Liz Nevra A.
@nlizaki.bsky.social
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
2/2 The U.S. raffle is open until 14 December at midnight Pacific time! All you have to do to enter is donate and send a screenshot of your donation. Please check out my previous post for more details about the raffle prizes and how to enter.
December 11, 2025 at 6:54 AM
2/2 The U.S. raffle is open until 14 December at midnight Pacific time! All you have to do to enter is donate and send a screenshot of your donation. Please check out my previous post for more details about the raffle prizes and how to enter.
3/3 EpiPens aren’t available in Pakistan and IV access is difficult due to swelling. She’s also reacting badly to Karachi’s dust and pollution. She needs stable housing, food, and medical care to stay safe and avoid being taken back to DV. Please share + boost.
December 10, 2025 at 12:47 AM
3/3 EpiPens aren’t available in Pakistan and IV access is difficult due to swelling. She’s also reacting badly to Karachi’s dust and pollution. She needs stable housing, food, and medical care to stay safe and avoid being taken back to DV. Please share + boost.
2/3 Nevra is going long periods without eating or drinking due to extreme pain. Her carer quit and she’s having to interview for a new one while severely ill. Specialists agree she needs hospitalisation for hydration, anaphylaxis, UTIs and testing.
December 10, 2025 at 12:47 AM
2/3 Nevra is going long periods without eating or drinking due to extreme pain. Her carer quit and she’s having to interview for a new one while severely ill. Specialists agree she needs hospitalisation for hydration, anaphylaxis, UTIs and testing.
3/3
🚨Step 2: DM a screenshot of the donation to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/ ) by midnight 14th December PST
🚨Open to US-based folks only (Folks elsewhere can donate & nominate a friend to receive the prizes!)
🚨Step 2: DM a screenshot of the donation to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/ ) by midnight 14th December PST
🚨Open to US-based folks only (Folks elsewhere can donate & nominate a friend to receive the prizes!)
December 6, 2025 at 2:00 AM
3/3
🚨Step 2: DM a screenshot of the donation to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/ ) by midnight 14th December PST
🚨Open to US-based folks only (Folks elsewhere can donate & nominate a friend to receive the prizes!)
🚨Step 2: DM a screenshot of the donation to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/ ) by midnight 14th December PST
🚨Open to US-based folks only (Folks elsewhere can donate & nominate a friend to receive the prizes!)
2/3
🚨To enter: 🚨
🚨1 entry for every $6.50 donated e 3 entries for every $15.50 donated
🚨Step 1: Donate a minimum of $6.50 to Nevra via GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
🚨To enter: 🚨
🚨1 entry for every $6.50 donated e 3 entries for every $15.50 donated
🚨Step 1: Donate a minimum of $6.50 to Nevra via GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
December 6, 2025 at 2:00 AM
2/3
🚨To enter: 🚨
🚨1 entry for every $6.50 donated e 3 entries for every $15.50 donated
🚨Step 1: Donate a minimum of $6.50 to Nevra via GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
🚨To enter: 🚨
🚨1 entry for every $6.50 donated e 3 entries for every $15.50 donated
🚨Step 1: Donate a minimum of $6.50 to Nevra via GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
2/2
To enter:
1. Donate to Nevra's GFM (www.gofundme.com/f/save-nevra) or PayPal (www.paypal.com/paypalme/Sav...)
2. DM screenshot to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/)
Outside the US? You can donate + nominate a US friend!
#MECFS #SevereME #MoldExposure #DV #Karachi
To enter:
1. Donate to Nevra's GFM (www.gofundme.com/f/save-nevra) or PayPal (www.paypal.com/paypalme/Sav...)
2. DM screenshot to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/)
Outside the US? You can donate + nominate a US friend!
#MECFS #SevereME #MoldExposure #DV #Karachi
December 2, 2025 at 3:45 AM
2/2
To enter:
1. Donate to Nevra's GFM (www.gofundme.com/f/save-nevra) or PayPal (www.paypal.com/paypalme/Sav...)
2. DM screenshot to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/)
Outside the US? You can donate + nominate a US friend!
#MECFS #SevereME #MoldExposure #DV #Karachi
To enter:
1. Donate to Nevra's GFM (www.gofundme.com/f/save-nevra) or PayPal (www.paypal.com/paypalme/Sav...)
2. DM screenshot to @ Helen_Melon__ on Instagram (www.instagram.com/helen_melon__/)
Outside the US? You can donate + nominate a US friend!
#MECFS #SevereME #MoldExposure #DV #Karachi
Thread 4/4 — Citations
Naviaux RK (2016) Nature 553
Fluge D et al. (2016) JAMA 315
Loebel M et al. (2016) PLOS ONE
Scheibenbogen C et al. (2018) Brain Behav Immun
Nakatomi Y et al. (2014) J Nucl Med
Nelson MJ et al. (2021) Front Neurol
van Campen CLH et al. (2021) Front Neurol
Naviaux RK (2016) Nature 553
Fluge D et al. (2016) JAMA 315
Loebel M et al. (2016) PLOS ONE
Scheibenbogen C et al. (2018) Brain Behav Immun
Nakatomi Y et al. (2014) J Nucl Med
Nelson MJ et al. (2021) Front Neurol
van Campen CLH et al. (2021) Front Neurol
November 24, 2025 at 11:29 PM
Thread 4/4 — Citations
Naviaux RK (2016) Nature 553
Fluge D et al. (2016) JAMA 315
Loebel M et al. (2016) PLOS ONE
Scheibenbogen C et al. (2018) Brain Behav Immun
Nakatomi Y et al. (2014) J Nucl Med
Nelson MJ et al. (2021) Front Neurol
van Campen CLH et al. (2021) Front Neurol
Naviaux RK (2016) Nature 553
Fluge D et al. (2016) JAMA 315
Loebel M et al. (2016) PLOS ONE
Scheibenbogen C et al. (2018) Brain Behav Immun
Nakatomi Y et al. (2014) J Nucl Med
Nelson MJ et al. (2021) Front Neurol
van Campen CLH et al. (2021) Front Neurol
Thread 3/4
💙 Believe patients.
💙 Listen to them.
💙 Protect them.
Awareness saves lives. Awareness gives dignity.
(And yes — improvement can occur in rare, unpredictable cases. Conditions can fluctuate over time.)
💙 Believe patients.
💙 Listen to them.
💙 Protect them.
Awareness saves lives. Awareness gives dignity.
(And yes — improvement can occur in rare, unpredictable cases. Conditions can fluctuate over time.)
November 24, 2025 at 11:29 PM
Thread 3/4
💙 Believe patients.
💙 Listen to them.
💙 Protect them.
Awareness saves lives. Awareness gives dignity.
(And yes — improvement can occur in rare, unpredictable cases. Conditions can fluctuate over time.)
💙 Believe patients.
💙 Listen to them.
💙 Protect them.
Awareness saves lives. Awareness gives dignity.
(And yes — improvement can occur in rare, unpredictable cases. Conditions can fluctuate over time.)
Thread 2/4
Severe ME/CFS is one of the most misunderstood and invisible neuroimmune diseases in the world.
Many patients are left without care, dismissed, or told their symptoms are psychological — even when their bodies are shutting down.
Sharing these stories is a call to action.
Severe ME/CFS is one of the most misunderstood and invisible neuroimmune diseases in the world.
Many patients are left without care, dismissed, or told their symptoms are psychological — even when their bodies are shutting down.
Sharing these stories is a call to action.
November 24, 2025 at 11:29 PM
Thread 2/4
Severe ME/CFS is one of the most misunderstood and invisible neuroimmune diseases in the world.
Many patients are left without care, dismissed, or told their symptoms are psychological — even when their bodies are shutting down.
Sharing these stories is a call to action.
Severe ME/CFS is one of the most misunderstood and invisible neuroimmune diseases in the world.
Many patients are left without care, dismissed, or told their symptoms are psychological — even when their bodies are shutting down.
Sharing these stories is a call to action.
Thank you for your generosity!
#spoonie #spoonielife
#spooniesupport #wheelchairlife♿ #wheelchairgirl #SevereME
#SevereMEAwareness
#PMDD
#WomensHealth
#DisabilityTwitter
#MutualAidRequest
#DisabilityCrowdFund
#NEISvoid
#pwME #MyalgicE
#MECFS
#spoonie #spoonielife
#spooniesupport #wheelchairlife♿ #wheelchairgirl #SevereME
#SevereMEAwareness
#PMDD
#WomensHealth
#DisabilityTwitter
#MutualAidRequest
#DisabilityCrowdFund
#NEISvoid
#pwME #MyalgicE
#MECFS
November 20, 2025 at 2:19 AM
❤️
July 2025 (all past expenditure is on the blog that Nevra has maintained since 2020)
We are so grateful that your donations keep our Nevra safe and alive, and the will to hang in there.
July 2025 (all past expenditure is on the blog that Nevra has maintained since 2020)
We are so grateful that your donations keep our Nevra safe and alive, and the will to hang in there.
November 20, 2025 at 2:18 AM
❤️
July 2025 (all past expenditure is on the blog that Nevra has maintained since 2020)
We are so grateful that your donations keep our Nevra safe and alive, and the will to hang in there.
July 2025 (all past expenditure is on the blog that Nevra has maintained since 2020)
We are so grateful that your donations keep our Nevra safe and alive, and the will to hang in there.
It is also her request that every loan be returned and any additional funds be sent to other members of the community/her trusted friends who are also in need of mutual a.i.d.
❤️
July ....
❤️
July ....
November 20, 2025 at 2:17 AM
It is also her request that every loan be returned and any additional funds be sent to other members of the community/her trusted friends who are also in need of mutual a.i.d.
❤️
July ....
❤️
July ....
TEAM NEVRA POSTING ON BEHALF OF NEVRA- it may confuse you as to why we are posting this during a sensitive time but Nevra's request for us has been to be transparent about how your donations have helped keep her alive. This would not be possible without you, specially not in Pakistan.
November 20, 2025 at 2:16 AM
TEAM NEVRA POSTING ON BEHALF OF NEVRA- it may confuse you as to why we are posting this during a sensitive time but Nevra's request for us has been to be transparent about how your donations have helped keep her alive. This would not be possible without you, specially not in Pakistan.
🚨Open to US-based folks only (Folks elsewhere can donate & nominate a friend to receive the prizes!)
🚨For legal purposes this raffle should be considered a prize draw with 1 free entry available per entrant. Contact @Helen_Melon__ on Instagram for more info (www.instagram.com/helen_melon__/ )
🚨For legal purposes this raffle should be considered a prize draw with 1 free entry available per entrant. Contact @Helen_Melon__ on Instagram for more info (www.instagram.com/helen_melon__/ )
November 18, 2025 at 7:42 PM
🚨Open to US-based folks only (Folks elsewhere can donate & nominate a friend to receive the prizes!)
🚨For legal purposes this raffle should be considered a prize draw with 1 free entry available per entrant. Contact @Helen_Melon__ on Instagram for more info (www.instagram.com/helen_melon__/ )
🚨For legal purposes this raffle should be considered a prize draw with 1 free entry available per entrant. Contact @Helen_Melon__ on Instagram for more info (www.instagram.com/helen_melon__/ )
🚨To enter:
🚨Step 1: Donate a minimum of $6.50 to Nevra via her GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
🚨Step 2: DM a screenshot of the donation to @Helen_Melon__ on Instagram by midnight 30th November PST (www.instagram.com/helen_melon__/ )
🚨Step 1: Donate a minimum of $6.50 to Nevra via her GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
🚨Step 2: DM a screenshot of the donation to @Helen_Melon__ on Instagram by midnight 30th November PST (www.instagram.com/helen_melon__/ )
GoFundMe.com
November 18, 2025 at 7:42 PM
🚨To enter:
🚨Step 1: Donate a minimum of $6.50 to Nevra via her GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
🚨Step 2: DM a screenshot of the donation to @Helen_Melon__ on Instagram by midnight 30th November PST (www.instagram.com/helen_melon__/ )
🚨Step 1: Donate a minimum of $6.50 to Nevra via her GoFundMe.com/f/save-nevra or PayPal.me/SaveLizNevraDonate
🚨Step 2: DM a screenshot of the donation to @Helen_Melon__ on Instagram by midnight 30th November PST (www.instagram.com/helen_melon__/ )