SHINE Lab
@shinelab.bsky.social
The Sleep and Health in Intellectual disability and NEurodevelopment Lab, led by Dr Georgie Agar, based in the School of Psychology at Aston University, Birmingham, UK ☀ #Sleep #Health #IntellectualDisability
https://www.shinelab.org.uk
https://www.shinelab.org.uk
The final talk of #seattleclub 2025 is by Dr Alison Spencer on understanding dementia from the perspective of people with an intellectual disability: preferences for the disclosure of dementia and care planning.
December 11, 2025 at 3:47 PM
The final talk of #seattleclub 2025 is by Dr Alison Spencer on understanding dementia from the perspective of people with an intellectual disability: preferences for the disclosure of dementia and care planning.
Our penultimate talk of #seattleclub is by Dr Daniel Marsden on work conducted at Canterbury Christ Church University on the social return on investment pilot evaluation of Oliver McGowan mandatory learning disability and autism training in higher education.
December 11, 2025 at 3:32 PM
Our penultimate talk of #seattleclub is by Dr Daniel Marsden on work conducted at Canterbury Christ Church University on the social return on investment pilot evaluation of Oliver McGowan mandatory learning disability and autism training in higher education.
The session on health, education & training continues with Dr Lorena Beqiraj and her research on the implementation of positive behavioural support (PBS) in special education settings for children and young people with developmental disabilities #seattleclub
December 11, 2025 at 3:07 PM
The session on health, education & training continues with Dr Lorena Beqiraj and her research on the implementation of positive behavioural support (PBS) in special education settings for children and young people with developmental disabilities #seattleclub
The session at #seattleclub continues with Dr Kate Blamires on the experiences of support workers working with people with intellectual disabilities who have moved from inpatient to community settings as part of the Transforming Care Agenda.
December 11, 2025 at 2:51 PM
The session at #seattleclub continues with Dr Kate Blamires on the experiences of support workers working with people with intellectual disabilities who have moved from inpatient to community settings as part of the Transforming Care Agenda.
We are going into the final session of #seattleclub with research focusing on health, education, and training. The session is being opened by Dr Aimilia Kallitsounaki discussing her research of behavioural profiles of autism in gender-referred youth and their caregivers.
December 11, 2025 at 2:29 PM
We are going into the final session of #seattleclub with research focusing on health, education, and training. The session is being opened by Dr Aimilia Kallitsounaki discussing her research of behavioural profiles of autism in gender-referred youth and their caregivers.
The final talk in the genetic syndromes session is by Dr Kayla Smith on characterising social anxiety in fragile X syndrome. Kayla introduced her multi-method research of social behaviour, physiology, and heart rate-defined sustained attention.
December 11, 2025 at 1:06 PM
The final talk in the genetic syndromes session is by Dr Kayla Smith on characterising social anxiety in fragile X syndrome. Kayla introduced her multi-method research of social behaviour, physiology, and heart rate-defined sustained attention.
#seattleclub continues with Teresa Padden-Evans on research exploring the perspectives and experiences of education practitioners supporting students with genetic syndromes in school.
December 11, 2025 at 12:55 PM
#seattleclub continues with Teresa Padden-Evans on research exploring the perspectives and experiences of education practitioners supporting students with genetic syndromes in school.
The session on genetic syndromes is being started by SHINE Lab's own Bethan Cornick! She is presenting research on caregiver experiences of sleep in children with SATB2-associated syndrome. If you want to see more about this research, check out our website: www.shinelab.org.uk/satb2
December 11, 2025 at 12:27 PM
The session on genetic syndromes is being started by SHINE Lab's own Bethan Cornick! She is presenting research on caregiver experiences of sleep in children with SATB2-associated syndrome. If you want to see more about this research, check out our website: www.shinelab.org.uk/satb2
#seattleclub continues with a second key note talk from Dr Melina Malli on Tourette’s stigma as it is an understudied issue in autism and intellectual disability communities and services.
December 11, 2025 at 11:59 AM
#seattleclub continues with a second key note talk from Dr Melina Malli on Tourette’s stigma as it is an understudied issue in autism and intellectual disability communities and services.
The final talk in this session is by @thanosgr.bsky.social on using precision teaching to develop key word sign skills in practitioners in intellectual disability services. #seattleclub
December 11, 2025 at 11:00 AM
The final talk in this session is by @thanosgr.bsky.social on using precision teaching to develop key word sign skills in practitioners in intellectual disability services. #seattleclub
Our session on social issues and staff at #seattleclub continues with a talk from Georgios Mamolis about his PhD looking at care relationships between support staff and adults with a learning disability in residential settings.
December 11, 2025 at 10:34 AM
Our session on social issues and staff at #seattleclub continues with a talk from Georgios Mamolis about his PhD looking at care relationships between support staff and adults with a learning disability in residential settings.
Session 2 at #seattleclub continues with Dr Jean Jevons on exploring mothers to first born children with profound intellectual disabilities making decisions about further children.
December 11, 2025 at 10:17 AM
Session 2 at #seattleclub continues with Dr Jean Jevons on exploring mothers to first born children with profound intellectual disabilities making decisions about further children.
#seattleclub continues with a talk by Fred Inglis about his PhD research on ongoing career journeys: exploring the in-work trajectories of people with a learning disability in sustained paid employment.
December 11, 2025 at 9:58 AM
#seattleclub continues with a talk by Fred Inglis about his PhD research on ongoing career journeys: exploring the in-work trajectories of people with a learning disability in sustained paid employment.
#seattleclub day 2 is being kicked off with a session on social issues and staff. Our first talk is by Dr Alice McKenna from @royalholloway.bsky.social on Travel Buddies. Buddies are people with intellectual disabilities who provide peer support for other people with intellectual disabilities.
December 11, 2025 at 9:40 AM
#seattleclub day 2 is being kicked off with a session on social issues and staff. Our first talk is by Dr Alice McKenna from @royalholloway.bsky.social on Travel Buddies. Buddies are people with intellectual disabilities who provide peer support for other people with intellectual disabilities.
We finished our day yesterday with a poster session - with four posters being presented by the SHINE Lab! Follow along today for more updates on the fantastic speakers
December 11, 2025 at 9:18 AM
We finished our day yesterday with a poster session - with four posters being presented by the SHINE Lab! Follow along today for more updates on the fantastic speakers
Our final talk of the day is from Dr Paula Foscarini-Craggs on engaging in intellectual disability research in secure care and lessons learnt from the SCHEMA trial. Amazing to see so much variety in research at #seattleclub today and looking forward to tomorrow.
December 10, 2025 at 3:38 PM
Our final talk of the day is from Dr Paula Foscarini-Craggs on engaging in intellectual disability research in secure care and lessons learnt from the SCHEMA trial. Amazing to see so much variety in research at #seattleclub today and looking forward to tomorrow.
Our penultimate talk from day 1 of #seattleclub is from Jessica Rees and Lizzie Merrill on using inclusive research to understand the barriers and enablers to early cancer diagnosis for learning disabled people.
December 10, 2025 at 3:17 PM
Our penultimate talk from day 1 of #seattleclub is from Jessica Rees and Lizzie Merrill on using inclusive research to understand the barriers and enablers to early cancer diagnosis for learning disabled people.
The fantastic co-design work continues with a talk from Dr Nicki Hewitt on using creative methods to co-design and disseminate research findings with people with intellectual disabilities #seattleclub
December 10, 2025 at 2:54 PM
The fantastic co-design work continues with a talk from Dr Nicki Hewitt on using creative methods to co-design and disseminate research findings with people with intellectual disabilities #seattleclub
Our co-design session continues with a talk from Simon Rice, Matthew Moon and @nikitahayden.bsky.social on reclaiming the human in healthcare manifesto. The manifesto asks healthcare professionals to use clear language and for people with intellectual disabilities to be in the centre of their care.
December 10, 2025 at 2:35 PM
Our co-design session continues with a talk from Simon Rice, Matthew Moon and @nikitahayden.bsky.social on reclaiming the human in healthcare manifesto. The manifesto asks healthcare professionals to use clear language and for people with intellectual disabilities to be in the centre of their care.
#seattleclub continues with our second session on co-design & research. Dr Tracey Warren and Kathy McMahon are speaking about their research co-designing and implementing a survey on digital technology use with people with intellectual disabilities and carers.
December 10, 2025 at 2:07 PM
#seattleclub continues with our second session on co-design & research. Dr Tracey Warren and Kathy McMahon are speaking about their research co-designing and implementing a survey on digital technology use with people with intellectual disabilities and carers.
The final talk at #seattleclub before lunch is from @annaclarecox.bsky.social on the Together Project: Inclusive research to understand and improve maternity care for people with a learning disability. The project has developed 2 tools and developed training for midwives to improve awareness.
December 10, 2025 at 12:55 PM
The final talk at #seattleclub before lunch is from @annaclarecox.bsky.social on the Together Project: Inclusive research to understand and improve maternity care for people with a learning disability. The project has developed 2 tools and developed training for midwives to improve awareness.
Session 2 continues with a talk from Dr Layla Harding from @royalholloway.bsky.social on attachment and caregiving in the context of parental learning disabilities. Most caregivers had experienced domestic violence from a romantic parent and felt watched and judged by professionals. #seattleclub
December 10, 2025 at 12:32 PM
Session 2 continues with a talk from Dr Layla Harding from @royalholloway.bsky.social on attachment and caregiving in the context of parental learning disabilities. Most caregivers had experienced domestic violence from a romantic parent and felt watched and judged by professionals. #seattleclub
#seattleclub continues with a talk from Zoe Starkie and her PhD research on exploring the lived experiences of having a sibling with learning disabilities.
December 10, 2025 at 12:04 PM
#seattleclub continues with a talk from Zoe Starkie and her PhD research on exploring the lived experiences of having a sibling with learning disabilities.
After a chance to network over coffee, we are going into session 2: Families and parents with intellectual disabilities. Dr Charmaine Kohn is starting the session introducing her feasibility trial of Video Interaction Guidance for families of children with intellectual disabilities. #seattleclub
December 10, 2025 at 11:47 AM
After a chance to network over coffee, we are going into session 2: Families and parents with intellectual disabilities. Dr Charmaine Kohn is starting the session introducing her feasibility trial of Video Interaction Guidance for families of children with intellectual disabilities. #seattleclub
#seattleclub is continuing with a talk from Dr Barry Ingham from @newcastleuni.bsky.social discussing the evaluation of the clinical effectiveness of a primary health check for autistic adults. The health check was made in collaboration between autistic adults, caregivers, and health professionals.
December 10, 2025 at 10:46 AM
#seattleclub is continuing with a talk from Dr Barry Ingham from @newcastleuni.bsky.social discussing the evaluation of the clinical effectiveness of a primary health check for autistic adults. The health check was made in collaboration between autistic adults, caregivers, and health professionals.