Janet Sylvester
janetsylvester.bsky.social
Janet Sylvester
@janetsylvester.bsky.social
Daughter with ME since 2012. Volunteer with #MEAction UK and #MEAction Scotland. Views are my own.
Michiel @murtoz and I were interviewed last week and here is the article.
I did an interview last week about living with ME. This article is the result.
Pleased with it overall, no glaring errors, and most of my key messages are in the article even if she didn't put some of the more 'difficult' points in there verbatim.

#mecfs #pwME

www.scotsman.com/health/me-ch...
'My daughter has ME, she went into appointments walking and came out in a wheelchair'
There are an estimated 1.3 million people in the UK with ME 🏥
www.scotsman.com
December 5, 2024 at 7:20 PM
Reposted by Janet Sylvester
It’s @joplatt.bsky.social, MP for Leigh & Atherton! Jo is a @teamlabouruk.bsky.social champion in parliament for #pwME & #pwLC + new chair of the APPG on ME.

Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
December 2, 2024 at 12:00 PM
Reposted by Janet Sylvester
Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades.

His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
December 1, 2024 at 9:00 AM