abrahamsson
I Need Urgent Life-Saving Specialist Care In Germany I’m… Birgitta Abrahamsson needs your support for Help Me Get Life-Saving Treatment in Germany
gofund.me
November 7, 2025 at 8:48 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
July 1, 2025 at 11:11 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #coping #CopingMechanisms #copingmethods
June 29, 2025 at 7:29 PM
apsfaorg.bsky.social
Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.

#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS
apsfa.org
June 29, 2025 at 1:45 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise
June 29, 2025 at 1:16 AM
apsfaorg.bsky.social
or the emergency room.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot
June 28, 2025 at 6:44 PM
apsfaorg.bsky.social
#APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #pain #fever #migraines #headache #fatigue #dizziness #sweeling #brainfog
June 28, 2025 at 12:35 PM
apsfaorg.bsky.social
Myth: Only older or sick people get blood clots

Fact: Anyone can get a blood clot, even if they are young - that includes children and healthy people.

When did you first start clotting?

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #WTD25 #raredisease #APS
June 27, 2025 at 7:54 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
June 27, 2025 at 12:47 PM
apsfaorg.bsky.social
Do you have one of these diseases besides Lupus?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #RaynaudsSyndrome #raynaudsphenomenon
June 26, 2025 at 6:42 PM
apsfaorg.bsky.social
great to see people working together globally to bring awareness to APS!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #sle
June 26, 2025 at 3:00 PM
apsfaorg.bsky.social
For more information, please click here: www.apsfa.org/caps.htm

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #microclotting #multiorgan #multiorganclotting
www.apsfa.org
June 25, 2025 at 6:15 PM
apsfaorg.bsky.social
it is not widely recognized.

You can read more about it here: ard.bmj.com/content/74/1...

Have you heard of it?

Do you have it?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth
Antibodies to domain I of β-2-glycoprotein I and IgA antiphospholipid antibodies in patients with ‘seronegative’ antiphospholipid syndrome
The standard serological tests included in the classification criteria1 for antiphospholipid syndrome (APS) are those to detect immunoglobulin G (IgG) and IgM antibodies to cardiolipin (aCL) or β-2-gl...
ard.bmj.com
June 25, 2025 at 1:50 PM
apsfaorg.bsky.social
You can read more about it here: ard.bmj.com/content/74/1...

Have you heard of it?

Do you have it?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA
Antibodies to domain I of β-2-glycoprotein I and IgA antiphospholipid antibodies in patients with ‘seronegative’ antiphospholipid syndrome
The standard serological tests included in the classification criteria1 for antiphospholipid syndrome (APS) are those to detect immunoglobulin G (IgG) and IgM antibodies to cardiolipin (aCL) or β-2-gl...
ard.bmj.com
June 25, 2025 at 1:38 PM
apsfaorg.bsky.social
If you think you have a clot, please see your doctor or go to the ER.**

So, what are the trigger signs you need to head to the EER?

#AntiphospholipidSyndrome #APSAwareness #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #musclecramps #legcramps #whentogo
June 24, 2025 at 6:24 PM
apsfaorg.bsky.social
#Dehydration can increase your risk of blood clots, especially if you're already at risk due to conditions like Antiphospholipid Syndrome (#APS), #immobility, or recent #surgery.

What are some ways you stay #hydrated?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy
June 24, 2025 at 1:09 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #painrelief #painmanagement #painreliever #PainReliefTips #painreliefoptions
June 23, 2025 at 9:31 PM
apsfaorg.bsky.social
Citation:
Thaler HW, Resch H. "Heparin-induced bone loss: A review." Osteoporosis International. 2003;14(1):23–26. doi:10.1007/s00198-002-1314-8

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth
June 23, 2025 at 9:23 PM
apsfaorg.bsky.social
feed discussing this topic from our medical advisors, medical journal articles, and listen to other patients' stories when making your educated decision.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity
June 23, 2025 at 6:53 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #INRDiary #medication #medicationmanagment #anticoagulation #anticoagulationlife #anticoagulationcare #anticoagulationclinic #anticoagulationtherapy
June 23, 2025 at 1:16 PM
apsfaorg.bsky.social
and mental health.

You may not be able to avoid #stress, but there are ways to manage it before it becomes overwhelming.

How do you manage stress and stress caused by #APS?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA
June 22, 2025 at 6:15 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #FatigueRelief #fatiguesupport #chronicfatigue
June 22, 2025 at 3:25 PM
apsfaorg.bsky.social
-Signs of other bleeding (nosebleeds, blood in urine/stool)

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #bruise #hematoma #bleed #basicfirstaid
June 21, 2025 at 7:42 PM
apsfaorg.bsky.social
— but they must be taken carefully to avoid serious bleeding. Knowing the risks helps you stay safe and prepared.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity
June 21, 2025 at 12:16 PM
apsfaorg.bsky.social
They Google for more advanced education. Let’s give them the best videos, graphics, and latest science.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #collaboration #events #collabevents
June 20, 2025 at 9:58 PM