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“People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous,” Seltzer said.

Read the full article here:
bit.ly/4p4uAbg

“People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous,” Seltzer said.

Read the full article here:
bit.ly/4p4uAbg

The Sick Times investigated exercise-related trials registered in clinicaltrials.gov database, and found that “of 112 exercise-related trial registrations for Long COVID, only 21 mentioned PEM.”
(Analysis excludes trials for hospitalized patients or with acute infection.)

#MEAction’s Scientific Director, Jaime Seltzer:
“The flawed idea central to these trials is that exercise is a panacea, and gradually increasing it could treat Long COVID. As a result, the research won’t advance our understanding of the disease’s actual underlying mechanisms."

#MEAction is currently campaigning for the NIH to fund the ME/CFS Research Roadmap, and we’ve secured a meeting with the NIH Director - read more here: www.meaction.net/research-roa...

#MEAction has fought to preserve research funding for ME/CFS and Long COVID: We mobilized the community to call on Congress to reinstate funding for Columbia Uni's ME/CFS Research Center. We sent a letter to the HHS Secretary, urging him to reinstate Long COVID Advisory Committee

Read the WaPo article here: bit.ly/4o3YQS3
(Read it here without a subscription: bit.ly/4o40Eux )

“If you pause an experiment, especially when it comes to experiments involving drugs and patients where you need a consistent dose over time and consistent measurements, it’s possible that you just screwed up the entire research,” said Vishal Patel, a physician at Brigham and Women’s Hospital.

The total count of lost grants includes those that got their funding back, but delays during trials can have profound impacts on the studies and participants.

..."People participating in clinical trials who noted improvement will now lose access to these drugs. It's also wasteful. Years of research and development represent an investment of expertise, time, and energy as well as millions of dollars, none of which can ever be recouped."

#LongCOVID and #MECFS research have seen similar setbacks - funding pulled and Long COVID research infrastructure dismantled. #MEAction’s Scientific Director responded to the JAMA paper:
“We all know that ending clinical trials mid-stream is unethical,” Seltzer said...