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meactmaryland.bsky.social
MEActMaryland
@meactmaryland.bsky.social
1.9K followers 1.8K following 200 posts
#MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV

https://youtube.com/@meactmaryland

https://linktr.ee/meactmd
Posts Replies Media Videos
meactmaryland.bsky.social
Tuesday, Dec 2nd @7pm
Advocacy Meeting
New Zoom link in Bio

ALT TEXT: (words from above)
4 cheerful cartoon penguins pose in winter gear along with snowflakes on a light blue background
@meactmaryland logo bottom right corner

#MECFS
Tuesday, Dec 2nd @7pm Advocacy Meeting New Zoom link in Bio 4 cheerful cartoon penguins pose in winter gear along with snowflakes on a light blue background @meactmaryland logo bottom right corner
November 30, 2025 at 5:36 AM
meactmaryland.bsky.social
Tues, Nov 4th @7pm
Advocacy Meeting

**New** Zoom Link in Bio

#MEAction
#Advocacy
#MECFS
#LongCovid
orange fox sits in the middle of the gray screen 2 trees with multi-colored autumnal leaves; one on each side of the screen. @meactmaryland.bsky.social logo bottom right corner Text reads Tues, Nov 4th @7pm Advocacy Meeting **New** Zoom Link in Bio
November 2, 2025 at 4:44 PM
meactmaryland.bsky.social
$1trillion in Medicaid cuts will harm millions.

ACA premium hikes will steal affordable healthcare from tens of millions.

Ask Congress to protect the most vulnerable Americans.

Call/email script available in bio.
#savemedicaid #aca @meactnet.bsky.social
Bonus image for those who scroll: Owl pumpkin (from previous) plus cat pumpkin
November 2, 2025 at 2:36 AM
meactmaryland.bsky.social
Today is the day after Halloween & this pumpkin is not scary
...
Not like Medicaid cuts are scary for millions of Americans - they're life and death.

#savemedicaid #aca @meactnet.bsky.social
ALT-TEXT: smallish Halloween pumpkin sort of adorably decorated (with stick on decorations) black ears, black wings, big huge owl eyes, yellow beak, huge orange flippers
November 2, 2025 at 2:36 AM
meactmaryland.bsky.social
TeamBlueZoo's cutest member protests for Healthcare reform

Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Deja Blue, a light brown service dog sits in the grass in front of a sign PAWS OFF OUR HEALTHCARE! PAWS OFF OUR RIGHTS! PAWS OFF OUR FREEDOM! #NOKINGS #meactmaryland @meactmaryland.bsky.social #TEAMBLUEZOO sign with pawprints reading: PAWS OFF OUR HEALTHCARE! PAWS OFF OUR RIGHTS! PAWS OFF OUR FREEDOM! #NOKINGS #meactmaryland @meactmaryland.bsky.social #TEAMBLUEZOO
October 31, 2025 at 7:58 PM
meactmaryland.bsky.social
Tomorrow
Tuesday, October 21st @ 4pm ET

Community Support Zoom #MEAction Maryland

"Come As You Are"

We've got new zoom links, so email us or check or link tree (in bio).

#MECFS #LongCovid #CommunitySupport
Black background with top & bottom borders of autumnal colored leaves White text reads: Community Support Tuesday, October 21st @ 4pm ET "Come As You Are" **New** Zoom link in Bio Meactmaryland@social.bluesky logo bottom right corner
October 20, 2025 at 5:31 PM
meactmaryland.bsky.social
Tues, Oct 7th at 7pm

1st meeting of the 2025-2026 Advocacy Year.

NEW ZOOM link in bio.

#MEAction website link not yet updated 10/5
orange & black background with white text picture of fall foliage with red/orange leaves on the ground text reads: Do the October Slide with Us! 1st meeting of the 2025-2026 Advocacy year Tuesday, October 7th @ 7pm New Zoom links in bio @MEActMaryland.bsky.social logo bottom left corner
October 5, 2025 at 8:52 PM
meactmaryland.bsky.social
#severeME Day
Aug 8th is a day of Remembrance & a day of amplification

25% of those with #MyalgicEncephalomyelitis are Severe/Very Severe. Trapped in the Dark, the Void, the Wasteland

#SevereMEAwareness
#SevereMEAwarenessDay
#UnitedForME
Black background with Blue forget-me-not flower white text reads: Severe M.E. Day August 8th Forget M.E. Not @MEActMaryland.bsky.social Logo bottom left corner
August 7, 2025 at 6:03 PM
meactmaryland.bsky.social
Sorry the alt text is the entire list for both images!
The infant mortality rate for Blacks is >2x that of whites. • Blacks have higher rates of chronic conditions, such as hypertension, diabetes, & heart disease, including a 30% > risk of death from heart disease. • Blacks died of COVID-19 at 2.4x the rate of whites; the rate was 2.3x for Hispanics. • ~1/4 of the U.S. population live in areas designated as Health Professional Shortage Areas, & these areas are disproportionately BIPOC populations. • Adults with higher incomes are more likely to receive preventive services such as screenings & vaccinations compared to those with lower incomes. For example, 77% of high-income adults receive flu shots compared to 43% of low-income adults. https://www.kff.org/key-data-on-health-and-health-care-by-race-and-ethnicity/?entry=executive-summary-key-takeaways
June 19, 2025 at 9:30 PM
meactmaryland.bsky.social
Urban Institute: “How Black Families are Faring Under the Shifting Federal Landscape” • Cuts disproportionately affected Black middle-class families in the South. • Rising unemployment is hitting Black women workers especially hard. • Existing & planned tariffs will disproportionately affect Black-owned small businesses • Tariffs could also hit Black farmers esp. hard • Safety net cuts proposed in the reconciliation bill could have the greatest effects on Black consumers • Resumed student loan collections could have an outsized effect on Black households https://www.urban.org/urban-wire/juneteenth-reflection-how-black-families-are-faring-economically-under-shifting-federal
June 19, 2025 at 9:28 PM
meactmaryland.bsky.social
The infant mortality rate for Blacks is >2x that of whites. • Blacks have higher rates of chronic conditions, such as hypertension, diabetes, & heart disease, including a 30% > risk of death from heart disease. • Blacks died of COVID-19 at 2.4x the rate of whites; the rate was 2.3x for Hispanics. • ~1/4 of the U.S. population live in areas designated as Health Professional Shortage Areas, & these areas are disproportionately BIPOC populations. • Adults with higher incomes are more likely to receive preventive services such as screenings & vaccinations compared to those with lower incomes. For example, 77% of high-income adults receive flu shots compared to 43% of low-income adults. https://www.kff.org/key-data-on-health-and-health-care-by-race-and-ethnicity/?entry=executive-summary-key-takeaways
June 19, 2025 at 9:27 PM
meactmaryland.bsky.social
For #Juneteenth we collected some resources:

JUNETEENTH: it's the celebration of the end of slavery in the United States, marking the day when the last enslaved African Americans were free.
nmaahc.si.edu/explore/mome...
June 19, 2025 at 9:23 PM
meactmaryland.bsky.social
QR code
#pediatrics #thoracicoutletsyndrome #TOS #biomechanical #medicaleducation #chronicpain #thoracicspine #ehlersdanlossyndrome #ehlersdanlossyndromes #hypermobility #mecfs #pediatric #meaction #cfsme #cfs #chronicfatiguesyndrome #livedexperience #evidencebased
#MEAction
Alt ID2: Graphic in blue/ yellow/ & white sharing info about the webinar “Biomechanical Manifestations in Pediatric ME/CFS” which launched on June 9, 2025. Large QR code on right side
June 17, 2025 at 7:34 AM
meactmaryland.bsky.social
Dr. Peter Rowe's slides now available for episode 4!

tinyurl.com/RoweSlidesME...
Alt ID1 : Graphic in blue/ yellow/ and white sharing info about “Biomechanical Considerations in Pediatric ME/CFS” with Dr. Peter Rowe on June 9th at 1 pm ET. It includes a photo of Dr. Rowe. Graphic also lists things you will learn & shares that it will be facilitated by #MEAction Maryland. #TeachMETreatME logo is in the bottom corner. This series will be available online at youtube.com/@MEActMaryland
June 17, 2025 at 7:34 AM
meactmaryland.bsky.social
Tues, June 17th at 4 pm ET is our monthly support call (3rd Tuesday of every month).

We need community & support now more than ever.

Come As You Are and share as little or as much as you want!

Link in linktree
Turquoise background with sunflowers #meaction Maryland logo Text: Community Support; June 17th @ 4pm
June 15, 2025 at 6:39 PM
meactmaryland.bsky.social
Episode 4 debuted today!

And of course it has a full transcript available too! tinyurl.com/RoweTranscri...
Graphic in blue/ yellow/ and white sharing info about the upcoming event: “Biomechanical Considerations in Pediatric ME/CFS” with Dr. Peter Rowe on June 9th at 1 pm ET. It includes a photo of Dr. Rowe @meactnet.social.bsky #MEAction Maryland #TeachMETreatME
June 9, 2025 at 8:57 PM
meactmaryland.bsky.social
Premiering Now: Biomechanical Considerations in Pediatric ME/CFS the 4th Episode in the #MedEd Webinar Series by Dr. Peter Rowe youtube.com/@meactmaryland

Do you struggle to shampoo your hair? Grip strength? Come learn more! #MyalgicEncephalomyelitis ##thoracicoutletsyndrome #tos
Alt ID1 : Graphic in blue/ yellow/ and white sharing info about the upcoming event: “Biomechanical Considerations in Pediatric ME/CFS” with Dr. Peter Rowe on June 9th at 1 pm ET. It includes a photo of Dr. Rowe #MEAction #TeachMETreatME @MeActnet
June 9, 2025 at 4:58 PM
meactmaryland.bsky.social
“Evidence-Based Pediatric ME/CFS" Webinar Series by Dr. Rowe
1) Evidence-Based Pediatric ME/CFS
2) Orthostatic Intolerance in Pediatric ME/CFS
3) Hypermobility and EDS in Pediatric ME/CFS
4) Biomechanical Manifestations in Pediatric ME/CFS 5) Neuroanatomical Manifestations in Pediatric ME/CFS
ALT TEXT: Graphic in blue/ yellow/ and white sharing info on the “Evidence-Based Pediatric ME/CFS Webinar Series by Dr Peter Rowe” facilitated by @Meactnetmaryland.bsky.social 1) Evidence-Based Pediatric ME/CFS 2) Orthostatic Intolerance in Pediatric ME/CFS 3) Hypermobility and EDS in Pediatric ME/CFS 4) Biomechanical Manifestations in Pediatric ME/CFS 5) Neuroanatomical Manifestations in Pediatric ME/CFS
June 3, 2025 at 7:53 AM
meactmaryland.bsky.social
The objectives of this #MedEd webinar:
1) Joint hypermobility & Ehlers-Danlos Syndrome are risk factors for ME/CFS, orthostatic intolerance, & structural dysfunctions
2)Symptoms can be provoked by application of a neural strain
3) Adverse neural tension & neural tension dysfunction.
Alt ID: Graphic in blue/ yellow/ and white sharing info about the webinar “Biomechanical Manifestations in Pediatric ME/CFS” which launched on June 9 at 1 pm ET. The graphic also lists things you will learn and shares that it will be facilitated by #MEAction Maryland. Those are also listed in this post. #TeachMETreatME logo is in the bottom corner. This series will be available online at youtube.com/@MEActmaryland
June 3, 2025 at 7:53 AM
meactmaryland.bsky.social
May Community Support
5/20, Tuesday
@4pm
Link in linktree
Background floral border
May Community Support 5/20, Tuesday @4pm Link in linktree Background floral border
May 19, 2025 at 8:26 AM
meactmaryland.bsky.social
Team Griff was channeling my inner feelings and did not leave bed
#MyalgicEncephalomyelitis #MECFS
#NEISVoid
Black cat called Griff stares with big green eyes at the camera from a whole pile of blankets (one of which happens to have black cats with green eyes on it)
May 18, 2025 at 3:15 AM
meactmaryland.bsky.social
Team Terra agrees.
#BlueSundayforME2025
Tortishell cat named Terra tours a Blue Sunday MECFS table scape involving a blue teapot, cup, & teabag holder in wedgewood design along with two candles & two iced tea glasses & a pitcher made of glass with blue spackles of paint in multi shades along the bottom.
May 18, 2025 at 3:15 AM
meactmaryland.bsky.social
Trying to prep for #BlueSundayForME tomorrow, & my cats have definite opinions.

Team ZeeZee votes wedgewood teapot
#TeaPartyForME2025

www.facebook.com/share/p/1AeD...
Calico cat nicknamed ZeeZee tours a Blue Sunday MECFS table scape involving a blue teapot, cup, & teabag holder in wedgewood design along with two candles & a tiny blue glass decorative vase pitcher hybrid
May 18, 2025 at 3:15 AM
meactmaryland.bsky.social
All links on our linktree (Zoom not live until Sunday).

Share your Blue Sunday moments (tea, cake, wearing blue!) using #BlueSunday. Let's build community, even when we're apart.

#BlueSunday2025 #MyalgicEncephalomyelitis #ChronicIllness #MEAwareness #VirtualTeaParty #MillionsMissing
May 14, 2025 at 5:51 AM
meactmaryland.bsky.social
How: Participate virtually from the comfort of your home!

Join: #MEAction Maryland & Dr Kristina Hallett for a ~20min talk = Q&A on the difference it makes in Quality of Life to be believed by the medical community.

Stay after: for Bingo (with prizes!)

Stay after: to chat!
May 14, 2025 at 5:51 AM