Sickle Cell Society
@sicklecelluk.bsky.social
Official account of the Sickle Cell Society in the UK. We support and represent people affected by sickle cell disorder to improve their overall quality of life.
✨ New resource: We’ve launched a series of nutritional advice videos to support recovery, wellbeing and staying well with sickle cell. Created with the North East & Yorkshire Haemoglobinopathy Network & Claudine Matthews.🔗 www.sicklecellsociety.org/resource/foo... #SickleCellSociety #FoodForMedicine
November 26, 2025 at 9:00 AM
✨ New resource: We’ve launched a series of nutritional advice videos to support recovery, wellbeing and staying well with sickle cell. Created with the North East & Yorkshire Haemoglobinopathy Network & Claudine Matthews.🔗 www.sicklecellsociety.org/resource/foo... #SickleCellSociety #FoodForMedicine
Thank you to Titi and the Hope for Sickle Cell team for hosting our Family Retreat Coordinator, Samantha, at your Autumn Gala.
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
November 25, 2025 at 4:18 PM
Thank you to Titi and the Hope for Sickle Cell team for hosting our Family Retreat Coordinator, Samantha, at your Autumn Gala.
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
Our CEO John James will speak at the @Public Policy Projects Genomics Conference.The 4th Annual PPP Genomics conference will explore using genomics research to drive economic growth and achieve equity in healthcare. Join in-person or online. Register now👉 buff.ly/furyPXG
November 25, 2025 at 1:35 PM
Our CEO John James will speak at the @Public Policy Projects Genomics Conference.The 4th Annual PPP Genomics conference will explore using genomics research to drive economic growth and achieve equity in healthcare. Join in-person or online. Register now👉 buff.ly/furyPXG
Last chance! Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
November 24, 2025 at 1:17 PM
Last chance! Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
Join our supportive online session for parents & carers of children with sickle cell.
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
November 20, 2025 at 9:00 AM
Join our supportive online session for parents & carers of children with sickle cell.
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
Our CEO, John James OBE, joined Baker McKenzie's Black History Month event to support the Sickle Cell Society. The event aimed to raise awareness about Sickle Cell Disorder and Trait under the theme “Standing Firm in Power and Pride.” #SickleCellSociety
November 19, 2025 at 9:00 AM
Our CEO, John James OBE, joined Baker McKenzie's Black History Month event to support the Sickle Cell Society. The event aimed to raise awareness about Sickle Cell Disorder and Trait under the theme “Standing Firm in Power and Pride.” #SickleCellSociety
Young people with Sickle Cell in North-East London are invited to join a group to create resources for transitioning from children's to adult services. The first meeting is on 22nd November1-3pm at Stratford Library, with online follow-ups. Sign up at buff.ly/0OSmFn1
November 18, 2025 at 2:22 PM
Young people with Sickle Cell in North-East London are invited to join a group to create resources for transitioning from children's to adult services. The first meeting is on 22nd November1-3pm at Stratford Library, with online follow-ups. Sign up at buff.ly/0OSmFn1
📢 Deadline Extended! Join the Sickle Cell Society as our new Assistant Finance Officer (Part-Time). Support our finance team & help make a difference for people living with sickle cell.📅 Apply by 12 Dec 2025 📧 [email protected] #SickleCellSociety #FinanceJobs
November 17, 2025 at 2:11 PM
📢 Deadline Extended! Join the Sickle Cell Society as our new Assistant Finance Officer (Part-Time). Support our finance team & help make a difference for people living with sickle cell.📅 Apply by 12 Dec 2025 📧 [email protected] #SickleCellSociety #FinanceJobs
🧬 The Top 10 research priorities for sickle cell & genomics are now live — shaped by patients, carers and clinicians to guide future research and treatment.
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
November 14, 2025 at 3:25 PM
🧬 The Top 10 research priorities for sickle cell & genomics are now live — shaped by patients, carers and clinicians to guide future research and treatment.
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
🩸 Extended deadline!
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
November 10, 2025 at 12:30 PM
🩸 Extended deadline!
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
✨ Trustees’ Week ✨
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
November 7, 2025 at 1:54 PM
✨ Trustees’ Week ✨
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
✨ Meet Your Mentors ✨
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring
October 30, 2025 at 9:02 AM
✨ Meet Your Mentors ✨
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring
Our thoughts & prayers are with the people of Jamaica after Hurricane Melissa, and with Cuba as the storm continues. Many in the Jamaican diaspora within our sickle cell community & team are hoping all islanders are safe. Find ways to help via @jhclondon. #Jamaica
October 29, 2025 at 2:03 PM
Our thoughts & prayers are with the people of Jamaica after Hurricane Melissa, and with Cuba as the storm continues. Many in the Jamaican diaspora within our sickle cell community & team are hoping all islanders are safe. Find ways to help via @jhclondon. #Jamaica
✨ Meet Your Mentors ✨
First up, meet two of our London team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.
#SickleCellSociety #BlackHistoryMonth #Mentoring
First up, meet two of our London team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.
#SickleCellSociety #BlackHistoryMonth #Mentoring
October 29, 2025 at 9:01 AM
✨ Meet Your Mentors ✨
First up, meet two of our London team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.
#SickleCellSociety #BlackHistoryMonth #Mentoring
First up, meet two of our London team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.
#SickleCellSociety #BlackHistoryMonth #Mentoring
📢 We’re hiring! Join the Sickle Cell Society as our new Assistant Finance Officer (part-time, 14 hrs/week).
📅 Closing date: 14 Nov 2025
🗓️ Interviews: 28 Nov (in person)
Apply now: www.sicklecellsociety.org/paid-vacanci...
#SickleCellSociety #CharityJobs #FinanceJobs
📅 Closing date: 14 Nov 2025
🗓️ Interviews: 28 Nov (in person)
Apply now: www.sicklecellsociety.org/paid-vacanci...
#SickleCellSociety #CharityJobs #FinanceJobs
October 24, 2025 at 8:00 AM
📢 We’re hiring! Join the Sickle Cell Society as our new Assistant Finance Officer (part-time, 14 hrs/week).
📅 Closing date: 14 Nov 2025
🗓️ Interviews: 28 Nov (in person)
Apply now: www.sicklecellsociety.org/paid-vacanci...
#SickleCellSociety #CharityJobs #FinanceJobs
📅 Closing date: 14 Nov 2025
🗓️ Interviews: 28 Nov (in person)
Apply now: www.sicklecellsociety.org/paid-vacanci...
#SickleCellSociety #CharityJobs #FinanceJobs
🩸 Join the NHS England Virtual Sickle Cell & Thalassaemia Patient Event on 30 Oct, 10am–1pm (via Teams).
Share your experiences, hear from others & help shape future care.
🔗 Register now by scanning the QR Code
#SickleCell #Thalassaemia #NHSEngland #PatientVoices
Share your experiences, hear from others & help shape future care.
🔗 Register now by scanning the QR Code
#SickleCell #Thalassaemia #NHSEngland #PatientVoices
October 23, 2025 at 12:56 PM
🩸 Join the NHS England Virtual Sickle Cell & Thalassaemia Patient Event on 30 Oct, 10am–1pm (via Teams).
Share your experiences, hear from others & help shape future care.
🔗 Register now by scanning the QR Code
#SickleCell #Thalassaemia #NHSEngland #PatientVoices
Share your experiences, hear from others & help shape future care.
🔗 Register now by scanning the QR Code
#SickleCell #Thalassaemia #NHSEngland #PatientVoices
Does your child have sickle cell disorder? 💬
UCL’s Institute of Child Health is running 45-min focus groups this October to understand family experiences.
📧 [email protected]
🔗 buff.ly/OgiEGSe
#SickleCell #Research #SickleCellAwareness
UCL’s Institute of Child Health is running 45-min focus groups this October to understand family experiences.
📧 [email protected]
🔗 buff.ly/OgiEGSe
#SickleCell #Research #SickleCellAwareness
October 23, 2025 at 8:01 AM
Does your child have sickle cell disorder? 💬
UCL’s Institute of Child Health is running 45-min focus groups this October to understand family experiences.
📧 [email protected]
🔗 buff.ly/OgiEGSe
#SickleCell #Research #SickleCellAwareness
UCL’s Institute of Child Health is running 45-min focus groups this October to understand family experiences.
📧 [email protected]
🔗 buff.ly/OgiEGSe
#SickleCell #Research #SickleCellAwareness
On 25 Sept, we visited Gainsborough Primary School with The Secret Diary of Joynina K. Jones author Antoinette Brooks. Year 5 & 6 loved hearing Joynina’s story and learning about sickle cell. Thank you to Miss Lewis & Miss Clark for having us!#SickleCellSociety #EducationMatters
October 17, 2025 at 8:01 AM
On 25 Sept, we visited Gainsborough Primary School with The Secret Diary of Joynina K. Jones author Antoinette Brooks. Year 5 & 6 loved hearing Joynina’s story and learning about sickle cell. Thank you to Miss Lewis & Miss Clark for having us!#SickleCellSociety #EducationMatters
On 10 Oct, we facilitated a visit to Hammersmith Hospital’s Renal & Haematology Triage Unit for Ben Coleman MP & Andy Slaughter MP, joined by our Chair Dr Matthew Sowemimo, to see the vital work supporting patients with sickle cell.
#SickleCellSociety #SickleCellAwareness
#SickleCellSociety #SickleCellAwareness
October 16, 2025 at 12:28 PM
On 10 Oct, we facilitated a visit to Hammersmith Hospital’s Renal & Haematology Triage Unit for Ben Coleman MP & Andy Slaughter MP, joined by our Chair Dr Matthew Sowemimo, to see the vital work supporting patients with sickle cell.
#SickleCellSociety #SickleCellAwareness
#SickleCellSociety #SickleCellAwareness
We’re recruiting! 💻 Join the Sickle Cell Society as our new GBSL Project Support Lead — helping deliver the national Give Blood, Spread Love campaign.
Passionate about community engagement & public health? Apply by 24th Oct 2025 🔗https://buff.ly/LeNkrgO .#SickleCellSociety #GBSL #Recruitment
Passionate about community engagement & public health? Apply by 24th Oct 2025 🔗https://buff.ly/LeNkrgO .#SickleCellSociety #GBSL #Recruitment
October 15, 2025 at 8:01 AM
We’re recruiting! 💻 Join the Sickle Cell Society as our new GBSL Project Support Lead — helping deliver the national Give Blood, Spread Love campaign.
Passionate about community engagement & public health? Apply by 24th Oct 2025 🔗https://buff.ly/LeNkrgO .#SickleCellSociety #GBSL #Recruitment
Passionate about community engagement & public health? Apply by 24th Oct 2025 🔗https://buff.ly/LeNkrgO .#SickleCellSociety #GBSL #Recruitment
Screening, testing & talking openly about sickle cell + thalassaemia matters. 🩸We’re asking healthcare professionals your questions — anonymously. Submit yours below and help us break stigma & share real answers.🔗 buff.ly/3XFbpUq #SickleCellSociety #ScreeningMatters
October 14, 2025 at 12:01 PM
Screening, testing & talking openly about sickle cell + thalassaemia matters. 🩸We’re asking healthcare professionals your questions — anonymously. Submit yours below and help us break stigma & share real answers.🔗 buff.ly/3XFbpUq #SickleCellSociety #ScreeningMatters
We were delighted to attend the 20th Annual Sickle Cell & Thalassaemia Conference (ASCAT 2025) — a great opportunity to connect with colleagues and start Black History Month with community, support & care.
#ASCAT2025 #SickleCellAwareness #BlackHistoryMonth
#ASCAT2025 #SickleCellAwareness #BlackHistoryMonth
October 14, 2025 at 8:01 AM
We were delighted to attend the 20th Annual Sickle Cell & Thalassaemia Conference (ASCAT 2025) — a great opportunity to connect with colleagues and start Black History Month with community, support & care.
#ASCAT2025 #SickleCellAwareness #BlackHistoryMonth
#ASCAT2025 #SickleCellAwareness #BlackHistoryMonth
Our Family Retreat 2025 was full of joy, learning & connection.
As we celebrate Black History Month, we also celebrate the unity this event fosters. A big thank you to @miffy_uk for bringing smiles to the children! ❤️🐰
#FamilyRetreat #SickleCellSociety #BlackHistoryMonth #Miffy
As we celebrate Black History Month, we also celebrate the unity this event fosters. A big thank you to @miffy_uk for bringing smiles to the children! ❤️🐰
#FamilyRetreat #SickleCellSociety #BlackHistoryMonth #Miffy
October 13, 2025 at 8:02 AM
Our Family Retreat 2025 was full of joy, learning & connection.
As we celebrate Black History Month, we also celebrate the unity this event fosters. A big thank you to @miffy_uk for bringing smiles to the children! ❤️🐰
#FamilyRetreat #SickleCellSociety #BlackHistoryMonth #Miffy
As we celebrate Black History Month, we also celebrate the unity this event fosters. A big thank you to @miffy_uk for bringing smiles to the children! ❤️🐰
#FamilyRetreat #SickleCellSociety #BlackHistoryMonth #Miffy
🏃🏿 Last reminder!
Join Team Sickle Cell for the 2026 TCS London Marathon and help raise vital funds for people living with sickle cell.
🗓️ Applications close 31 Oct — don’t miss out!
🔗 www.sicklecellsociety.org/london-marat...
#LondonMarathon #TeamSickleCell #RunForACause
Join Team Sickle Cell for the 2026 TCS London Marathon and help raise vital funds for people living with sickle cell.
🗓️ Applications close 31 Oct — don’t miss out!
🔗 www.sicklecellsociety.org/london-marat...
#LondonMarathon #TeamSickleCell #RunForACause
October 10, 2025 at 8:01 AM
🏃🏿 Last reminder!
Join Team Sickle Cell for the 2026 TCS London Marathon and help raise vital funds for people living with sickle cell.
🗓️ Applications close 31 Oct — don’t miss out!
🔗 www.sicklecellsociety.org/london-marat...
#LondonMarathon #TeamSickleCell #RunForACause
Join Team Sickle Cell for the 2026 TCS London Marathon and help raise vital funds for people living with sickle cell.
🗓️ Applications close 31 Oct — don’t miss out!
🔗 www.sicklecellsociety.org/london-marat...
#LondonMarathon #TeamSickleCell #RunForACause
⏰ Final days to sign up!
North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm.
Share your experiences & help shape transition support.🔗 bit.ly/groupscyp
#SickleCell #YouthVoice #NELondon
North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm.
Share your experiences & help shape transition support.🔗 bit.ly/groupscyp
#SickleCell #YouthVoice #NELondon
October 7, 2025 at 12:01 PM
⏰ Final days to sign up!
North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm.
Share your experiences & help shape transition support.🔗 bit.ly/groupscyp
#SickleCell #YouthVoice #NELondon
North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm.
Share your experiences & help shape transition support.🔗 bit.ly/groupscyp
#SickleCell #YouthVoice #NELondon