Parky Larry
@parkylar7.bsky.social
Dx of Parkinson's/Dystonia (age 45 in 2024) & MCI. CODA, Marine Corps Veteran, love photography.
Pinned
Parky Larry
@parkylar7.bsky.social
· Jan 1
Parkinson's Foundation: Keep on Moving!
The Parkinson's Foundation Moving Day Walk is a fun, inspiring fundraising event that unites families, friends and communities in the fight against Parkinson's disease. Held in cities across the Unite...
www3.parkinson.org
We’re doing Moving Day again this year maybe a little different than last.
Consider donating, even small amounts help. $1 from 1,000 people is $1,000. Want to walk with us, let us know. Let’s beat what we did last year. Please share! @parkinsondotorg.bsky.social
www3.parkinson.org/goto/parkyla...
Consider donating, even small amounts help. $1 from 1,000 people is $1,000. Want to walk with us, let us know. Let’s beat what we did last year. Please share! @parkinsondotorg.bsky.social
www3.parkinson.org/goto/parkyla...
Looking for a symptom tracker? ChatGPT made one for me. Link to video below. It is long. #parkinsons #dystonia #yopd #caregivers
youtu.be/EVm1XiENkOw
youtu.be/EVm1XiENkOw
Using Chat GPT to create a Symptom Tracker
YouTube video by Parky Larry
youtu.be
January 20, 2026 at 8:23 AM
Looking for a symptom tracker? ChatGPT made one for me. Link to video below. It is long. #parkinsons #dystonia #yopd #caregivers
youtu.be/EVm1XiENkOw
youtu.be/EVm1XiENkOw
We’re doing Moving Day again this year maybe a little different than last.
Consider donating, even small amounts help. $1 from 1,000 people is $1,000. Want to walk with us, let us know. Let’s beat what we did last year. Please share! @parkinsondotorg.bsky.social
www3.parkinson.org/goto/parkyla...
Consider donating, even small amounts help. $1 from 1,000 people is $1,000. Want to walk with us, let us know. Let’s beat what we did last year. Please share! @parkinsondotorg.bsky.social
www3.parkinson.org/goto/parkyla...
Parkinson's Foundation: Keep on Moving!
The Parkinson's Foundation Moving Day Walk is a fun, inspiring fundraising event that unites families, friends and communities in the fight against Parkinson's disease. Held in cities across the Unite...
www3.parkinson.org
January 1, 2026 at 2:08 PM
We’re doing Moving Day again this year maybe a little different than last.
Consider donating, even small amounts help. $1 from 1,000 people is $1,000. Want to walk with us, let us know. Let’s beat what we did last year. Please share! @parkinsondotorg.bsky.social
www3.parkinson.org/goto/parkyla...
Consider donating, even small amounts help. $1 from 1,000 people is $1,000. Want to walk with us, let us know. Let’s beat what we did last year. Please share! @parkinsondotorg.bsky.social
www3.parkinson.org/goto/parkyla...
Here is our livestream from Tuesday. My cohost was not able to join due to being ill. My caregiver joined instead.
www.youtube.com/live/h6E5Gzh...
www.youtube.com/live/h6E5Gzh...
Parky Chat - Parkinsons and Neuropathy
YouTube video by Parky Larry
www.youtube.com
December 6, 2025 at 5:19 PM
Here is our livestream from Tuesday. My cohost was not able to join due to being ill. My caregiver joined instead.
www.youtube.com/live/h6E5Gzh...
www.youtube.com/live/h6E5Gzh...
Let’s see what happens in 2026. Fun year with trying to figure things out. Still a lot to learn and figure out. #twitchrecap #streamer #dadgamer #genxgamer #streamersoftwitch
December 2, 2025 at 4:47 PM
Let’s see what happens in 2026. Fun year with trying to figure things out. Still a lot to learn and figure out. #twitchrecap #streamer #dadgamer #genxgamer #streamersoftwitch
Are you a caregiver of someone with Parkinson’s? Know of someone? Don’t go at it alone. My wife joins this group. It is run by an ambassador with Davis phinney. Message me for the email address as I don’t want to post the it on social media. Small group at the moment. #parkinsons #yopd
November 28, 2025 at 2:51 PM
Are you a caregiver of someone with Parkinson’s? Know of someone? Don’t go at it alone. My wife joins this group. It is run by an ambassador with Davis phinney. Message me for the email address as I don’t want to post the it on social media. Small group at the moment. #parkinsons #yopd
An update on my progression. A link to YouTube since this site and others limit what you can do video wise. #parkinsons #dystonia #yopd #cronicillness
youtu.be/2dD5bCYRIgA?...
youtu.be/2dD5bCYRIgA?...
An Update on Progression and MDS Appointment
YouTube video by Parky Larry
youtu.be
November 26, 2025 at 4:29 PM
An update on my progression. A link to YouTube since this site and others limit what you can do video wise. #parkinsons #dystonia #yopd #cronicillness
youtu.be/2dD5bCYRIgA?...
youtu.be/2dD5bCYRIgA?...
Great discussion on 11/11/25. We mostly discussed Lewy body dementia along with a little of Parkinson's and dystonia. Join us each Tuesday at 7pm est.
www.youtube.com/live/3U1ruv-...?
si=8LDmІ2r9aAtD7jSt
#parkinsons #dementia #lewybodydementia #yopd #genxstreamer #dadstreamer #livestream
www.youtube.com/live/3U1ruv-...?
si=8LDmІ2r9aAtD7jSt
#parkinsons #dementia #lewybodydementia #yopd #genxstreamer #dadstreamer #livestream
Parky Chat - Parkinsons Discussion and Q/A
YouTube video by Parky Larry
www.youtube.com
November 12, 2025 at 8:34 PM
Great discussion on 11/11/25. We mostly discussed Lewy body dementia along with a little of Parkinson's and dystonia. Join us each Tuesday at 7pm est.
www.youtube.com/live/3U1ruv-...?
si=8LDmІ2r9aAtD7jSt
#parkinsons #dementia #lewybodydementia #yopd #genxstreamer #dadstreamer #livestream
www.youtube.com/live/3U1ruv-...?
si=8LDmІ2r9aAtD7jSt
#parkinsons #dementia #lewybodydementia #yopd #genxstreamer #dadstreamer #livestream
Had a great conversation with a friend who also has PD. Interested in listening to our weekly live or have questions? Checkout my YouTube channel. We are aiming for every Tuesday at 7pm est. first one was a little rough but we will get things figured out.
Parky Chat
youtube.com/live/3DTp0hN...
Parky Chat
youtube.com/live/3DTp0hN...
Parky Chat
YouTube video by Parky Larry
youtube.com
November 5, 2025 at 7:59 PM
Had a great conversation with a friend who also has PD. Interested in listening to our weekly live or have questions? Checkout my YouTube channel. We are aiming for every Tuesday at 7pm est. first one was a little rough but we will get things figured out.
Parky Chat
youtube.com/live/3DTp0hN...
Parky Chat
youtube.com/live/3DTp0hN...
September 6, 2025 at 12:38 PM
August 27, 2025 at 8:57 PM
Great day at Parkinson’sFoundarion Moving day. Rained early but stopped before we had to walk. We did 2 miles! #movingday #parkinsonsfoundation #parkinsonslookslikeme #yopd #parkinsons
June 7, 2025 at 4:39 PM
Great day at Parkinson’sFoundarion Moving day. Rained early but stopped before we had to walk. We did 2 miles! #movingday #parkinsonsfoundation #parkinsonslookslikeme #yopd #parkinsons
We’re ready for Moving Day with the @parkinsondotorg.bsky.social in Baltimore!
Please consider donating. If you can’t, please share.
nclvm.com/5vw4y
Please consider donating. If you can’t, please share.
nclvm.com/5vw4y
May 26, 2025 at 11:28 PM
We’re ready for Moving Day with the @parkinsondotorg.bsky.social in Baltimore!
Please consider donating. If you can’t, please share.
nclvm.com/5vw4y
Please consider donating. If you can’t, please share.
nclvm.com/5vw4y
May 10, 2025 at 4:32 PM
Our family created a team to participate in the @parkinsondotorg.bsky.social walk with me being diagnosed last year.
If you are able and willing to donate please follow the link below. If you are unable please like and share this post.
www3.parkinson.org/goto/Schaber...
If you are able and willing to donate please follow the link below. If you are unable please like and share this post.
www3.parkinson.org/goto/Schaber...
Parkinson's Foundation: Keep on Moving!
The Parkinson's Foundation Moving Day Walk is a fun, inspiring fundraising event that unites families, friends and communities in the fight against Parkinson's disease. Held in cities across the Unite...
www3.parkinson.org
May 9, 2025 at 6:03 PM
Our family created a team to participate in the @parkinsondotorg.bsky.social walk with me being diagnosed last year.
If you are able and willing to donate please follow the link below. If you are unable please like and share this post.
www3.parkinson.org/goto/Schaber...
If you are able and willing to donate please follow the link below. If you are unable please like and share this post.
www3.parkinson.org/goto/Schaber...
May 3, 2025 at 11:51 PM
April 29, 2025 at 10:11 AM
A quick intro to me and PD. Had to get it under 3 minutes. Most of my content is longer.
#yopd #parkinsonslookslikeme #parkinsons #parkinsonsdisease
#yopd #parkinsonslookslikeme #parkinsons #parkinsonsdisease
April 20, 2025 at 7:44 PM
A quick intro to me and PD. Had to get it under 3 minutes. Most of my content is longer.
#yopd #parkinsonslookslikeme #parkinsons #parkinsonsdisease
#yopd #parkinsonslookslikeme #parkinsons #parkinsonsdisease
Intro to myself and my posts related to my journey with Parkinson’s and Dystonia.
#yopd #parkinsons #dystonia
#yopd #parkinsons #dystonia
April 9, 2025 at 6:52 PM
Intro to myself and my posts related to my journey with Parkinson’s and Dystonia.
#yopd #parkinsons #dystonia
#yopd #parkinsons #dystonia
Our cat loves pulling these up.
April 4, 2025 at 1:00 PM
Our cat loves pulling these up.
After being diagnosed with young onset Parkinsons in 2024, we formed a team to participate in the @parkinsondotorg.bsky.social #movingday in June.
If you are able and willing to donate please follow the link below. Please like and share the post.
www3.parkinson.org/goto/schaber...
If you are able and willing to donate please follow the link below. Please like and share the post.
www3.parkinson.org/goto/schaber...
Parkinson's Foundation: Keep on Moving!
The Parkinson's Foundation Moving Day Walk is a fun, inspiring fundraising event that unites families, friends and communities in the fight against Parkinson's disease. Held in cities across the Unite...
www3.parkinson.org
March 15, 2025 at 11:11 PM
After being diagnosed with young onset Parkinsons in 2024, we formed a team to participate in the @parkinsondotorg.bsky.social #movingday in June.
If you are able and willing to donate please follow the link below. Please like and share the post.
www3.parkinson.org/goto/schaber...
If you are able and willing to donate please follow the link below. Please like and share the post.
www3.parkinson.org/goto/schaber...
Someone I have started getting to know who has had PD for 10 years is asking for help. He needs DBS surgery. His insurance will not cover it. If you are not able to donate that is ok please like and share.
A link about the surgery www.parkinson.org/living-with-...
gofund.me/809a068e
A link about the surgery www.parkinson.org/living-with-...
gofund.me/809a068e
Donate to Help Raise funds for Parkinson’s DBS Surgery, organized by Jorge Lopez
10 years with Parkinson’s .
Need help raising money for DBS surgery. Getting… Jorge Lopez needs your support for Help Raise funds for Parkinson’s DBS Surgery
gofund.me
March 7, 2025 at 11:55 PM
Someone I have started getting to know who has had PD for 10 years is asking for help. He needs DBS surgery. His insurance will not cover it. If you are not able to donate that is ok please like and share.
A link about the surgery www.parkinson.org/living-with-...
gofund.me/809a068e
A link about the surgery www.parkinson.org/living-with-...
gofund.me/809a068e
Parkinsons Tshirts has great designs by someone with YOPD. If you have not already checked out his designs. He is a great guy. I have some of his shirts and it has resulted in conversations or positive comments about the shirts I wear. Just thought I would share.
www.teepublic.com/user/steve50...
www.teepublic.com/user/steve50...
T-Shirts by ParkNsonsTshirts | TeePublicSearchFilterClose
Shop t-shirts, phone cases, hoodies, art prints and mugs created by independent artists from around the globe.
www.teepublic.com
February 25, 2025 at 9:44 PM
Parkinsons Tshirts has great designs by someone with YOPD. If you have not already checked out his designs. He is a great guy. I have some of his shirts and it has resulted in conversations or positive comments about the shirts I wear. Just thought I would share.
www.teepublic.com/user/steve50...
www.teepublic.com/user/steve50...
If you have PD, be sure to get the hospital safety guide by @parkinsondotorg.bsky.social it has good information including a cutout, see image, you can laminate and hand to police or take in the hospital. Also other good resources on their site.
www.parkinson.org/resources-su...
www.parkinson.org/resources-su...
February 20, 2025 at 5:52 PM
If you have PD, be sure to get the hospital safety guide by @parkinsondotorg.bsky.social it has good information including a cutout, see image, you can laminate and hand to police or take in the hospital. Also other good resources on their site.
www.parkinson.org/resources-su...
www.parkinson.org/resources-su...
Thought I would share incase anyone else may find this useful; setting up medical ID on iPhone. Also has information you can add a summary for health care professionals starting page 3.
www.parkinson.org/sites/defaul...
www.parkinson.org/sites/defaul...
www.parkinson.org
February 19, 2025 at 7:18 PM
Thought I would share incase anyone else may find this useful; setting up medical ID on iPhone. Also has information you can add a summary for health care professionals starting page 3.
www.parkinson.org/sites/defaul...
www.parkinson.org/sites/defaul...