Vivli
@vivli.bsky.social
We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Visit us at vivli.org for more information.
Congratulations to Joel Skaistis of Corewell Health on your public disclosure, “Tafamidis treatment and neuropsychiatric dysfunction in patients with cardiac aTTR: a post-hoc analysis of the ATTRACT trial.” We’re proud to facilitate your access to data. #ClinicalResearch
Tafamidis treatment and neuropsychiatric dysfunction in patients with cardiac aTTR: a post-hoc analysis of the ATTRACT trial
Published in Amyloid: The Journal of Protein Folding Disorders (Ahead of Print, 2025)
doi.org
December 12, 2025 at 7:00 PM
Congratulations to Joel Skaistis of Corewell Health on your public disclosure, “Tafamidis treatment and neuropsychiatric dysfunction in patients with cardiac aTTR: a post-hoc analysis of the ATTRACT trial.” We’re proud to facilitate your access to data. #ClinicalResearch
Antimicrobial Resistance is a global threat to #PublicHealth. With the Vivli AMR Register, researchers worldwide are uncovering new insights using AMR surveillance data. Explore our collection of articles on Wellcome Open Research. #AMR #HealthResearch
Articles from collection Vivli AMR Open Data Reuse Data Challenge - Wellcome Open Research
Read the latest peer reviewed Vivli AMR Open Data Reuse Data Challenge articles and more on Wellcome Open Research
wellcomeopenresearch.org
December 12, 2025 at 4:01 PM
Antimicrobial Resistance is a global threat to #PublicHealth. With the Vivli AMR Register, researchers worldwide are uncovering new insights using AMR surveillance data. Explore our collection of articles on Wellcome Open Research. #AMR #HealthResearch
Congrats to Gus Slotman on your public disclosure, “Increased Mortality Among Study Drug Non-Responders Erases Beneficial Treatment Effects & Causes Randomized Clinical Trials Of New Molecules For Septic Shock & Severe COVID-19 To Fail.” We’re proud to facilitate your access to data. buff.ly/uuNf2zp
December 11, 2025 at 7:00 PM
Congrats to Gus Slotman on your public disclosure, “Increased Mortality Among Study Drug Non-Responders Erases Beneficial Treatment Effects & Causes Randomized Clinical Trials Of New Molecules For Septic Shock & Severe COVID-19 To Fail.” We’re proud to facilitate your access to data. buff.ly/uuNf2zp
We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.
December 11, 2025 at 4:00 PM
We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.
Congrats to Frank Doyle of RCSI on your public disclosure, “Evaluating the psychometric structure of the Hamilton Rating Scale for Depression pre- and post-treatment in antidepressant randomised trials.” We’re proud to facilitate your access to data.
Evaluating the psychometric structure of the Hamilton Rating Scale for Depression pre- and post-treatment in antidepressant randomised trials: Secondary analysis of 6843 individual participants from 20 trials
The 17-item Hamilton Rating Scale for Depression (HRSD-17) is the most popular depression measure in antidepressant clinical trials. Prior evidence in…
doi.org
December 10, 2025 at 7:02 PM
Congrats to Frank Doyle of RCSI on your public disclosure, “Evaluating the psychometric structure of the Hamilton Rating Scale for Depression pre- and post-treatment in antidepressant randomised trials.” We’re proud to facilitate your access to data.
On Friday, the NIH Office of Data Science Strategy is hosting a data sharing & reuse seminar focused on clinical data standardization. The session will be of interest to data scientists, clinical researchers, & others working on data infrastructure challenges. Register here ➡️ bit.ly/4rRO3xG.
December 10, 2025 at 4:01 PM
On Friday, the NIH Office of Data Science Strategy is hosting a data sharing & reuse seminar focused on clinical data standardization. The session will be of interest to data scientists, clinical researchers, & others working on data infrastructure challenges. Register here ➡️ bit.ly/4rRO3xG.
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions.” We’re proud to facilitate your access to data.
Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions: A pooled analysis of randomized trials
Aims The efficacy of sodium–glucose co-transporter 2 inhibitors (SGLT2i) among patients with cardiovascular-kidney-metabolic (CKM) conditions who experience severe estimated glomerular filtration…
onlinelibrary.wiley.com
December 9, 2025 at 7:00 PM
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions.” We’re proud to facilitate your access to data.
People who have a stroke are at risk for a second one. Using Vivli, Dr. James Brorson (University of Chicago) found that stroke recurrence is best described by a 2-state kinetic model, which could impact clinical treatments for stroke prevention. Read our newest case study. vivli.org/case-studies/
December 9, 2025 at 5:03 PM
People who have a stroke are at risk for a second one. Using Vivli, Dr. James Brorson (University of Chicago) found that stroke recurrence is best described by a 2-state kinetic model, which could impact clinical treatments for stroke prevention. Read our newest case study. vivli.org/case-studies/
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Are anonymised datasets from clinical trials truly anonymous?” We’re proud to facilitate your access to data. #ClinicalResearch
Are anonymised datasets from clinical trials truly anonymous?
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doi.org
December 8, 2025 at 7:00 PM
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Are anonymised datasets from clinical trials truly anonymous?” We’re proud to facilitate your access to data. #ClinicalResearch
On Wednesday, the National Cancer Institute will be hosting a webinar about cancer data sharing at 1 p.m. ET. Vivli Senior Program Manager Amanda Skarlupka will be presenting briefly as part of her work with the NIH Generalist Repository Ecosystem Initiative. Register today: bit.ly/4pUO0PA.
December 8, 2025 at 4:38 PM
On Wednesday, the National Cancer Institute will be hosting a webinar about cancer data sharing at 1 p.m. ET. Vivli Senior Program Manager Amanda Skarlupka will be presenting briefly as part of her work with the NIH Generalist Repository Ecosystem Initiative. Register today: bit.ly/4pUO0PA.
Congrats to Frank Doyle of Royal College of Surgeons Ireland on “An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data.” We’re proud to facilitate your access to data.
An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data
The 10-item Montgomery-Åsberg Depression Rating Scale (MADRS) is a commonly used measure of depression in antidepressant clinical trials. Numerous stu…
doi.org
December 5, 2025 at 7:02 PM
Congrats to Frank Doyle of Royal College of Surgeons Ireland on “An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data.” We’re proud to facilitate your access to data.
Unlock the full potential of your #HealthData by sharing it! Learn how you can accelerate scientific research by sharing your data on Vivli’s secure, user-friendly platform. #DataSharing #DataReuse
About Vivli
Vivli is a global clinical research data sharing platform. Learn more about our organization.
youtu.be
December 5, 2025 at 5:05 PM
Unlock the full potential of your #HealthData by sharing it! Learn how you can accelerate scientific research by sharing your data on Vivli’s secure, user-friendly platform. #DataSharing #DataReuse
Congratulations to Hwanhee Hong of Duke University on your public disclosure, “The challenges of integrating diverse data sources: A case study in major depression.” We’re proud to facilitate your access to data. doi.org/10.1007/s107... #ClinicalResearch
The challenges of integrating diverse data sources: A case study in major depression - Health Services and Outcomes Research Methodology
Combining data from diverse sources including randomized controlled trials (RCTs) and observational datasets holds the potential to increase sample size, improve external validity, and gain a…
doi.org
December 4, 2025 at 7:00 PM
Congratulations to Hwanhee Hong of Duke University on your public disclosure, “The challenges of integrating diverse data sources: A case study in major depression.” We’re proud to facilitate your access to data. doi.org/10.1007/s107... #ClinicalResearch
On Dec. 11, our colleagues at @cpathinstitute.bsky.social are hosting a webinar recognizing six years of success in rare disease #DataSharing with the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP). Register today at: c-path-org.zoom.us/webinar/regi... #RareDiseaseResearch
December 4, 2025 at 4:00 PM
On Dec. 11, our colleagues at @cpathinstitute.bsky.social are hosting a webinar recognizing six years of success in rare disease #DataSharing with the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP). Register today at: c-path-org.zoom.us/webinar/regi... #RareDiseaseResearch
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Evaluating re-identification risks scores in publicly available clinical trial datasets: Insights and implications.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1177/1740...
December 3, 2025 at 7:00 PM
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Evaluating re-identification risks scores in publicly available clinical trial datasets: Insights and implications.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1177/1740...
Have you heard about the Gates Foundation initiative to develop an AI-enabled low-cost ultrasound device? The project aims to improve care for mothers and babies in low-resource settings. Watch this Vivli Annual Meeting session that dives into the development process.
Gates Foundation Initiative to Improve Maternal and Infant Health by Sharing Ultrasound Image Data
Gates Foundation Initiative to Improve Maternal and Infant Health by Sharing Ultrasound Image Data:
- Tim Kinkead, Preva Group
youtu.be
December 3, 2025 at 5:03 PM
Have you heard about the Gates Foundation initiative to develop an AI-enabled low-cost ultrasound device? The project aims to improve care for mothers and babies in low-resource settings. Watch this Vivli Annual Meeting session that dives into the development process.
Congrats to Kazuki Takada on “Probiotic supplement exposure & outcomes of patients w/ non-small cell lung cancer treated w/ first-line atezolizumab therapy: Pooled analysis of individual patient data from 5 randomized control trials.” We’re proud to facilitate your access to data. buff.ly/jDdzcZQ
December 2, 2025 at 7:00 PM
Congrats to Kazuki Takada on “Probiotic supplement exposure & outcomes of patients w/ non-small cell lung cancer treated w/ first-line atezolizumab therapy: Pooled analysis of individual patient data from 5 randomized control trials.” We’re proud to facilitate your access to data. buff.ly/jDdzcZQ
We're delighted to be part of the Data Transparency (DT) Pavilion at PHUSE US Connect 2026 taking place March 22 through 26 in Austin, TX. See you there!
December 2, 2025 at 4:35 PM
We're delighted to be part of the Data Transparency (DT) Pavilion at PHUSE US Connect 2026 taking place March 22 through 26 in Austin, TX. See you there!
Congrats to João Pedro Ferreira of Faculty of Medicine of Porto University on your public disclosure, “Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced.” We’re proud to facilitate your access to data.
Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced
Magnesium plays a central role in maintaining cellular homeostasis. Limited data exist on the clinical implications of magnesium derangements in heart…
doi.org
December 1, 2025 at 7:00 PM
Congrats to João Pedro Ferreira of Faculty of Medicine of Porto University on your public disclosure, “Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced.” We’re proud to facilitate your access to data.
Missed the Vivli Annual Meeting? You can watch the sessions on YouTube. In this session, Dan Boisvert (Biogen) discusses how a Vivli partnership with Boehringer Ingelheim, Biogen, Pfizer, & Sanofi is taking on the challenges of anonymizing and sharing #ImagingData. buff.ly/KQtrLmV #DataSharing
Unlocking Imaging Data Sharing – A Collaboration on Imaging Anonymization
Unlocking Imaging Data Sharing – A Collaboration on Imaging Anonymization
- Dan Boisvert, Biogen
buff.ly
December 1, 2025 at 5:03 PM
Missed the Vivli Annual Meeting? You can watch the sessions on YouTube. In this session, Dan Boisvert (Biogen) discusses how a Vivli partnership with Boehringer Ingelheim, Biogen, Pfizer, & Sanofi is taking on the challenges of anonymizing and sharing #ImagingData. buff.ly/KQtrLmV #DataSharing
Congratulations to Ashley Hopkins of @flindersuniversity.bsky.social on your public disclosure, “Associations of Commonly Used Concomitant Medications With Survival and Adverse Event Outcomes in Breast Cancer.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1002/cam4...
November 28, 2025 at 7:01 PM
Congratulations to Ashley Hopkins of @flindersuniversity.bsky.social on your public disclosure, “Associations of Commonly Used Concomitant Medications With Survival and Adverse Event Outcomes in Breast Cancer.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1002/cam4...
You may have seen a few public disclosure posts recently. What's a public disclosure? Any time that research teams use the Vivli platform and produce a research result, such as a publication, they let us know. You can view all public disclosures here: buff.ly/HSo1ai1. #DataSharing #DataReuse
Public Disclosures - Vivli
Vivli aims to advance human health through clinical research data sharing. One of the key ways we support this is through the Vivli platform, which ...
buff.ly
November 28, 2025 at 5:05 PM
You may have seen a few public disclosure posts recently. What's a public disclosure? Any time that research teams use the Vivli platform and produce a research result, such as a publication, they let us know. You can view all public disclosures here: buff.ly/HSo1ai1. #DataSharing #DataReuse
Congratulations to Eva Hoster of LMU Munich, on your recent publication in Statistics in Biopharmaceutical Research (@tandfresearch.bsky.social). We’re proud to facilitate your access to data.
Evaluating new methods for estimating the hypothetical estimand on overall survival in the presence of different effective subsequent therapies - a simulation study with application to a clinical trial
Hypothetical strategy allows to define an estimand for the pure treatment effect subjected to the original randomized treatments on overall survival (OS) without impact from effective subsequent th...
doi.org
November 27, 2025 at 7:04 PM
Congratulations to Eva Hoster of LMU Munich, on your recent publication in Statistics in Biopharmaceutical Research (@tandfresearch.bsky.social). We’re proud to facilitate your access to data.
Have you checked out Vivli's YouTube channel? There are new videos from the 2025 Vivli Annual Meeting, including an #AMR Fireside Chat. Explore our video library:
Vivli Org
Vivli is an independent, non-profit organization that has developed a global data-sharing and analytics platform. Our focus is on sharing individual participant-level data from completed clinical…
www.youtube.com
November 27, 2025 at 3:04 PM
Have you checked out Vivli's YouTube channel? There are new videos from the 2025 Vivli Annual Meeting, including an #AMR Fireside Chat. Explore our video library:
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Effects of SGLT2 inhibitors across the spectrum of albuminuria in cardiovascular–kidney–metabolic conditions: A pooled analysis of randomised trials.” We’re proud to facilitate your access to data. buff.ly/J7wuwIx
November 26, 2025 at 7:02 PM
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Effects of SGLT2 inhibitors across the spectrum of albuminuria in cardiovascular–kidney–metabolic conditions: A pooled analysis of randomised trials.” We’re proud to facilitate your access to data. buff.ly/J7wuwIx