Rare Disease Advisor
@rarediseaseadvisor.bsky.social
Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
https://www.rarediseaseadvisor.com/
As we move into the next chapter of Rare Advocacy Spotlight, we honor the life and impact of Donovan Decker—LGMD advocate and 2025 @mda.org Legacy Award recipient.
We’re grateful to have interviewed Donovan before his passing. His voice and advocacy continue to inspire.
We’re grateful to have interviewed Donovan before his passing. His voice and advocacy continue to inspire.
December 4, 2025 at 9:40 PM
As we move into the next chapter of Rare Advocacy Spotlight, we honor the life and impact of Donovan Decker—LGMD advocate and 2025 @mda.org Legacy Award recipient.
We’re grateful to have interviewed Donovan before his passing. His voice and advocacy continue to inspire.
We’re grateful to have interviewed Donovan before his passing. His voice and advocacy continue to inspire.
🟥 World AIDS Day
Today we honor those affected by #HIV and raise awareness of conditions linked to it — including #PCNSL, a #RareCancer historically seen more often in advanced HIV.
#WorldAIDSDay #HIVAwareness #RareDisease #HealthEquity #EndTheStigma #MedSky
Today we honor those affected by #HIV and raise awareness of conditions linked to it — including #PCNSL, a #RareCancer historically seen more often in advanced HIV.
#WorldAIDSDay #HIVAwareness #RareDisease #HealthEquity #EndTheStigma #MedSky
December 1, 2025 at 5:48 PM
🟥 World AIDS Day
Today we honor those affected by #HIV and raise awareness of conditions linked to it — including #PCNSL, a #RareCancer historically seen more often in advanced HIV.
#WorldAIDSDay #HIVAwareness #RareDisease #HealthEquity #EndTheStigma #MedSky
Today we honor those affected by #HIV and raise awareness of conditions linked to it — including #PCNSL, a #RareCancer historically seen more often in advanced HIV.
#WorldAIDSDay #HIVAwareness #RareDisease #HealthEquity #EndTheStigma #MedSky