Sarah Brown
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sarahfbrown.bsky.social
Sarah Brown
@sarahfbrown.bsky.social
Patient Rep & Advisor to research studies & NHS

Women's heart champion
https://heart.bmj.com/content/110/22/e4

Expert patient by experience #ANOCA #INOCA #MINOCA
https://www.internationalheartspasmsalliance.org/

Former Midwife
Reposted by Sarah Brown
🧵1\ The discovery of INOCA (Ischemia with No Obstructive Coronary Arteries) came from studying women with persistent chest pain. This led to the recognition of coronary microvascular dysfunction (CMD)—now known to affect people of all sexes. www.ahajournals.org/doi/full/10....
Coronary Arterial Function and Disease in Women With No Obstructive Coronary Arteries | Circulation Research
Ischemic heart disease (IHD) is the leading cause of mortality in women. While traditional cardiovascular risk factors play an important role in the development of IHD in women, women may experience s...
www.ahajournals.org
August 4, 2025 at 4:00 PM
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May 29, 2025 at 6:08 PM
Sadly, Carolyn I have to agree.
Here in the UK we have Maggie's Centres to support cancer patients.

I would love to see the same support for heart patients.

My heart goes out to you.
May 25, 2025 at 9:40 PM
‘the smallest acts of kindness made the unbearable bearable.’

Ken Schwartz

pmc.ncbi.nlm.nih.gov/articles/PMC....
Making the unbearable bearable
pmc.ncbi.nlm.nih.gov
April 27, 2025 at 7:56 PM
My African colleagues taught me how to carry my baby on my back too.

Here in the UK baby slings are used alot.
April 12, 2025 at 8:33 PM
Congratulations on the birth of your baby!

People would leave the pram etc with a neighbour or relative, alternatively on order to be delivered after the baby was born.

I only had a sling, Moses basket, baby clothes, bedding and nappies in the house, before my eldest was born 30 years ago.
April 12, 2025 at 8:21 PM
Back in the day, when I had just qualified as a Midwife in the mid 80's, it was considered bad luck to bring a cot or pram into the house before the baby was born.

It was considered to be tempting fate.

I don't get baby showers for the same reason.
April 11, 2025 at 10:46 PM
Many words used by healthcare professionals can be judgmental, somehow blaming patients for their illness or pain.

My personal dislike as someone who lives with vasospastic angina.

'abnormal pain perception'

'low pain threshold'

My pain belongs to me.
April 6, 2025 at 11:03 PM
Reposted by Sarah Brown
Dr. Eileen Handberg: Women with non-obstructive disease are highly symptom burdened, use significant system resources, and need to be treated. We must drop bias, recognize their pain, and ensure proper follow-up care. There’s real room for improvement. 💙 #ACC25
March 29, 2025 at 3:02 PM