@lindsayguentzel.bsky.social
Matt! This is fantastic news! Congratulations!
April 8, 2025 at 3:14 AM
Matt! This is fantastic news! Congratulations!
Omfg.
Omfg.
Omfg.
April 2, 2025 at 2:15 AM
Omfg.
Omfg.
Omfg.
It was postponed. I’m still giving it tomorrow at the same time I was supposed to. It will be streaming on YouTube here at 2:30pm eastern.
Would love to have you join us!
youtube.com/@myositisass...
Would love to have you join us!
youtube.com/@myositisass...
The Myositis Association (TMA)
The Myositis Association (TMA) is Support, Education, Research, and Advocacy.
TMA is the leading worldwide organization for people with myositis, a rare autoimmune disease of the muscles.
TMA provi...
youtube.com
February 27, 2025 at 11:27 PM
It was postponed. I’m still giving it tomorrow at the same time I was supposed to. It will be streaming on YouTube here at 2:30pm eastern.
Would love to have you join us!
youtube.com/@myositisass...
Would love to have you join us!
youtube.com/@myositisass...
Remember when we stayed in the Airbnb and John was the only non-ADHDer? 🤣🤣🤣🤣
February 6, 2025 at 11:20 PM
Remember when we stayed in the Airbnb and John was the only non-ADHDer? 🤣🤣🤣🤣
Like many rare diseases, DM and Antisynthetase Syndrome symptoms vary by patient.
For me, it predominantly affects my muscles, lungs and skin and in the less than 2 years since I was diagnosed, I’ve had 350+ appointments and procedures to treat this chronic illness.
It’s a full-time job.
For me, it predominantly affects my muscles, lungs and skin and in the less than 2 years since I was diagnosed, I’ve had 350+ appointments and procedures to treat this chronic illness.
It’s a full-time job.
February 6, 2025 at 4:45 AM
Like many rare diseases, DM and Antisynthetase Syndrome symptoms vary by patient.
For me, it predominantly affects my muscles, lungs and skin and in the less than 2 years since I was diagnosed, I’ve had 350+ appointments and procedures to treat this chronic illness.
It’s a full-time job.
For me, it predominantly affects my muscles, lungs and skin and in the less than 2 years since I was diagnosed, I’ve had 350+ appointments and procedures to treat this chronic illness.
It’s a full-time job.
I got you!
I use Siri and I say, “read me all my unread text messages”. Works amazing when I’m driving or when I’m going for a walk or a workout.
Obviously, if I’ve read them already, I have to go back and make a point to respond. But this is a huge help for me.
I use Siri and I say, “read me all my unread text messages”. Works amazing when I’m driving or when I’m going for a walk or a workout.
Obviously, if I’ve read them already, I have to go back and make a point to respond. But this is a huge help for me.
February 5, 2025 at 3:37 PM
I got you!
I use Siri and I say, “read me all my unread text messages”. Works amazing when I’m driving or when I’m going for a walk or a workout.
Obviously, if I’ve read them already, I have to go back and make a point to respond. But this is a huge help for me.
I use Siri and I say, “read me all my unread text messages”. Works amazing when I’m driving or when I’m going for a walk or a workout.
Obviously, if I’ve read them already, I have to go back and make a point to respond. But this is a huge help for me.
If you haven’t read “The Day The World Came To Town” by Jim DeFede, I can’t recommend it enough. Beautifully done.
February 3, 2025 at 4:29 AM
If you haven’t read “The Day The World Came To Town” by Jim DeFede, I can’t recommend it enough. Beautifully done.
Thank you for covering this. Not a researcher but a rare disease patient who relies on their work.
January 24, 2025 at 5:48 AM
Thank you for covering this. Not a researcher but a rare disease patient who relies on their work.