Lobular Breast Cancer Alliance (LBCA)
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lobularbca.bsky.social
Lobular Breast Cancer Alliance (LBCA)
@lobularbca.bsky.social
LBCA is the only organization in the US dedicated to invasive lobular carcinoma (ILC) also known as lobular breast cancer, the 2nd most common breast cancer type. Learn more at lobularbreastcancer.org
October 15th is Lobular Breast Cancer Awareness Day! Help us spread the word about the 2nd most common type of breast cancer that may not form a lump, is often missed on mammograms, has no targeted treatments and receives less than 1% of research funding. lobularbreastcancer.org/oct-15th-202...
October 15, 2025 at 5:32 AM
Help us raise $150k for the 15% diagnosed with lobular breast cancer now, as part of our Oct 15th Global Lobular Breast Cancer Awareness Day campaign and your gift will be matched! lobularbreastcanceralliance-bloom.kindful.com #lobularbreastcancer #ILCresearch
September 10, 2025 at 3:59 PM
LBCA is partnering with SurvivingBreastCancer.org (SBC) to provide more virtual support groups for lobular breast cancer. SBC will soon offer a metastatic ILC support group. If you are interested in co-leading, register for SBC's Facilitator Training on Sept. 27–28th: forms.gle/a57G1bn8p7eg...
September 9, 2025 at 4:24 PM
We're excited that legislation has been filed in Massachusetts to make Oct. 15th Lobular Breast Cancer Awareness every year. LBCA ED Laurie Hutcheson, SAB Member Dr. Jeselsohn, and volunteers met with senators at the MA State House to strategize on the bill. #lobularbreastcancer #ILCawareness
September 5, 2025 at 9:34 PM
Do you receive our monthly newsletter? Each month we share news on lobular research, advocacy, opportunities to connect with other patients or get involved to help raise awareness of ILC. Subscribe here: lobularbreastcancer.org/contact-us/s... #lobularbreastcancer #ILC
September 5, 2025 at 9:17 PM
Meet Mary, a healthcare market researcher diagnosed with Stage 2b ILC who had never heard of lobular breast cancer. A mom of three, Mary now mentors others and advocates for better imaging, research, & awareness: lobularbreastcancer.org/meet-mary/ #ILCStory #lobularbreastcancer
August 14, 2025 at 9:18 PM
Oct 15th Global Lobular Breast Cancer Awareness Day is 2 months away! Getting governors' proclamations of the day in the US is a great way to raise awareness. With your help we have 20 in the works. If you don't see your state on our map and can help, email [email protected] #ILC
August 14, 2025 at 5:59 PM
Meet Dr. Mamtani, surgical oncologist & newest SAB member! As co-director of Memorial Sloan Kettering's pioneering Lobular Program, she shares how early experiences shaped her career and explains why partnering with advocates matters. lobularbreastcancer.org/new-sab-memb...
July 29, 2025 at 7:11 PM
Help us raise awareness about invasive lobular carcinoma (ILC) and Global Lobular Breast Cancer Awareness Day on Oct. 15th by sharing your story! Patient stories are key to help spread the word about ILC. If you would you like to share your story email [email protected]
July 17, 2025 at 3:10 PM
New in 2025: the National Comprehensive Cancer Network (NCCN) highlights the use of the diagnostic procedure FES-PET for metastatic or recurrent ILC. This is the first time the NCCN guidelines identify any procedure for ILC-specifically. lobularbreastcancer.org/ilc-specific...
July 15, 2025 at 4:56 PM
LBCA SAB Chair Dr. Mouabbi and MSKCC ILC program co-lead Dr. Shen, each shared exciting ILC research study results at the American Society of Clinical Oncology conference last month: lobularbreastcancer.org/ilc-research.... #ILC #ASCO2025
July 15, 2025 at 3:08 PM
Help us make this October 15—Global Lobular Breast Cancer Awareness Day—the biggest yet! Join LBCA and partners around the world to raise awareness about invasive lobular carcinoma (ILC). Create a social media reel, host an event, each action helps. Sign up here! tinyurl.com/October15thS...
June 27, 2025 at 8:07 PM
In a recent SurgOnc Today® from the Society of Surgical Oncology, experts dive into the surgical challenges of lobular breast cancer. Moderated by Dr. Weiss, with Dr. Fayanju, Dr. Mukhtar (LBCA SAB), and ILC survivor & LBCA Executive Director Laurie Hutcheson. surgonc.org/education/su... #ILC
June 27, 2025 at 6:15 PM
LBCA is offering travel scholarship grants for advocates interested in Invasive Lobular Carcinoma (ILC) education to attend the 2025 San Antonio Breast Cancer Symposium (SABCS) in San Antonio, Texas, December 9-12, 2025. Deadline to apply is Monday, July 21st: tinyurl.com/LBCATravelGr...
June 24, 2025 at 11:56 PM
LBCA Local Advocacy Team Coordinator Kathleen Moss shared her Lobular Breast Cancer journey in a new interview on The Patient Story. Watch to hear how she reclaimed body confidence after diagnosis: thepatientstory.com/patient-stor...
June 24, 2025 at 9:50 PM
Professional golfer Angela Stanford shares the story of her mother's ILC diagnosis during National Cancer Research Month #lobularbreastcancer #NCRM #ILC
May 9, 2025 at 1:26 PM
For National Cancer Research Month LBCA highlights the critical need for dedicated research for invasive lobular carcinoma (ILC) to improve detection and treatments. Help with a gift today: lobularbreastcanceralliance-bloom.kindful.com #lobularbreastcancer #ILC
May 6, 2025 at 4:06 PM
JOIN US for a Lobular Breast Cancer Chat with Dr. Yeh, advocate Gitte Joergensen @gitteilc.bsky.social & Dr. Ulaner to discuss new metastatic ILC imaging research, the SNMMI Mars Shot program @snmmi-marsshot.bsky.social & more! Register here: forms.gle/WzWvmQn9dWhe...
April 28, 2025 at 2:27 PM
LBCA is hiring a part-time Development Associate! The position will work with a portfolio of major donors, support the Development Committee and peer to peer fundraising. Help LBCA in its mission to eradicate ILC. Deadline to apply is April 28th: lobularbreastcancer.org/lbca-develop...
April 17, 2025 at 8:22 PM
For Global Volunteer Appreciation Month, LBCA would like to thank our generous volunteers. Nothing we do would be possible without all of you! #globalvolunteerappreciationmonth #lobularbreastcancer #ILC
April 3, 2025 at 7:03 PM
This weekend we learned of the loss of another angel. Nancy - we will miss you so much! You have been a wonderful help to LBCA on our Patient Advocate Advisory Board spreading the universal message to raise awareness of ILC!
March 10, 2025 at 5:05 PM
The National Breast Cancer Coalition (NBCC) upcoming events for advocates: Advocate Leadership Summit (May 3-5) and Project LEAD (July 22-Aug 1). LBCA supports travel to both, learn more: lobularbreastcancer.org/upcoming-nat...
March 5, 2025 at 10:15 PM
This month we express gratitude to the six presenters who contributed to our highlights presentation of the 2024 ILC Symposium. LBCA SAB members Dr. Muhktar and Dr. Sflomos plus Dr. Covington, Lounes Djerroudi, Dr. Di Meglio and Dr. Sandoval #volunteerappreciation #lobularbreastcancer #ilc
February 27, 2025 at 8:11 PM
Meet Karen, an oncology service line director in HI, diagnosed with lobular breast cancer at 43 after a clear screening mammogram just 9 months prior. Read Karen’s story here: lobularbreastcancer.org/my-ilc-story... #lobularbreastcancer #invasivelobularcarcinoma #ILC #ILCStories
February 20, 2025 at 7:51 PM