Long Covid SOS
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rehabilitation
www.longcovidsos.org
[email protected]
Charity reg no 1199120
Recognition - Research - Rehabilitation
www.longcovidsos.org
[email protected]
Charity reg no 1199120
Thank you @drjoepajak.bsky.social - our team really appreciates your support for our advocacy and information.
November 14, 2025 at 9:38 PM
Thank you @drjoepajak.bsky.social - our team really appreciates your support for our advocacy and information.
We have also launched our fundraising campaign for a paid member of staff to act as Campaigns Manager for LCSOS. Our small volunteer team desperately need support to keep advocating for #pwLC, raising awareness, and being a trusted voice for #LongCovid
localgiving.org/fundraising/...
localgiving.org/fundraising/...
Long Covid SOS Campaigns Manager | Localgiving
localgiving.org
November 14, 2025 at 4:37 PM
We have also launched our fundraising campaign for a paid member of staff to act as Campaigns Manager for LCSOS. Our small volunteer team desperately need support to keep advocating for #pwLC, raising awareness, and being a trusted voice for #LongCovid
localgiving.org/fundraising/...
localgiving.org/fundraising/...
We have written an open letter to Wes Streeting, Health Secretary, calling for more research funding and public health prevention in #LongCovid, and highlighting the vital rights every #pwLC should have in our Bill of Rights
Longcovidsos.org/post/letter-health-secretary
Longcovidsos.org/post/letter-health-secretary
People with Long Covid are still being ignored: open letter to the Health Secretary
Unfortunately, more than five years on from the pandemic, we face the need to continually apply pressure to healthcare decision makers, and feel abandoned and ignored.
Longcovidsos.org
November 14, 2025 at 4:37 PM
We have written an open letter to Wes Streeting, Health Secretary, calling for more research funding and public health prevention in #LongCovid, and highlighting the vital rights every #pwLC should have in our Bill of Rights
Longcovidsos.org/post/letter-health-secretary
Longcovidsos.org/post/letter-health-secretary
This paper is special to us. It carries forward Ondine’s vision of patient voices shaping the future of science and policy.
Read more: www.frontiersin.org/journals/pub...
Read more: www.frontiersin.org/journals/pub...
Frontiers | Co-creating a social science research agenda for Long Covid
IntroductionOur objective was to understand how social scientific research could best address the needs and concerns of patients, families, carers, healthcar...
www.frontiersin.org
November 6, 2025 at 1:01 PM
This paper is special to us. It carries forward Ondine’s vision of patient voices shaping the future of science and policy.
Read more: www.frontiersin.org/journals/pub...
Read more: www.frontiersin.org/journals/pub...
These are the issues that matter most to people with Long Covid, and the ones that demand urgent attention from funders and policymakers.
November 6, 2025 at 1:01 PM
These are the issues that matter most to people with Long Covid, and the ones that demand urgent attention from funders and policymakers.
The priorities include:
- Treatments & therapies
- Financial support
- Repeated reinfections
- Training healthcare professionals
- Mental health impact
- Research funding
- Airborne transmission
- Patient-informed therapeutics
- Socioeconomic impact
- Treatments & therapies
- Financial support
- Repeated reinfections
- Training healthcare professionals
- Mental health impact
- Research funding
- Airborne transmission
- Patient-informed therapeutics
- Socioeconomic impact
November 6, 2025 at 1:01 PM
The priorities include:
- Treatments & therapies
- Financial support
- Repeated reinfections
- Training healthcare professionals
- Mental health impact
- Research funding
- Airborne transmission
- Patient-informed therapeutics
- Socioeconomic impact
- Treatments & therapies
- Financial support
- Repeated reinfections
- Training healthcare professionals
- Mental health impact
- Research funding
- Airborne transmission
- Patient-informed therapeutics
- Socioeconomic impact
As clinics close and treatment is getting harder to find, help us to support the thousands living with the condition. Don’t let them be left behind.
Share this post or support us today
🔗 tinyurl.com/535u79va
Share this post or support us today
🔗 tinyurl.com/535u79va
Long Covid SOS Campaigns Manager | Localgiving
tinyurl.com
October 30, 2025 at 5:51 PM
As clinics close and treatment is getting harder to find, help us to support the thousands living with the condition. Don’t let them be left behind.
Share this post or support us today
🔗 tinyurl.com/535u79va
Share this post or support us today
🔗 tinyurl.com/535u79va
Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.
October 30, 2025 at 5:51 PM
Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.
Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.
October 30, 2025 at 5:41 PM
Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.
Of course vaccination is an additional helpful barrier to severe initial and additional ongoing symptoms, but it is not easily and immediately accessible for most people in the UK as opposed to these immediate actions that anyone can take… we still support vaccination as a preventative measure in LC
October 3, 2025 at 8:15 PM
Of course vaccination is an additional helpful barrier to severe initial and additional ongoing symptoms, but it is not easily and immediately accessible for most people in the UK as opposed to these immediate actions that anyone can take… we still support vaccination as a preventative measure in LC
2/2:
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe
Long Covid SOS Charity | Recognition Research Rehabilitation
Long Covid SOS is the voice of the thousands of Long Covid sufferers in the UK. We are throwing a lifeline to all those who are living with the debilitating impact of Covid-19: Long Covid
longcovidsos.org
October 3, 2025 at 4:55 PM
2/2:
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe