Sue Poncin
@sueponcin.com
After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Proudly wearing my Dynamically Disabled shirt while siting in a wheelchair at the airport on my way to participate in a clinical trial.
Come at me - I dare you!
dynamically-disabled.printify.me
Come at me - I dare you!
dynamically-disabled.printify.me
December 19, 2025 at 2:57 AM
Proudly wearing my Dynamically Disabled shirt while siting in a wheelchair at the airport on my way to participate in a clinical trial.
Come at me - I dare you!
dynamically-disabled.printify.me
Come at me - I dare you!
dynamically-disabled.printify.me
Welcome to living with a dynamic disability compliments of Long Covid.
Sometimes I can walk, sometimes I need a cane, sometimes I need a wheelchair, sometimes I can’t move at all.
Talk about a mind-fuck.
What I don’t need is to worry about being judged.
dynamically-disabled.printify.me
Sometimes I can walk, sometimes I need a cane, sometimes I need a wheelchair, sometimes I can’t move at all.
Talk about a mind-fuck.
What I don’t need is to worry about being judged.
dynamically-disabled.printify.me
December 19, 2025 at 2:52 AM
Welcome to living with a dynamic disability compliments of Long Covid.
Sometimes I can walk, sometimes I need a cane, sometimes I need a wheelchair, sometimes I can’t move at all.
Talk about a mind-fuck.
What I don’t need is to worry about being judged.
dynamically-disabled.printify.me
Sometimes I can walk, sometimes I need a cane, sometimes I need a wheelchair, sometimes I can’t move at all.
Talk about a mind-fuck.
What I don’t need is to worry about being judged.
dynamically-disabled.printify.me
Success finding presents for six adult siblings and fourteen nieces & nephews at the local friends of the library book sale and local book store.
You get a book
You get a book
You get a book
Happy holidays #booksky
You get a book
You get a book
You get a book
Happy holidays #booksky
December 19, 2025 at 2:38 AM
Success finding presents for six adult siblings and fourteen nieces & nephews at the local friends of the library book sale and local book store.
You get a book
You get a book
You get a book
Happy holidays #booksky
You get a book
You get a book
You get a book
Happy holidays #booksky
December 18, 2025 at 3:49 AM
December 16, 2025 at 1:43 PM
December 16, 2025 at 1:39 PM
Dynamic Disability: a condition where symptoms fluctuate in severity and impact over time, causing a person's abilities to change.
Spread awareness to take away the embarrassment & Stop the stigma of chronic illness - there is no “try harder”
Inspo: Baylen Dupree
dynamically-disabled.printify.me
Spread awareness to take away the embarrassment & Stop the stigma of chronic illness - there is no “try harder”
Inspo: Baylen Dupree
dynamically-disabled.printify.me
December 11, 2025 at 4:05 AM
Dynamic Disability: a condition where symptoms fluctuate in severity and impact over time, causing a person's abilities to change.
Spread awareness to take away the embarrassment & Stop the stigma of chronic illness - there is no “try harder”
Inspo: Baylen Dupree
dynamically-disabled.printify.me
Spread awareness to take away the embarrassment & Stop the stigma of chronic illness - there is no “try harder”
Inspo: Baylen Dupree
dynamically-disabled.printify.me
“Instead of telling patients ‘I don’t know what’s wrong,’ we should be saying, ‘This meets the criteria for Long Covid.’”
Although the info isn’t groundbreaking, hope looks like the AAMA educating medical assistants on what Long Covid is.
Plus offering CEUs.
www.aama-ntl.org/docs/default...
Although the info isn’t groundbreaking, hope looks like the AAMA educating medical assistants on what Long Covid is.
Plus offering CEUs.
www.aama-ntl.org/docs/default...
December 6, 2025 at 1:09 AM
“Instead of telling patients ‘I don’t know what’s wrong,’ we should be saying, ‘This meets the criteria for Long Covid.’”
Although the info isn’t groundbreaking, hope looks like the AAMA educating medical assistants on what Long Covid is.
Plus offering CEUs.
www.aama-ntl.org/docs/default...
Although the info isn’t groundbreaking, hope looks like the AAMA educating medical assistants on what Long Covid is.
Plus offering CEUs.
www.aama-ntl.org/docs/default...
Long Covid ripped out of my life suddenly and left me isolated and terrified. Each Tuesday, these ladies have my back: anger, disbelief, laughs, tears, “Ha! Yep! Me too!”
If you suffer from any chronic illness, Messy podcast is the home you didn’t know you needed. You are not alone 💕
If you suffer from any chronic illness, Messy podcast is the home you didn’t know you needed. You are not alone 💕
December 5, 2025 at 7:18 AM
Long Covid ripped out of my life suddenly and left me isolated and terrified. Each Tuesday, these ladies have my back: anger, disbelief, laughs, tears, “Ha! Yep! Me too!”
If you suffer from any chronic illness, Messy podcast is the home you didn’t know you needed. You are not alone 💕
If you suffer from any chronic illness, Messy podcast is the home you didn’t know you needed. You are not alone 💕
On my way to do my part to help find answers by participating in the Reverse-LC trial at University of Minnesota.
Long Covid stole so much of my life, it feels good to do something positive.
Long Covid stole so much of my life, it feels good to do something positive.
December 4, 2025 at 5:01 PM
On my way to do my part to help find answers by participating in the Reverse-LC trial at University of Minnesota.
Long Covid stole so much of my life, it feels good to do something positive.
Long Covid stole so much of my life, it feels good to do something positive.
Is it just me or do other Long Covid suffers read headlines like this one and think:
“No shit Sherlock! Welcome to the party. We’ve been telling you this for yearsssss.”
Followed immediately by gratitude for scientists investigating Long Covid to someday lead to treatments.
“No shit Sherlock! Welcome to the party. We’ve been telling you this for yearsssss.”
Followed immediately by gratitude for scientists investigating Long Covid to someday lead to treatments.
November 22, 2025 at 4:03 AM
Is it just me or do other Long Covid suffers read headlines like this one and think:
“No shit Sherlock! Welcome to the party. We’ve been telling you this for yearsssss.”
Followed immediately by gratitude for scientists investigating Long Covid to someday lead to treatments.
“No shit Sherlock! Welcome to the party. We’ve been telling you this for yearsssss.”
Followed immediately by gratitude for scientists investigating Long Covid to someday lead to treatments.
Long Covid and Neurofeedback - an essay on my blog describing my last year of therapy.
#NeuroCovid #LongCovid
www.sueponcin.com/blog/neurofe...
#NeuroCovid #LongCovid
www.sueponcin.com/blog/neurofe...
November 22, 2025 at 12:37 AM
Long Covid and Neurofeedback - an essay on my blog describing my last year of therapy.
#NeuroCovid #LongCovid
www.sueponcin.com/blog/neurofe...
#NeuroCovid #LongCovid
www.sueponcin.com/blog/neurofe...
My fellow chronic illness & Long Covid sufferers who don’t have the words to describe the mind numbing fatigue - listen to Lance’s description in Nevertheless, Persisting with Amy Blackstone. (starts at 7:15)
Normal words cannot be used for abnormal things.
open.spotify.com/episode/74CF...
Normal words cannot be used for abnormal things.
open.spotify.com/episode/74CF...
November 15, 2025 at 3:20 PM
My fellow chronic illness & Long Covid sufferers who don’t have the words to describe the mind numbing fatigue - listen to Lance’s description in Nevertheless, Persisting with Amy Blackstone. (starts at 7:15)
Normal words cannot be used for abnormal things.
open.spotify.com/episode/74CF...
Normal words cannot be used for abnormal things.
open.spotify.com/episode/74CF...
Reverse-LC trial at Univ. Of Minnesota four month visit ☑️
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
November 11, 2025 at 8:56 PM
Reverse-LC trial at Univ. Of Minnesota four month visit ☑️
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
“This is the book that no one wants to read, right? This is the time no one wants to read about. This is the thing we were all warned against.
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
November 9, 2025 at 9:47 PM
“This is the book that no one wants to read, right? This is the time no one wants to read about. This is the thing we were all warned against.
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
Nothing better than randomly picking up @bridgetcrocker.bsky.social book
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
November 3, 2025 at 1:20 PM
Nothing better than randomly picking up @bridgetcrocker.bsky.social book
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
Long Covid and Infection Associate Chronic Conditions hope looks like the expert panel at today’s case competition at University of Michigan 🌈🌈🌈
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
October 31, 2025 at 2:02 PM
Long Covid and Infection Associate Chronic Conditions hope looks like the expert panel at today’s case competition at University of Michigan 🌈🌈🌈
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
Start Here: If you think your child may have Long Covid
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
October 18, 2025 at 1:30 AM
Start Here: If you think your child may have Long Covid
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
I’m grateful chronic illness is included by @drdoylesays.bsky.social when speaking of living with and healing from trauma.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
October 16, 2025 at 9:34 PM
I’m grateful chronic illness is included by @drdoylesays.bsky.social when speaking of living with and healing from trauma.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
I love the depiction of brain fog in Long Covid.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
October 15, 2025 at 10:14 PM
I love the depiction of brain fog in Long Covid.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
I will happily share my story and be the poster person for “You don’t want Long Covid” if it could save others from suffering this awful disabling virus.
My story: www.sueponcin.com
My story: www.sueponcin.com
October 9, 2025 at 12:35 PM
I will happily share my story and be the poster person for “You don’t want Long Covid” if it could save others from suffering this awful disabling virus.
My story: www.sueponcin.com
My story: www.sueponcin.com
Long Covid has caused me to be compared to Parkinson’s patients by my physical therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
September 9, 2025 at 12:08 AM
Long Covid has caused me to be compared to Parkinson’s patients by my physical therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
The message RFK sent to those of us battling Long Covid for years:
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
August 28, 2025 at 5:33 PM
The message RFK sent to those of us battling Long Covid for years:
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
Diane Sawyer’s interview with Dr. Miller at UCSF about Bruce Willis & FTD.
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research
August 28, 2025 at 12:52 AM
Diane Sawyer’s interview with Dr. Miller at UCSF about Bruce Willis & FTD.
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research