Muscular Dystrophy Pakistan
@mdpakistanorg.bsky.social
Our mission is to empower the muscular dystrophy community through education, advocacy, collaboration, and compassionate outreach.We actively engage with healthcare providers, researchers, policymakers, and global partners to improve the quality of Life.
Participants will complete 13.1 miles — whether:
• in the gym
• on a treadmill
• in your neighborhood
• walking or running
• all at once or over time
Wherever you are, however you move — you can take part.
This is more than a run.
#RunForRarePakistan #MuscularDystrophyPakistan #RareDiseaseAwareness
• in the gym
• on a treadmill
• in your neighborhood
• walking or running
• all at once or over time
Wherever you are, however you move — you can take part.
This is more than a run.
#RunForRarePakistan #MuscularDystrophyPakistan #RareDiseaseAwareness
January 28, 2026 at 3:44 AM
Participants will complete 13.1 miles — whether:
• in the gym
• on a treadmill
• in your neighborhood
• walking or running
• all at once or over time
Wherever you are, however you move — you can take part.
This is more than a run.
#RunForRarePakistan #MuscularDystrophyPakistan #RareDiseaseAwareness
• in the gym
• on a treadmill
• in your neighborhood
• walking or running
• all at once or over time
Wherever you are, however you move — you can take part.
This is more than a run.
#RunForRarePakistan #MuscularDystrophyPakistan #RareDiseaseAwareness
Meet Our The Run Team Of
Muscular Dystrophy Pakistan 2026
Proudly Supporting Families Effected By Muscular Dystrophies And Rare Diseases.
Muscular Dystrophy Pakistan 2026
Proudly Supporting Families Effected By Muscular Dystrophies And Rare Diseases.
January 27, 2026 at 11:14 PM
Meet Our The Run Team Of
Muscular Dystrophy Pakistan 2026
Proudly Supporting Families Effected By Muscular Dystrophies And Rare Diseases.
Muscular Dystrophy Pakistan 2026
Proudly Supporting Families Effected By Muscular Dystrophies And Rare Diseases.
Rare Diseases Are Not Rare
Rare diseases may affect a small number of people individually—but together, they impact millions of families worldwide. For those living with rare conditions, the challenges are daily and lifelong: delayed diagnosis, limited treatment options, high medical costs...
Rare diseases may affect a small number of people individually—but together, they impact millions of families worldwide. For those living with rare conditions, the challenges are daily and lifelong: delayed diagnosis, limited treatment options, high medical costs...
January 20, 2026 at 7:44 AM
Rare Diseases Are Not Rare
Rare diseases may affect a small number of people individually—but together, they impact millions of families worldwide. For those living with rare conditions, the challenges are daily and lifelong: delayed diagnosis, limited treatment options, high medical costs...
Rare diseases may affect a small number of people individually—but together, they impact millions of families worldwide. For those living with rare conditions, the challenges are daily and lifelong: delayed diagnosis, limited treatment options, high medical costs...
Join us to be an Volunteer.
January 17, 2026 at 1:13 AM
Join us to be an Volunteer.
Driving Change in Rare Diseases
Progress in rare diseases relies on science-driven policy, strong patient leadership, and collaboration across multiple stakeholders. Many patients face long diagnostic journeys, but the growing role of patient-led therapy development shows how data, lived experiences
Progress in rare diseases relies on science-driven policy, strong patient leadership, and collaboration across multiple stakeholders. Many patients face long diagnostic journeys, but the growing role of patient-led therapy development shows how data, lived experiences
January 10, 2026 at 3:50 AM
Driving Change in Rare Diseases
Progress in rare diseases relies on science-driven policy, strong patient leadership, and collaboration across multiple stakeholders. Many patients face long diagnostic journeys, but the growing role of patient-led therapy development shows how data, lived experiences
Progress in rare diseases relies on science-driven policy, strong patient leadership, and collaboration across multiple stakeholders. Many patients face long diagnostic journeys, but the growing role of patient-led therapy development shows how data, lived experiences
Join Us at Capitol Hill...
January 7, 2026 at 11:42 AM
Join Us at Capitol Hill...
Join us at Cap Hill
January 7, 2026 at 9:16 AM
Join us at Cap Hill
Hold Our Hands in this struggle...
January 6, 2026 at 1:37 AM
Hold Our Hands in this struggle...
Proud Moment – Muscular Dystrophy Pakistan 🇵🇰
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
December 16, 2025 at 4:07 AM
Proud Moment – Muscular Dystrophy Pakistan 🇵🇰
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
Muscular Dystrophy Pakistan,
successfully participated in the 2-Day Duchenne Patient Academy organized by the WDO. This global training strengthened skills in:
✔️ Patient advocacy
✔️ Standards of care
✔️ Research & clinical trials
✔️ Global collaboration
December 8, 2025 at 12:52 PM
📢 Muscular Dystrophy Pakistan – Official WhatsApp Channel Launched!
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
December 3, 2025 at 3:44 AM
📢 Muscular Dystrophy Pakistan – Official WhatsApp Channel Launched!
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
Stay connected. Stay informed
✨ Join us and become part of a growing community working for early diagnosis, support, and hope for every MD family in Pakistan.
👉 Follow our WhatsApp Channel:
whatsapp.com/channel/0029...
Dear Team Members of EveryLife Foundation for Rare Diseases,
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
November 27, 2025 at 2:10 AM
Dear Team Members of EveryLife Foundation for Rare Diseases,
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
From my perspective, Thanksgiving is a special time to pause and recognize the power of collaboration, kindness, and shared purpose. Today.
With gratitude,
Ghulam Ali
Founder and CEO- Research Fellow
Muscular Dystrophy Pakistan
🌟 This Giving Tuesday – 2 December 2025 🌟
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
November 26, 2025 at 9:20 AM
🌟 This Giving Tuesday – 2 December 2025 🌟
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
Join us in making a difference! 🤝💙
Muscular Dystrophy Pakistan is dedicated to supporting individuals and families affected by Muscular Dystrophy. Your generous contribution today can help provide:
💙 Together, we can empower lives.
Sarepta Therapeutics, Inc. announced that the FDA has approved dosing in Cohort 8 of ENDEAVOR (Study 9001-103). Purpose of Cohort 8 is evaluate use of enhanced immunosuppressive regimen part of treatment with ELEVIDYS (delandistrogene moxeparvovec-rokl) for non-ambulant individuals with DMD.
November 26, 2025 at 7:19 AM
Sarepta Therapeutics, Inc. announced that the FDA has approved dosing in Cohort 8 of ENDEAVOR (Study 9001-103). Purpose of Cohort 8 is evaluate use of enhanced immunosuppressive regimen part of treatment with ELEVIDYS (delandistrogene moxeparvovec-rokl) for non-ambulant individuals with DMD.