S C O T T
@rrms-sucks.bsky.social
Tattooed | RRMS dx2006 | Never give up
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Are you happy with your current multiple sclerosis treatment? Do you feel it is under control? #multiplesclerosis
January 7, 2026 at 8:19 AM
Are you happy with your current multiple sclerosis treatment? Do you feel it is under control? #multiplesclerosis
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The FDA explains its rejection of the multiple sclerosis drug tolebrutinib in a Complete Response Letter (CRL). "A favorable benefit-risk profile could not be established for any patient subpopulation" download.open.fda.gov/crl/CRL_NDA2...
download.open.fda.gov
January 6, 2026 at 9:03 PM
The FDA explains its rejection of the multiple sclerosis drug tolebrutinib in a Complete Response Letter (CRL). "A favorable benefit-risk profile could not be established for any patient subpopulation" download.open.fda.gov/crl/CRL_NDA2...
January 6, 2026 at 4:09 PM
January 3, 2026 at 2:48 PM
New Years intentions:
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
January 2, 2026 at 6:43 PM
New Years intentions:
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
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Myth: “If you can walk, your MS must be mild.”
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
January 2, 2026 at 1:01 AM
Myth: “If you can walk, your MS must be mild.”
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
Happy New Year to all my #MS friends on here. You've all brought so much to my life since I joined this platform, sharing news, research, joy and happiness. I wish you all well and hope 2026 is an improvement on 2025! HNY All 😊😀
December 31, 2025 at 9:22 PM
Happy New Year to all my #MS friends on here. You've all brought so much to my life since I joined this platform, sharing news, research, joy and happiness. I wish you all well and hope 2026 is an improvement on 2025! HNY All 😊😀
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I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife
December 31, 2025 at 6:15 PM
I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife
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5 Questions Every MS Patient Must Ask Their Neurologist by @AaronBosterMD youtu.be/cVqE933zAyg?...
5 Questions Every MS Patient Must Ask Their Neurologist
YouTube video by Aaron Boster MD
youtu.be
December 29, 2025 at 3:57 PM
5 Questions Every MS Patient Must Ask Their Neurologist by @AaronBosterMD youtu.be/cVqE933zAyg?...
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Your pain is real.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
December 30, 2025 at 5:01 PM
Your pain is real.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
Reposted by S C O T T
Myth: “If you look fine, you must feel fine.”
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
December 30, 2025 at 12:01 AM
Myth: “If you look fine, you must feel fine.”
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
Reposted by S C O T T
Two new subtypes of MS found in ‘exciting’ breakthrough
www.theguardian.com/society/2025...
www.theguardian.com/society/2025...
Two new subtypes of MS found in ‘exciting’ breakthrough
Exclusive: Scientists uncovered biological strands using artificial intelligence and hope discovery will revolutionise treatment
www.theguardian.com
December 30, 2025 at 8:15 AM
Two new subtypes of MS found in ‘exciting’ breakthrough
www.theguardian.com/society/2025...
www.theguardian.com/society/2025...
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You are not “too much.”
You are navigating a neurological condition that most people will never understand — with strength they will never see.
You are navigating a neurological condition that most people will never understand — with strength they will never see.
December 29, 2025 at 5:01 PM
You are not “too much.”
You are navigating a neurological condition that most people will never understand — with strength they will never see.
You are navigating a neurological condition that most people will never understand — with strength they will never see.
This is an exquisite opportunity to remove yourself from the hectic, madly rushed, painful and exhausting world of #MS (and any other mind & body intoxicating situations)
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
December 29, 2025 at 11:13 AM
This is an exquisite opportunity to remove yourself from the hectic, madly rushed, painful and exhausting world of #MS (and any other mind & body intoxicating situations)
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
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No one mentions how lonely it is to live in a body that seems to actively fight against you. #ChronicallyIll
December 28, 2025 at 6:15 PM
No one mentions how lonely it is to live in a body that seems to actively fight against you. #ChronicallyIll
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MS can delay signals from your feet and legs, making the ground feel “unsteady” even when it isn’t.
December 28, 2025 at 4:01 PM
MS can delay signals from your feet and legs, making the ground feel “unsteady” even when it isn’t.
Had my first alcoholic beer in 2 years today! #MS stopped my enjoyment of real ale in December '23. I will fight it! #NeverGiveUp
December 26, 2025 at 9:10 PM
Had my first alcoholic beer in 2 years today! #MS stopped my enjoyment of real ale in December '23. I will fight it! #NeverGiveUp
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Myth: “MS fatigue is just being tired.”
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
December 26, 2025 at 12:01 AM
Myth: “MS fatigue is just being tired.”
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
Reposted by S C O T T
I don’t want to be inspirational; I want to be understood. #ChronicallyIll
December 25, 2025 at 1:30 AM
I don’t want to be inspirational; I want to be understood. #ChronicallyIll
Next MRI's booked in for pre-empting #AHSCT treatment for #MS. I doubt I'll meet the eligibility criteria, but let's allow #CharingCross Hospital to make that decision. Happy Christmas everyone, let 2026 bring stem cell transplantation! 🙏🏼😊😂
December 24, 2025 at 1:40 PM
Next MRI's booked in for pre-empting #AHSCT treatment for #MS. I doubt I'll meet the eligibility criteria, but let's allow #CharingCross Hospital to make that decision. Happy Christmas everyone, let 2026 bring stem cell transplantation! 🙏🏼😊😂
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Fatigue isn’t just physical in MS — it’s neurological.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
December 17, 2025 at 3:02 PM
Fatigue isn’t just physical in MS — it’s neurological.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Reposted by S C O T T
The NEW 2024 MS Diagnostic Criteria Explained by @aaronbostermd.bsky.social RIS, kappa light chain in CSF, central vein sign, paramagnetic rim sign, anti-MOG in children, age > 50. youtu.be/HOTDtZQLo2k?...
The NEW 2024 MS Diagnostic Criteria Explained (Game-Changer!)
YouTube video by Aaron Boster MD
youtu.be
December 1, 2025 at 4:17 PM
The NEW 2024 MS Diagnostic Criteria Explained by @aaronbostermd.bsky.social RIS, kappa light chain in CSF, central vein sign, paramagnetic rim sign, anti-MOG in children, age > 50. youtu.be/HOTDtZQLo2k?...
