Jeremy Snyder
@jsnyder.bsky.social
Professor in the Faculty of Health Sciences at Simon Fraser University in British Columbia, Canada. Interested in public health ethics, bioethics, philosophy, crowdfunding, and exploitation, among other things.
These campaigns did fairly well be the standards of crowdfunding, raising median $3,675.04. That's generally far short of what is needed to access these therapies however and, as is typical when crowdfunding, there was a big difference in outcomes ranging from $0-$2,400,256.
November 25, 2025 at 5:21 PM
These campaigns did fairly well be the standards of crowdfunding, raising median $3,675.04. That's generally far short of what is needed to access these therapies however and, as is typical when crowdfunding, there was a big difference in outcomes ranging from $0-$2,400,256.
“I am so touched by just the outpouring support we’ve received. We were able to cover the cost of his first treatment through the GoFundMe.... We obviously want to do the best we can for our family and for Noah. ...that means trying to get him as many treatments as possible”.
November 21, 2025 at 6:22 PM
“I am so touched by just the outpouring support we’ve received. We were able to cover the cost of his first treatment through the GoFundMe.... We obviously want to do the best we can for our family and for Noah. ...that means trying to get him as many treatments as possible”.
To clarify, this is expanded access outside of a clinical trial: "The team at Duke is at the expanded access protocol stage, which means the treatment passed clinical trials." I assume "passed clinical trials" is meant as "completed", but this wording suggests that the treatment is proven effective.
November 21, 2025 at 6:17 PM
To clarify, this is expanded access outside of a clinical trial: "The team at Duke is at the expanded access protocol stage, which means the treatment passed clinical trials." I assume "passed clinical trials" is meant as "completed", but this wording suggests that the treatment is proven effective.
This is particularly bad as @gofundme.com did a similar thing in creating pages for restaurants in partnership with Yelp during the COVID-19 pandemic. This move, which also required restaurants to opt out, faced backlash and led to an apology. So, lesson not learned.
Yelp, GoFundMe Make COVID-19 Fundraisers for Restaurants Without Their Permission
Blindsiding businesses that were already in a tough position
www.eater.com
October 25, 2025 at 7:41 PM
This is particularly bad as @gofundme.com did a similar thing in creating pages for restaurants in partnership with Yelp during the COVID-19 pandemic. This move, which also required restaurants to opt out, faced backlash and led to an apology. So, lesson not learned.