MyBleedingInk
mybleedingink.bsky.social
MyBleedingInk
@mybleedingink.bsky.social
Just hoping it sucks less here
When I thought I was in shunt failure, but turned out I was just severely anemic.
Also, anybody have any experience living with severe anemia? (and with #SpinaBifida would be even better)
mybleedingink.com/2026/02/13/w...
Clear as Mud
When you have chronic illness, a headache is rarely just a headache. What you think is a horse can oftentimes be a zebra. So when you have hydrocephalus like me, it can also be a shunt malfunction.…
mybleedingink.com
February 14, 2026 at 1:44 PM
@marcsallinger.bsky.social what kind of dog is that? Some kind of doodle mix? He's beautiful!!!
#HeyNext
February 7, 2026 at 1:16 AM
A virtual who's who of "...who?? 🤷‍♂️"
Turning Point USA has announced that its Super Bowl halftime show — which it set up in response to Bad Bunny being named the official Super Bowl halftime act — will feature Kid Rock.

They’re calling it the “All American Halftime Show.”
February 2, 2026 at 6:48 PM
THAT was a nail biter!!! #broncosbills Go Broncos!
January 18, 2026 at 1:28 AM
@nexton9news.bsky.social Wife yelled at the TV and said "It's not a horrendous beard!" She likes it. A lot. 😅#HeyNext
January 8, 2026 at 1:18 AM
@nexton9news.bsky.social Re ICE killing, this horror will only stop when R's in Congress stand up to Trump. Or next year when Dems take over Congress.
Or his poor health and obvious cognitive decline finally unalives him. #HeyNext
January 8, 2026 at 1:10 AM
Any #Photography friends really good at restoration who can take this night time photo from 1994 and clean it up so we can more clearly see the faces of me and my friends? The girl on bottom right died a few days ago and I'd like to share this with some friends before her memorial. Thanks. ❤️
January 7, 2026 at 5:33 AM
Can't talk about it on FB. Shouldn't anyway, it's not widely known yet. Friend I went to high school with died on NYE. As far as I know, completely unexpected. AFAIK, wasn't sick or anything. Heart attack or stroke. Literally just turned 50 Dec 18. We were inseparable for a few years after hs./
January 3, 2026 at 7:09 AM
That time I wrote a thing after my grandpa died a few months before he would've celebrated 100 on Sept 16, 2019
bit.ly/ApaAceves
Together Again…
My grandparents came to this country right around the same time my family and I did. 1976. While I was growing up, my family lived 2 blocks away from them. I saw them all the time. And every time I…
bit.ly
September 17, 2025 at 1:25 AM
I wrote a thing about my experience with sleep apnea. Both kinds. 😳 If it helps anybody think about their own situation and maybe get a sleep study done, well then that's a good thing. 🤷‍♂️ #ChronicIllness
bit.ly/Apneas
That Time I Had Sleep Apnea, and Then Had Sleep Apnea (Subtitled: When My Wife Literally, Not Figuratively, Saved My Life)
So y’know that thing where people say their spouse saved their life? Sometimes metaphorical or symbolic, sometimes literal. Well this is the story of how my wife literally, not figuratively, …
bit.ly
August 4, 2025 at 7:38 AM
Crunch time, kids!!
It's the quarter finals!
I'm in 8th place but I need to be in 1st place in my group by tomorrow at 8pm to advance. Vote once for free, or pay for unlimited votes. And don't forget to share.
bit.ly/4ne5FBn
Help Jesus Arroyo win $25,000 and a feature to tell their story in the iconic Inked Magazine.
Important Ppl/events In My Life, & I Still Draw Strength From Some.
bit.ly
June 25, 2025 at 8:37 PM
99° outside.
Wife: Imma put on some booty shorts.
Me: You have booty shorts?
Wife: Nah, they're regular shorts, they're just too small.
🤣
Previous exchange inspired by this Insta reel we just watched. www.instagram.com/reel/DLKdP2J...
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June 21, 2025 at 9:48 PM
bit.ly/MidLifeBifLife
Hey #Disability people, I wrote a thing for my birthday about the existential thoughts that come with still being alive.
I Mean, Is It a Midlife Crisis If You’ve Felt This Way Since You Were 12??
So Imma be 49 any day now. And the longer I live, the more I don’t understand why. Why I’m still alive, or really why I was born in the first place. I’ve always struggled with the…
bit.ly
May 17, 2025 at 8:45 PM
Mother's Day in Mexico is always May 10th no matter what day of the week that is. And #MothersDay2025 in the US changes every year but happens to be tomorrow. So my mom gets to be celebrated all weekend. ☺️
Here's a thing I wrote once upon a time about how cool she is. ❤️
bit.ly/ForMami
May 11, 2025 at 1:02 AM
Wrote a thing about how we as #disabled people have to come up with new and creative ways to do things in a world that isn't designed and built for us. Feel free to comment on it and share it. #SpinaBifida
mybleedingink.com/2025/04/28/a...
An Ingenious Way to Live
“Disability is not a ‘brave struggle’ or ‘courage in the face of adversity’…disability is an art. It’s an ingenious way to live.”~Neil Marcus, 1993 When you’re disabled, you gotta figure out …
mybleedingink.com
May 1, 2025 at 1:06 AM
If reincarnation exists and we keep coming back over and over until we get it right, then I'm on my first life, maaaaaybe second life, because I have no idea how to exist or what I'm doing or how to be alive. 😐
January 30, 2025 at 10:18 AM
Everything Trump is already doing with migrants, LGBTQ, and eventually Medicaid and Medicare and the disabled community, me and my community, makes me numb. But if everything is going to get horrible, I'd rather get the news from "my friend Kyle" than abobody else. #HeyNext @kylec.bsky.social
January 23, 2025 at 1:12 AM
Instacart shoppers be like, "I couldn't find Havarti cheese, would you like some kale instead?" 😐 🫤
January 10, 2025 at 1:39 AM
Some ppl watch murder shows and think, "I could totally get away with this!" Some ppl watch and think, "How do ppl think they'll get away with it?? DNA never lies!" Some ppl watch these shows, take notes. 😳
I watch these shows and think, "Man. People live like pigs. Wow."
#Hoarders
January 7, 2025 at 11:36 PM
We beat the #1 team in football*

* 's 2nd and 3rd stringers 🤣
#StillCounts 😊
Go Broncos!
January 6, 2025 at 12:15 AM
Another one of them there things I'd never share on the cesspool bird app, but I like it here. So here's a link to this year's end of year quote on my FB. Happy new year, erybody. 😊
www.facebook.com/share/p/1FNU...
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www.facebook.com
January 1, 2025 at 7:13 AM
I would never post this on the cesspool bird app, but so far this place has been lovely. 😊 So if you feel inclined, feel free to click this link to my IRL FB page and read this year's tribute to my Christmas Eve baby, my wife, on her birthday. 😊
www.facebook.com/share/p/18kV...
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www.facebook.com
December 25, 2024 at 4:36 AM
One thing about me is you have to tell me exactly what time it is when I ask. Don't tell me it's 1pm when it's 12:51.
December 9, 2024 at 8:44 AM