Spinal CSF Leak Foundation
@spinalcsfleak.org
We are a United States 501(c)3 nonprofit organization that helps raise awareness, educate, and support research on intracranial hypotension and spinal cerebrospinal fluid (CSF) leaks.
spinalcsfleak.org
spinalcsfleak.org
Registration will open soon! We’ll be sharing more news shortly, including ways that patients can get involved.
Spinal CSF Leak: Bridging the Gap is held in partnership with @andrewcallenmd.bsky.social & the University of Colorado Anschutz. We hope you join us online on November 15th!
Spinal CSF Leak: Bridging the Gap is held in partnership with @andrewcallenmd.bsky.social & the University of Colorado Anschutz. We hope you join us online on November 15th!
August 20, 2025 at 3:11 PM
Registration will open soon! We’ll be sharing more news shortly, including ways that patients can get involved.
Spinal CSF Leak: Bridging the Gap is held in partnership with @andrewcallenmd.bsky.social & the University of Colorado Anschutz. We hope you join us online on November 15th!
Spinal CSF Leak: Bridging the Gap is held in partnership with @andrewcallenmd.bsky.social & the University of Colorado Anschutz. We hope you join us online on November 15th!
Summary image for that paper, here:
March 27, 2025 at 4:01 PM
Summary image for that paper, here:
Today — and every day — we aim to uplift the voices of those affected by SIH & other types spinal CSF leak.
If you'd like to learn more about SIH, please see this National Organization for Rare Disorders, Inc. (NORD) article about SIH, written by Dr, @conniedelinemd.bsky.social and Dr. Schievink:
If you'd like to learn more about SIH, please see this National Organization for Rare Disorders, Inc. (NORD) article about SIH, written by Dr, @conniedelinemd.bsky.social and Dr. Schievink:
Spontaneous Intracranial Hypotension - Symptoms, Causes, Treatment | NORD
Learn about Spontaneous Intracranial Hypotension, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD
rarediseases.org
February 28, 2025 at 5:37 PM
Today — and every day — we aim to uplift the voices of those affected by SIH & other types spinal CSF leak.
If you'd like to learn more about SIH, please see this National Organization for Rare Disorders, Inc. (NORD) article about SIH, written by Dr, @conniedelinemd.bsky.social and Dr. Schievink:
If you'd like to learn more about SIH, please see this National Organization for Rare Disorders, Inc. (NORD) article about SIH, written by Dr, @conniedelinemd.bsky.social and Dr. Schievink: