SCOTT
@rrms-sucks.bsky.social
Tattooed | RRMS dx2006 | Never give up
January 3, 2026 at 2:48 PM
New Years intentions:
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
January 2, 2026 at 6:43 PM
New Years intentions:
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
- #MSGym physio every other day (it started today)
- Walk outside, no matter the distance, as often as possible.
- Eat well.
- Rest better.
- Remain sober.
- Start running again, slowly but surely.
#NeverGiveUp
#MultipleSclerosis
Reposted by SCOTT
Myth: “If you can walk, your MS must be mild.”
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
January 2, 2026 at 1:01 AM
Myth: “If you can walk, your MS must be mild.”
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.
Happy New Year to all my #MS friends on here. You've all brought so much to my life since I joined this platform, sharing news, research, joy and happiness. I wish you all well and hope 2026 is an improvement on 2025! HNY All 😊😀
December 31, 2025 at 9:22 PM
Happy New Year to all my #MS friends on here. You've all brought so much to my life since I joined this platform, sharing news, research, joy and happiness. I wish you all well and hope 2026 is an improvement on 2025! HNY All 😊😀
Reposted by SCOTT
I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife
December 31, 2025 at 6:15 PM
I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife
Reposted by SCOTT
5 Questions Every MS Patient Must Ask Their Neurologist by @AaronBosterMD youtu.be/cVqE933zAyg?...
5 Questions Every MS Patient Must Ask Their Neurologist
YouTube video by Aaron Boster MD
youtu.be
December 29, 2025 at 3:57 PM
5 Questions Every MS Patient Must Ask Their Neurologist by @AaronBosterMD youtu.be/cVqE933zAyg?...
Reposted by SCOTT
Your pain is real.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
December 30, 2025 at 5:01 PM
Your pain is real.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
Your fatigue is real.
Your symptoms are real — even when others can’t see them.
Reposted by SCOTT
Myth: “If you look fine, you must feel fine.”
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
December 30, 2025 at 12:01 AM
Myth: “If you look fine, you must feel fine.”
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.
Reposted by SCOTT
Two new subtypes of MS found in ‘exciting’ breakthrough
www.theguardian.com/society/2025...
www.theguardian.com/society/2025...
Two new subtypes of MS found in ‘exciting’ breakthrough
Exclusive: Scientists uncovered biological strands using artificial intelligence and hope discovery will revolutionise treatment
www.theguardian.com
December 30, 2025 at 8:15 AM
Two new subtypes of MS found in ‘exciting’ breakthrough
www.theguardian.com/society/2025...
www.theguardian.com/society/2025...
Reposted by SCOTT
You are not “too much.”
You are navigating a neurological condition that most people will never understand — with strength they will never see.
You are navigating a neurological condition that most people will never understand — with strength they will never see.
December 29, 2025 at 5:01 PM
You are not “too much.”
You are navigating a neurological condition that most people will never understand — with strength they will never see.
You are navigating a neurological condition that most people will never understand — with strength they will never see.
This is an exquisite opportunity to remove yourself from the hectic, madly rushed, painful and exhausting world of #MS (and any other mind & body intoxicating situations)
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
December 29, 2025 at 11:13 AM
This is an exquisite opportunity to remove yourself from the hectic, madly rushed, painful and exhausting world of #MS (and any other mind & body intoxicating situations)
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.
Reposted by SCOTT
No one mentions how lonely it is to live in a body that seems to actively fight against you. #ChronicallyIll
December 28, 2025 at 6:15 PM
No one mentions how lonely it is to live in a body that seems to actively fight against you. #ChronicallyIll
Reposted by SCOTT
MS can delay signals from your feet and legs, making the ground feel “unsteady” even when it isn’t.
December 28, 2025 at 4:01 PM
MS can delay signals from your feet and legs, making the ground feel “unsteady” even when it isn’t.
Had my first alcoholic beer in 2 years today! #MS stopped my enjoyment of real ale in December '23. I will fight it! #NeverGiveUp
December 26, 2025 at 9:10 PM
Had my first alcoholic beer in 2 years today! #MS stopped my enjoyment of real ale in December '23. I will fight it! #NeverGiveUp
Reposted by SCOTT
Myth: “MS fatigue is just being tired.”
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
December 26, 2025 at 12:01 AM
Myth: “MS fatigue is just being tired.”
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.
Reposted by SCOTT
I don’t want to be inspirational; I want to be understood. #ChronicallyIll
December 25, 2025 at 1:30 AM
I don’t want to be inspirational; I want to be understood. #ChronicallyIll
Next MRI's booked in for pre-empting #AHSCT treatment for #MS. I doubt I'll meet the eligibility criteria, but let's allow #CharingCross Hospital to make that decision. Happy Christmas everyone, let 2026 bring stem cell transplantation! 🙏🏼😊😂
December 24, 2025 at 1:40 PM
Next MRI's booked in for pre-empting #AHSCT treatment for #MS. I doubt I'll meet the eligibility criteria, but let's allow #CharingCross Hospital to make that decision. Happy Christmas everyone, let 2026 bring stem cell transplantation! 🙏🏼😊😂
Reposted by SCOTT
Fatigue isn’t just physical in MS — it’s neurological.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
December 17, 2025 at 3:02 PM
Fatigue isn’t just physical in MS — it’s neurological.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Reposted by SCOTT
The NEW 2024 MS Diagnostic Criteria Explained by @aaronbostermd.bsky.social RIS, kappa light chain in CSF, central vein sign, paramagnetic rim sign, anti-MOG in children, age > 50. youtu.be/HOTDtZQLo2k?...
The NEW 2024 MS Diagnostic Criteria Explained (Game-Changer!)
YouTube video by Aaron Boster MD
youtu.be
December 1, 2025 at 4:17 PM
The NEW 2024 MS Diagnostic Criteria Explained by @aaronbostermd.bsky.social RIS, kappa light chain in CSF, central vein sign, paramagnetic rim sign, anti-MOG in children, age > 50. youtu.be/HOTDtZQLo2k?...
Reposted by SCOTT
This is so deeply accurate. For those with #MS it will hit the right parts you already know exist.
www.bezzyms.com/discover/rea...
www.bezzyms.com/discover/rea...
Invisible Symptoms Don’t Have to Stay That Way
Over time, I’ve learned how invisible symptoms and silence can distance you from others. I’ve also learned what helps rebuild connection.
www.bezzyms.com
December 13, 2025 at 10:13 AM
This is so deeply accurate. For those with #MS it will hit the right parts you already know exist.
www.bezzyms.com/discover/rea...
www.bezzyms.com/discover/rea...
Reposted by SCOTT
Spinal Cord Anatomy Explained by Neurologist youtube.com/shorts/Rz4M1...
Spinal Cord Anatomy Explained by Neurologist
YouTube video by Dr. Brandon Beaber
youtube.com
December 12, 2025 at 9:06 PM
Spinal Cord Anatomy Explained by Neurologist youtube.com/shorts/Rz4M1...