Rachel Jones
banner
rj4real.bsky.social
Rachel Jones
@rj4real.bsky.social
Staying ready so I don't have to get ready. All about supporting journalists, laughter, and making a contribution to this world. Oh, and mastering new recipes.
Brazilian businessman Fernando Goldsztein created The Medulloblastoma initiative to speed up the journey toward brain cancer treatment for children like his son Frederico.

Helping journalists breathe context into complex issues is how @nationalpress.bsky.social makes good journalists better.
November 18, 2025 at 9:31 PM
Nation Media Group investigative health + science journalist Mercy Chelangat wrote a powerful feature about Langat's family. She offered solid advice about preparing for interviews, identifying researchers and authentically connecting with rare disease patients and families
November 18, 2025 at 9:27 PM
On Tuesday, the @nationalpress.bsky.social Rare Disease Reporting fellows focused on the mental health toll for patients and families

Philip Langat of the Motor Neuron Disease Association of Kenya provided profound insights about losing 4 family members to the rare neurological disease.
November 18, 2025 at 9:24 PM
The 2025 @nationalpress.bsky.social Rare Diseases Reporting fellows had the extraordinary privilege of being briefed by researchers Rebecca Ahrens-Nicklas and Kiran Musunuru of
@upenn.edu and @childrensphila.bsky.social

. #rarediseases #innovation #rarebutnotalone
November 17, 2025 at 8:09 PM
The @nationalpress.bsky.social Rare Disease Reporting Fellowship launched with insights from James Levine, president of Fondation Ipsen. He helped journalists reimagine the future by communicating the potential of biotech innovation in the rare disease realm. #rarediseases #RareButNotAlone
November 17, 2025 at 7:59 PM
The @nationalpress.bsky.social Rare Disease fellows hail from 5 continents, + they'll hear a range of conversations about equity + access in the rare disease realm. We'll also highlight some of the incredible biotech advances that have improved the lives of some people living with rare disease.
November 13, 2025 at 8:55 PM
Ahead of next week's virtual @nationalpress.bsky.social Rare Disease Reporting Fellowship, I'm pleased to see the 62 international journalists greeting each other on our WhatsApp channel. They're eager to start the journey of knowledge and storytelling about living with rare disease.
November 13, 2025 at 8:50 PM
Accidentally snapped this shot of @tomsietsema.bsky.social speaking with @nationalpress.bsky.social Local Business fellows at Neutral Ground VA last month. Now I wish I'd gotten a selfie with him!! 👏 on your brilliant tenure at the @washingtonpost.com; can't wait to see your next chapter.
October 7, 2025 at 2:10 PM
"Will you still need me, will you still feed me, when I'm sixty-four?"

I am just getting started. I am the best I have ever been, on every measure. I am "dangerously competent." I am strong, determined and full of gratitude.

#AgeAintNothingButANumber #happybirthdaytome
October 3, 2025 at 5:05 AM
APPLY NOW for the @nationalpress.bsky.social
Rare Disease Reporting Fellowship, Nov. 17-21. With generous support from Fondation Ipsen, we'll offer a week of virtual briefings about covering the complex diseases affecting 300 million people worldwide. nationalpress.org/training/app...
September 4, 2025 at 5:46 PM
To all professionals (and retirees) in the journalism, film, television, theatre, entertainment, + arts world, join the challenge to post a photo of yourself in your job. Just a picture, no description. The goal is to flood social media with our profession. Copy the text + post a pic on YOUR page.
July 31, 2025 at 1:46 PM
#PhotosatWork Challenge: Me at the Maai Mahiu camp for Internally Displaced Persons, Nakuru County, Kenya, 3/13/2009.

My work in East Africa changed me. The faces of children altered my DNA. Supporting #journalists empowered me.
#journalism #journalistsmatter #journalismmatters
July 28, 2025 at 3:20 PM
SO many powerful insights being shared at the @officialnahj.bsky.social conference in Chicago. "The Price of Truth: Media, Money and Democracy."
@mariahinojosa.bsky.social guided a deeply moving conversation about press freedom, civic engagement and the battle for democracy. #NAHJ25
July 11, 2025 at 1:05 PM
HAPPENING NOW: “Understanding the Impact of the Immigration Crackdown on Children” at @morelatinosinnews.bsky.social in Chicago. #NAHJ25
July 9, 2025 at 7:44 PM
Excited to be heading to Chicago for the ‪@morelatinosinnews.bsky.social conference. Eager to hear from veteran journalists and the dynamic young leaders on the front lines of covering the relentless news cycle of this American moment. #NAHJ25
July 9, 2025 at 9:42 AM
Nine years ago this week, I saw the original cast of @hamiltonmusical.bsky.social l create magic on Broadway. It was the most thrilling theatre experience of my life...so far. #HamilTEN #RiseUp #HereComesTheGeneral #Work
July 2, 2025 at 8:13 PM
Enjoyed congratulating the Divine Ms. @robingivhan.bsky.social on the publication of her new book, “Make It Ours: Crashing the Gates of Culture with Virgil Abloh.”

We go WAAAYYY back. All the way to the early 90's Motor City. #ForeverFreep.

So proud to call her a friend!
June 25, 2025 at 7:03 PM
For #Juneteenth2025, I'm remembering my 2020 conversation with @JobinaFortson about the history of the holiday symbolizing the official end of slavery in America. #Juneteenth #JubileeDay #EmancipationDay #FreedomDay

abc7news.com/what-is-june...
June 19, 2025 at 5:53 PM
So very proud of @nationalpress.bsky.social
Widening the Pipeline fellow Brittany Johnson of @wcvb5.bsky.social in Boston for winning two New England Emmy Awards! I knew I was witnessing a star in action when we met back in March of 2022...

www.instagram.com/p/DKvEqVZOGc...
June 11, 2025 at 1:42 PM
I hope I never lose the wide-eyed, star-struck Inner Rachella who just can’t believe how lucky she is to be alive right now. @hamiltonmusical.bsky.social

#Hamilton #Hamilten #WaitForIt
June 11, 2025 at 5:10 AM
That’s because my Homie Christoper Jackson had told Leslie about my work with journalists on the African continent, and HE KNEW WHO I WAS!!! #HereComesTheGeneral #RiseUp
June 11, 2025 at 5:08 AM
Because I can’t stop re-watching the incredible 10th Anniversary reunion performance of the original @hamiltonmusical.bsky.social cast, may I just shamelessly brag that I will never as long as I live forget the hug that Leslie Odom, Jr. gave me after the July 1, 2016 performance???
June 11, 2025 at 5:04 AM
"Thank You (Falettinme Be Mice Elf Agin)"

Thank you, Sly Stone, for contributing mightily to the seriously "righteous, brighteous and outta sight" soundtrack of my childhood.

#RIPSlyStone
#IfYouWantMeToStay
#ItsAFamilyAffair
#EveryDayPeople
#DanceToTheMusic
June 9, 2025 at 9:57 PM
So glad that the @nationalpress.bsky.social Widening the Pipeline fellows based in the DC-Maryland-Virginia region got to welcome 1st year fellow Jeniffer Solis of the @nevadacurrent.com Wednesday night! She was in town for an environmental justice fellowship. A great time was had by all!
June 6, 2025 at 8:52 PM
Last night's visit to @pressclubdc.bsky.social brought back poignant memories. I joined my brother Peter for his @urochester.bsky.social alumni event; he's a 1982 biz school grad. Last time I was there with a sibling was 1994; my late, beloved sister Julie joined me to hear Nelson Mandela speak.
June 6, 2025 at 8:46 PM