Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Highlights were from @marcikayrn.bsky.social on incorporating lived experience into Core Outcome Set development, from Emer Gunne on predicting outcomes for interstitial lung disease using tech and from @streweek.bsky.social, @trialforge.bsky.social on making trials more informative and inclusive!
November 17, 2025 at 8:46 AM
Highlights were from @marcikayrn.bsky.social on incorporating lived experience into Core Outcome Set development, from Emer Gunne on predicting outcomes for interstitial lung disease using tech and from @streweek.bsky.social, @trialforge.bsky.social on making trials more informative and inclusive!