Stichting TAPS Support
@tapssupport.bsky.social
Non-profit dedicated to raising the profile of #TwinAnemiaPolycythemiaSequence and supporting research. #TAPSisReal #TAPS #raredisease. Awareness day: March 3rd
tapssupport.com
tapssupport.com
A week ago EAPM ran the “Complicated monochorionic twins” course. We were glad to be involved and to offer a few scholarships for early career clinicians and those in lower-resource settings. Thanks to EAPM and the faculty.
#MonochorionicTwins
#MonochorionicTwins
December 22, 2025 at 7:05 PM
A week ago EAPM ran the “Complicated monochorionic twins” course. We were glad to be involved and to offer a few scholarships for early career clinicians and those in lower-resource settings. Thanks to EAPM and the faculty.
#MonochorionicTwins
#MonochorionicTwins
This season can be kind, heavy or both, and being online does not always help. It is okay to log off and protect your space. So our social media will slow down, but our community stays open, emails are still answered, and we will be back in early January.
#SeasonsGreetings
#SeasonsGreetings
December 13, 2025 at 9:00 AM
This season can be kind, heavy or both, and being online does not always help. It is okay to log off and protect your space. So our social media will slow down, but our community stays open, emails are still answered, and we will be back in early January.
#SeasonsGreetings
#SeasonsGreetings
Today we launch a parent-led survey on hearing loss in monochorionic twins with Twin Anemia Polycythemia Sequence (TAPS). Open 12 Dec 2025 to 12 Feb 2026. Details for parents and professionals: www.tapssupport.com/parent-...
#TAPSTwins
#TAPSTwins
December 12, 2025 at 2:58 PM
Today we launch a parent-led survey on hearing loss in monochorionic twins with Twin Anemia Polycythemia Sequence (TAPS). Open 12 Dec 2025 to 12 Feb 2026. Details for parents and professionals: www.tapssupport.com/parent-...
#TAPSTwins
#TAPSTwins
Today is World TTTS Awareness Day. TTTS is not a one-day topic; it appears in scans, clinics and long nights of decisions, all through the year. Awareness days help us talk about it, but the work never stops. Image used with permission.
#TTTSAwareness
#TTTSAwareness
December 7, 2025 at 2:00 PM
Today is World TTTS Awareness Day. TTTS is not a one-day topic; it appears in scans, clinics and long nights of decisions, all through the year. Awareness days help us talk about it, but the work never stops. Image used with permission.
#TTTSAwareness
#TTTSAwareness
Today is World TTTS Awareness Day In this video, Prof. Asma Khalil and Stephanie Ernst talk about what information patients are looking for online, what questions they have, and what are some of the myths that exist. Watch here: sbee.link/kegaybjmt8
#WorldTTTSAwarenessDay
#WorldTTTSAwarenessDay
December 7, 2025 at 10:32 AM
Today is World TTTS Awareness Day In this video, Prof. Asma Khalil and Stephanie Ernst talk about what information patients are looking for online, what questions they have, and what are some of the myths that exist. Watch here: sbee.link/kegaybjmt8
#WorldTTTSAwarenessDay
#WorldTTTSAwarenessDay
On TTTS Awareness Day we are celebrating the recipients of our TAPS Support and Olivia Norbury Scholarships for the upcoming EAPM Monochorionic twins course. Thank you to all applicants. Limited places remain for 16 December: europerinatal.eu/courses/mc...
December 7, 2025 at 9:00 AM
On TTTS Awareness Day we are celebrating the recipients of our TAPS Support and Olivia Norbury Scholarships for the upcoming EAPM Monochorionic twins course. Thank you to all applicants. Limited places remain for 16 December: europerinatal.eu/courses/mc...
We are delighted to share that our scholarship awardees have been selected and notified, and announced on 7 December, TTTS Awareness Day. Thank you to everyone who applied,s. Limited places remain for the December 16 masterclass. Register here: europerinatal.eu/courses/mc...
December 5, 2025 at 9:02 AM
We are delighted to share that our scholarship awardees have been selected and notified, and announced on 7 December, TTTS Awareness Day. Thank you to everyone who applied,s. Limited places remain for the December 16 masterclass. Register here: europerinatal.eu/courses/mc...
This new resource for teachers and school staff explains Twin Anemia Polycythemia Sequence (TAPS) in clear language and outlines how it can affect learning, behavior and hearing in the classroom. It's free to download on our website: www.tapssupport.com/taps-fo...
#TAPSSupport
#TAPSSupport
December 3, 2025 at 9:00 AM
This new resource for teachers and school staff explains Twin Anemia Polycythemia Sequence (TAPS) in clear language and outlines how it can affect learning, behavior and hearing in the classroom. It's free to download on our website: www.tapssupport.com/taps-fo...
#TAPSSupport
#TAPSSupport
Today on Giving Tuesday, please support TAPS Support. Your donation helps fund research, education and practical support for families facing rare complications in monochorionic twin pregnancies. sbee.link/hxb4uacepm
December 2, 2025 at 9:00 AM
Today on Giving Tuesday, please support TAPS Support. Your donation helps fund research, education and practical support for families facing rare complications in monochorionic twin pregnancies. sbee.link/hxb4uacepm
We have been overwhelmed with the response to our scholarships for the upcoming Monochorionic Twins Course hosted by the EAPM. Applications have now closed, and we will advise the successful applicants ASAP. Register for the course via sbee.link/bvghmkwqjr .
#MonochorionicTwins #EAPM
#MonochorionicTwins #EAPM
December 1, 2025 at 9:50 AM
We have been overwhelmed with the response to our scholarships for the upcoming Monochorionic Twins Course hosted by the EAPM. Applications have now closed, and we will advise the successful applicants ASAP. Register for the course via sbee.link/bvghmkwqjr .
#MonochorionicTwins #EAPM
#MonochorionicTwins #EAPM
Today is the last day to apply for scholarships to the upcoming EAPM Monochorionic twins course. We are delighted to offer 2 paid places to attend this important course on the 16th of December. You can find more details on our website: sbee.link/rfaykdhtbe.
#EAPM #MonochorionicTwins
#EAPM #MonochorionicTwins
November 30, 2025 at 9:21 AM
Today is the last day to apply for scholarships to the upcoming EAPM Monochorionic twins course. We are delighted to offer 2 paid places to attend this important course on the 16th of December. You can find more details on our website: sbee.link/rfaykdhtbe.
#EAPM #MonochorionicTwins
#EAPM #MonochorionicTwins
Applications are open for the Olivia Norbury Scholarship for early-career clinicians working with monochorionic twins and TAPS. Apply by November 30: www.tapssupport.com/scholar...
#TAPSSupport #EAPM #MonochorionicTwins
#TAPSSupport #EAPM #MonochorionicTwins
November 24, 2025 at 10:48 AM
Applications are open for the Olivia Norbury Scholarship for early-career clinicians working with monochorionic twins and TAPS. Apply by November 30: www.tapssupport.com/scholar...
#TAPSSupport #EAPM #MonochorionicTwins
#TAPSSupport #EAPM #MonochorionicTwins
Two fully funded TAPS Support scholarships for the EAPM online course on complicated monochorionic twins (TTTS, TAPS, sFGR). Open to early career clinicians and those in low and middle income countries. Details: www.tapssupport.com/scholar...
#EAPM #MonochorionicTwins #TAPSSupport
#EAPM #MonochorionicTwins #TAPSSupport
November 19, 2025 at 10:03 AM
Two fully funded TAPS Support scholarships for the EAPM online course on complicated monochorionic twins (TTTS, TAPS, sFGR). Open to early career clinicians and those in low and middle income countries. Details: www.tapssupport.com/scholar...
#EAPM #MonochorionicTwins #TAPSSupport
#EAPM #MonochorionicTwins #TAPSSupport
Twins, multiples and TAPS pregnancies face higher risks of preterm birth. TAPS twins are often born around 32 weeks and need care that reflects their specific needs in the NICU and in long term developmental follow-up. #WPD2025
November 17, 2025 at 7:56 AM
Twins, multiples and TAPS pregnancies face higher risks of preterm birth. TAPS twins are often born around 32 weeks and need care that reflects their specific needs in the NICU and in long term developmental follow-up. #WPD2025
Two scholarships for the online EAPM course “Complicated monochorionic twins: TTTS, TAPS, sFGR” on 16 Dec 2025. Open to early career clinicians and those in low or middle income countries. Apply by 30 Nov: www.tapssupport.com/scholar... Please share.
#EAPM #MonochorionicTwins
#EAPM #MonochorionicTwins
November 14, 2025 at 9:14 AM
Two scholarships for the online EAPM course “Complicated monochorionic twins: TTTS, TAPS, sFGR” on 16 Dec 2025. Open to early career clinicians and those in low or middle income countries. Apply by 30 Nov: www.tapssupport.com/scholar... Please share.
#EAPM #MonochorionicTwins
#EAPM #MonochorionicTwins
Two scholarships for the online EAPM course “Complicated monochorionic twins: TTTS, TAPS, sFGR” on 16 Dec 2025. Open to early career clinicians and those in low or middle income countries. Apply by 30 Nov: www.tapssupport.com/scholar... Please share.
#EAPM #MonochorionicTwins
#EAPM #MonochorionicTwins
November 14, 2025 at 9:13 AM
Two scholarships for the online EAPM course “Complicated monochorionic twins: TTTS, TAPS, sFGR” on 16 Dec 2025. Open to early career clinicians and those in low or middle income countries. Apply by 30 Nov: www.tapssupport.com/scholar... Please share.
#EAPM #MonochorionicTwins
#EAPM #MonochorionicTwins
During International Multiple Birth Awareness Week, we’re pleased to share that we’ll offer 2 scholarships for the EAPM course on complicated monochorionic twins. Scholarship details will follow soon: europerinatal.eu/courses/mc...
#IMBAW2025 #MultipleBirths
#IMBAW2025 #MultipleBirths
November 6, 2025 at 11:00 AM
During International Multiple Birth Awareness Week, we’re pleased to share that we’ll offer 2 scholarships for the EAPM course on complicated monochorionic twins. Scholarship details will follow soon: europerinatal.eu/courses/mc...
#IMBAW2025 #MultipleBirths
#IMBAW2025 #MultipleBirths
Next week starts International Multiple Birth Awareness Week (IMBAW). This is an important initiative of ICOMBO and this year's theme is "Multiples For Life".
Learn more in our latest email here: sh1.sendinblue.com/acxabu0c...
#IMBAW2025 #MultiplesForLife #MultipleBirths
Learn more in our latest email here: sh1.sendinblue.com/acxabu0c...
#IMBAW2025 #MultiplesForLife #MultipleBirths
November 2, 2025 at 1:19 PM
Next week starts International Multiple Birth Awareness Week (IMBAW). This is an important initiative of ICOMBO and this year's theme is "Multiples For Life".
Learn more in our latest email here: sh1.sendinblue.com/acxabu0c...
#IMBAW2025 #MultiplesForLife #MultipleBirths
Learn more in our latest email here: sh1.sendinblue.com/acxabu0c...
#IMBAW2025 #MultiplesForLife #MultipleBirths
Last chance to register for the PREIS School International Course, Monochorionic Twins: Diagnosis, Prognosis, Perinatal Management and Long-term Outcome, 30–31 October 2025, Florence.Places are limited. Register: sbee.link/dqkjvucm8g
October 16, 2025 at 11:00 AM
Last chance to register for the PREIS School International Course, Monochorionic Twins: Diagnosis, Prognosis, Perinatal Management and Long-term Outcome, 30–31 October 2025, Florence.Places are limited. Register: sbee.link/dqkjvucm8g
We’re grateful to recognize our partnership with Loss Books and to share that 𝐻𝑒𝑡 𝑣𝑒𝑟ℎ𝑎𝑎𝑙 𝑣𝑎𝑛 𝑚𝑖𝑗𝑛 𝑡𝑤𝑒𝑒𝑙𝑖𝑛𝑔 is now available in Dutch. Loss Books is offering 5% off storewide in October with the code 𝐓𝐀𝐏𝐒𝟏𝟎. Order here: sbee.link/mtrdw87ujb
October 16, 2025 at 9:01 AM
We’re grateful to recognize our partnership with Loss Books and to share that 𝐻𝑒𝑡 𝑣𝑒𝑟ℎ𝑎𝑎𝑙 𝑣𝑎𝑛 𝑚𝑖𝑗𝑛 𝑡𝑤𝑒𝑒𝑙𝑖𝑛𝑔 is now available in Dutch. Loss Books is offering 5% off storewide in October with the code 𝐓𝐀𝐏𝐒𝟏𝟎. Order here: sbee.link/mtrdw87ujb
At 7pm, Amsterdam time, we will join the global wave of light for Baby Loss Awareness Week. Remembering all families touched by loss, and keeping them and their little ones in our hearts.
#BLAW2025 #WaveOfLight
#BLAW2025 #WaveOfLight
October 15, 2025 at 4:38 PM
At 7pm, Amsterdam time, we will join the global wave of light for Baby Loss Awareness Week. Remembering all families touched by loss, and keeping them and their little ones in our hearts.
#BLAW2025 #WaveOfLight
#BLAW2025 #WaveOfLight
During #BLAW2025 we share our work with Footprints Baby Loss on peer support for families after loss in multiple pregnancy. It offers understanding, practical ideas and steady listening. Read our statement: sbee.link/89prwx3mat
#PeerSupport
#PeerSupport
October 10, 2025 at 8:30 AM
During #BLAW2025 we share our work with Footprints Baby Loss on peer support for families after loss in multiple pregnancy. It offers understanding, practical ideas and steady listening. Read our statement: sbee.link/89prwx3mat
#PeerSupport
#PeerSupport
Posting on behalf of our partners at the Fetal Health Foundation:
If you or your partner received care at a fetal care center, we’d be so grateful if you could share your experience in this quick, 8-question survey.
Take the survey: tinyurl.com/FetalCareCenter...
#FetalHealth
If you or your partner received care at a fetal care center, we’d be so grateful if you could share your experience in this quick, 8-question survey.
Take the survey: tinyurl.com/FetalCareCenter...
#FetalHealth
October 10, 2025 at 6:44 AM
Posting on behalf of our partners at the Fetal Health Foundation:
If you or your partner received care at a fetal care center, we’d be so grateful if you could share your experience in this quick, 8-question survey.
Take the survey: tinyurl.com/FetalCareCenter...
#FetalHealth
If you or your partner received care at a fetal care center, we’d be so grateful if you could share your experience in this quick, 8-question survey.
Take the survey: tinyurl.com/FetalCareCenter...
#FetalHealth
With Loss Books, we’re proud to launch The Story of My Twin in Dutch. This resource matters for families worldwide, and having it for Dutch speakers means so much. Ordering details are coming soon, plus a project to make copies available for Dutch families.
#LossBooks #BLAW2025
#LossBooks #BLAW2025
October 9, 2025 at 10:05 AM
With Loss Books, we’re proud to launch The Story of My Twin in Dutch. This resource matters for families worldwide, and having it for Dutch speakers means so much. Ordering details are coming soon, plus a project to make copies available for Dutch families.
#LossBooks #BLAW2025
#LossBooks #BLAW2025
Baby Loss Awareness Week begins today. To families in the twin community who have lost a baby, we’re thinking of you. This week we’ll share resources and signpost to specialist partners. On 15 Oct at 7:00 pm, join the Wave of Light if it feels right.
#BLAW2025
#BLAW2025
October 9, 2025 at 8:51 AM
Baby Loss Awareness Week begins today. To families in the twin community who have lost a baby, we’re thinking of you. This week we’ll share resources and signpost to specialist partners. On 15 Oct at 7:00 pm, join the Wave of Light if it feels right.
#BLAW2025
#BLAW2025