Being heard and understood? Getting advice and support? Meeting people like you? If you live with a bleeding disorder, what does community mean to you?

#bleedingdisorders #community #livedexperience #research #haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia

#HemeSky #BloodSky

Intergenerational impacts of the #ContaminatedBloodScandal, stakeholder roles in #patientorganisations in India, acquired haemophilia A, and #haemophilia clinical practice are the focus of the latest papers published in JHP. Find out more: https://loom.ly/mXzYdu4

#HemeSky #BloodSky #MedSky

What links banana sap, mangos and #haemophilia? Join us for the latest episode of #Haemcast, with Morris Okello and Dr Kate Khair, to find out more. Available here: https://loom.ly/p27kavc, or on your favourite #podcast platform.

#Uganda #livedexperience
#HemeSky #BloodSky #MedSky

October 10th is Hereditary #FactorX Deficiency Awareness Day. This #UltraRare #BleedingDiisorder affects ca. 1 in a million worldwide. Check out the commentary on two FXD case studies in The Journal of Haemophilia Practice: https://doi.org/10.2478/jhp-2023-0019

#HemeSky #MedSky #BloodSky

It's Global ITP Awareness Week!

Immune thrombocytopenia — #ITP — affects around 9.5 adults in 100,000 at any one time, but can occur at any age. Characterised by a low #platelet count, it can result in easy bruising and #bleeding.

#ITPaware #global4itp #HemeSky #MedSky #BloodSKy

As a dance teacher, Helen is fit and physically active – but living with the rare #bleedingdisorder Factor V deficiency means life isn’t always straightforward. Tune in to the latest episode of #Haemcast to hear her story: https://loom.ly/LfHjSqs

#HaemSky #MedSky #BloodSky

The new episode of #Haemcast is out now. After 'Reflections on a life with severe #haemophilia', @katekhair.bsky.social reflects on changes in care during Terence's lifetime. Listen on your favourite #podcast platform. https://loom.ly/YLKAJ6s
#HemeSky #BloodSky

Ready for the next #Haemcast? Coming this Thursday, @katekhair.bsky.social looks back on Terence O'Rourke's reflections on life with severe haemophilia and how #haemophilia care has and hasn't changed. https://loom.ly/A4UWu6M
#HemeSky #BloodSky #MedSky #podcast

Tuned into #Haemcast recently? Don't forget you can now access all episodes in our mini series 'Reflections on a life with severe #haemophilia', featuring octagenarian Terence O'Rourke: https://loom.ly/A4UWu6M
#bleedingdisorders #podcast #HemeSky #MedSky #BloodSky

Part 6 of our #Haemcast series in conversation with Terence O'Rourke about living with #haemophilia A comes right up to date with talk of #genetherapy, #self-advocacy and #treatment decisions. Stream, download and listen here: loom.ly/A4UWu6M

#podcast @HemeSky @BloodSky