Heini M Natri
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heinimnatri.bsky.social
Heini M Natri
@heinimnatri.bsky.social
Research Assistant Professor within the Division of Bioinnovation and Genome Sciences at the Translational Genomics Research Institute, part of City of Hope. heinin.github.io
December 2, 2025 at 11:23 PM
I hope you find this interesting and helpful! Most of my co-authors are not on Bluesky, but. I'll tag those who do here. 8/8

@docautie.bsky.social
December 2, 2025 at 7:53 PM
This manuscript is a result of the unwavering commitment of many amazing scholars. Special thanks to my co-first author Sinéad O’Brien and senior author Kristen Gillespie-Lynch, and congratulations to the whole team for bringing this often very difficult project to a conclusion. 7/
December 2, 2025 at 7:53 PM
We provide recommendations for each stage of research, from grant writing to dissemination. We recognize that continuing to share our challenges and strategies to address them is critical for improving representation, capacity, and accountability, and to promote authentically participatory work. 6/
December 2, 2025 at 7:53 PM
…we identified shared differences across three broad categories: Representation (e.g., lack of meaningful power sharing), Capacity (e.g., insufficient time and knowledge), and Accountability (e.g., limited follow-through). 5/
December 2, 2025 at 7:53 PM
Despite the differences between the two initiatives (a small-scale study utilizing participatory approaches to develop a Game Design and Employment Workshop for Autistic youth, and b) a national research network seeking to drive autism research informed by Autistic “insider-researchers”)... 4/
December 2, 2025 at 7:53 PM
We created collaborative documents to facilitate discussions on difficult topics and to identify shared values, define respectful communication, interrogate power dynamics, and implement accountability processes. Our materials, including blank templates, are included as Supplementary Files. 3/
December 2, 2025 at 7:53 PM
This work was done by a neurodiverse team of scholars with diverse backgrounds and areas of expertise, with the shared goal of promoting accountability to advance authentic participatory research. We applied and developed participatory methods when writing this manuscript. 2/
December 2, 2025 at 7:53 PM
…you are a cutiepatoots.
October 16, 2025 at 1:50 AM