Jess Badger
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
jesshoneybadger.substack.com
Such a good point that I had never actually thought through before. Why are the patients being the one targeted over Medicaid fraud? We can’t even really do it!
July 1, 2025 at 10:11 PM
Such a good point that I had never actually thought through before. Why are the patients being the one targeted over Medicaid fraud? We can’t even really do it!
When I look at this I think, “yup, severe MECFS is exactly where I am.”
March 25, 2025 at 7:35 PM
When I look at this I think, “yup, severe MECFS is exactly where I am.”
Just popping in to remind you that your weird friend is still weird.
Just paid $24.99 to watch the LGT World Women’s Curling Championship on my personal television.
Hope you are also able to carpe diem your Saturday afternoon!
Just paid $24.99 to watch the LGT World Women’s Curling Championship on my personal television.
Hope you are also able to carpe diem your Saturday afternoon!
March 15, 2025 at 8:22 PM
Just popping in to remind you that your weird friend is still weird.
Just paid $24.99 to watch the LGT World Women’s Curling Championship on my personal television.
Hope you are also able to carpe diem your Saturday afternoon!
Just paid $24.99 to watch the LGT World Women’s Curling Championship on my personal television.
Hope you are also able to carpe diem your Saturday afternoon!
I went outside at 3am to see the lunar eclipse so you didn’t have to.
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
March 14, 2025 at 8:09 PM
I went outside at 3am to see the lunar eclipse so you didn’t have to.
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
I went outside at 3am to see the lunar eclipse so you didn’t have to.
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
March 14, 2025 at 8:03 PM
I went outside at 3am to see the lunar eclipse so you didn’t have to.
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort.
Nature: 10/10
Nothing makes you want to do dishes more than NOT BEING ABLE TO DO DISHES. #mecfs #disability
February 18, 2025 at 2:04 AM
Nothing makes you want to do dishes more than NOT BEING ABLE TO DO DISHES. #mecfs #disability
“My name is all the way Ray May. I don’t do nothing halfway.”
Eddie Murphy got me good on SNL. 😂😂😂
Eddie Murphy got me good on SNL. 😂😂😂
February 17, 2025 at 4:03 AM
“My name is all the way Ray May. I don’t do nothing halfway.”
Eddie Murphy got me good on SNL. 😂😂😂
Eddie Murphy got me good on SNL. 😂😂😂
#disability friends in the US!
5 Calls is a new app that makes calling your reps very easy.
1. Gives you a choice of issues.
2. Provides scripts.
3. Uses location data to populate phone numbers.
4. Can send reminders.
I don’t often have energy for this but this makes it easy.
5 Calls is a new app that makes calling your reps very easy.
1. Gives you a choice of issues.
2. Provides scripts.
3. Uses location data to populate phone numbers.
4. Can send reminders.
I don’t often have energy for this but this makes it easy.
February 11, 2025 at 8:24 PM
#disability friends in the US!
5 Calls is a new app that makes calling your reps very easy.
1. Gives you a choice of issues.
2. Provides scripts.
3. Uses location data to populate phone numbers.
4. Can send reminders.
I don’t often have energy for this but this makes it easy.
5 Calls is a new app that makes calling your reps very easy.
1. Gives you a choice of issues.
2. Provides scripts.
3. Uses location data to populate phone numbers.
4. Can send reminders.
I don’t often have energy for this but this makes it easy.
That was the whole point of the Canadian Consensus Criteria: www.meresearch.org.uk/research/can...
February 5, 2025 at 10:52 PM
That was the whole point of the Canadian Consensus Criteria: www.meresearch.org.uk/research/can...
That’s literally why I write about it. A lot. I hate to down like a broken but I feel like I’m in a special group and responsible for this whether I like it or not. Venn diagram from my substack:
February 1, 2025 at 5:46 AM
That’s literally why I write about it. A lot. I hate to down like a broken but I feel like I’m in a special group and responsible for this whether I like it or not. Venn diagram from my substack:
“Would you want a breast cancer diagnosis and be told, "Well, I’ve never treated breast cancer, but I’ve treated people with other kinds of cancer who also had breasts, so let’s see what happens"? No, you would not.
But that’s truly the *best* case scenario for care with #MECFS.”
Link in comments!
But that’s truly the *best* case scenario for care with #MECFS.”
Link in comments!
January 31, 2025 at 10:45 PM
“Would you want a breast cancer diagnosis and be told, "Well, I’ve never treated breast cancer, but I’ve treated people with other kinds of cancer who also had breasts, so let’s see what happens"? No, you would not.
But that’s truly the *best* case scenario for care with #MECFS.”
Link in comments!
But that’s truly the *best* case scenario for care with #MECFS.”
Link in comments!
Happy Friday, friends!
I was writing an essay last night and ranting about being placed into that disability inspiration narrative.
But fellow #pwME, I took a high quality shower and my HR cooperated and I’ll be over here smug AF about how 3 months of pacing has helped a tiny bit.
I was writing an essay last night and ranting about being placed into that disability inspiration narrative.
But fellow #pwME, I took a high quality shower and my HR cooperated and I’ll be over here smug AF about how 3 months of pacing has helped a tiny bit.
![jrmilward 08/11/2024
There's a reason you don't see people with [insert chronic illness here] at the Paralympics.
Sometimes disablities really *are* disabling. No feasible accommodations. No treatments.
When it comes to "inspirational" activities, there's a HUGE difference between a healthy person losing a leg but still able to play wheelchair basketball, and someone with an incurable, full-systems' disorder that makes simply taking a shower feel like a triatholon.
Please, NEVER ask us: "So what's stopping you?"](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:3aayzuyoyyft473f4rqqloy7/bafkreialqfijusiijeb4txkgc27qpza2bbblcgcyunn3hdjsivtym5zvsq@jpeg)
January 31, 2025 at 5:23 PM
Happy Friday, friends!
I was writing an essay last night and ranting about being placed into that disability inspiration narrative.
But fellow #pwME, I took a high quality shower and my HR cooperated and I’ll be over here smug AF about how 3 months of pacing has helped a tiny bit.
I was writing an essay last night and ranting about being placed into that disability inspiration narrative.
But fellow #pwME, I took a high quality shower and my HR cooperated and I’ll be over here smug AF about how 3 months of pacing has helped a tiny bit.
Happy Thursday.
January 30, 2025 at 5:29 PM
Happy Thursday.
Yup, looks about right.
January 30, 2025 at 3:01 AM
Yup, looks about right.
Very Sunday Sunday again.
You could measure my interest in football with a microscope.
But I want this little girl’s dreams to come true. My 93 year old grandmother’s.
The purest form of faith. #gobills
You could measure my interest in football with a microscope.
But I want this little girl’s dreams to come true. My 93 year old grandmother’s.
The purest form of faith. #gobills
January 27, 2025 at 1:36 AM
Very Sunday Sunday again.
You could measure my interest in football with a microscope.
But I want this little girl’s dreams to come true. My 93 year old grandmother’s.
The purest form of faith. #gobills
You could measure my interest in football with a microscope.
But I want this little girl’s dreams to come true. My 93 year old grandmother’s.
The purest form of faith. #gobills
Just a Thursday. #chronicfatigue #mecfs
January 24, 2025 at 3:18 AM
Just a Thursday. #chronicfatigue #mecfs
