They have not spoken to us directly since the investigation was announced. They made the decision to take away what for my daughter was life saving care without ever hearing from us or taking into account the harm of that decision. It’s been devastating. Thank you for talking about it.

Why is this so hard. Seems pretty simple to me. Thank you for keeping on.

Already with you don’t worry.

As someone who grew up in South Africa, at around the same time, the culture was brutally bigoted and extremely right wing. It takes work to overcome that.

and nephew saw me fitting badly and their little faces went so scared. 😢 Everyone rushed to make up. It was all a storm in a teacup really. But I seem to have a superpower. 🦸🏼‍♀️

So I’m calling myself Empress Seizure of Conflict Resolution.

Shhhhh, I’m hunting rabbits 😂

Thank you. I'm so glad your partner found ways to make it manageable. Thank you for sharing your story; it gives me hope! x

You too, babes, it’s rough out there! x

I’d love to see Sadiq Khan as Prime Minister. I think he could be a great one.

Cutting down social media exposure has been key to reducing my stress and I have been fitting less and experienced fewer tremors and muscle control issues.
It’s impossible to stay informed and mentally healthy for me right now, take care of yourselves.

Oh that is a good one! I would love that too. I particularly like that last year was the first year that I spent more time in the 21st century then in the 20th and for some reason that was a milestone for me!