Emma Gore-Lloyd
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
I love this photo, Sally! Thanks for everything you do.
December 10, 2025 at 4:41 PM
I love this photo, Sally! Thanks for everything you do.
Sorry Ellie, not sure what happened there! Try this one - forms.gle/qWb6fZEq5GSg...
#ThereForME Advent Calendar 2025
Who's been #ThereForME this year?
We know that support for people with ME isn't anywhere near as good as it should be - and we're working hard to change that. But this Christmas we wanted to take a mo...
forms.gle
October 13, 2025 at 5:19 PM
Sorry Ellie, not sure what happened there! Try this one - forms.gle/qWb6fZEq5GSg...
And here it finally is: www.gov.uk/government/p...
ME/CFS: the final delivery plan
The final delivery plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), focusing on 3 main areas to improve care and support for those with ME/CFS.
www.gov.uk
July 22, 2025 at 12:40 PM
And here it finally is: www.gov.uk/government/p...
We're still waiting for it go online...
July 22, 2025 at 8:34 AM
We're still waiting for it go online...
You were both excellent! Thank you 🙏
July 22, 2025 at 8:33 AM
You were both excellent! Thank you 🙏
Reposted by Emma Gore-Lloyd
If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you.
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
The new proposed welfare reforms: understanding the impact on people with Long Covid and ME/CFS
This survey is for individuals with Long Covid (LC) or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) who are receiving benefits affected by the government's proposed reforms. If the pers...
forms.gle
April 16, 2025 at 11:08 AM
If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you.
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
Reposted by Emma Gore-Lloyd
We’d love your help asking allies in your life, and the wider world, to get involved and stand with people with ME as we ask the government to #FundThePlan.
We’ve even got a new template script for the occasion 👇
We’ve even got a new template script for the occasion 👇
![Script: Dear Wes & Ashley,
My name is [...] & I’m [...]. (Say why this matters to you.) In the coming months, the government is due to publish a new delivery plan for ME, aiming to boost research and strengthen care. But so far, no additional funding has been allocated to it. Public finances are tight - but in the world of government spending we are talking about modest sums. Just £20m a year behind the plan would make an enormous difference. People with ME are calling on the government to invest in their future and reverse generations of neglect. I’m standing with them to say please, fund the plan.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreig2fltpxn3gkldyxtb34naof2t36s6tqmvsyxyjkc6qnko3qmlgri@jpeg)
February 26, 2025 at 5:45 PM
We’d love your help asking allies in your life, and the wider world, to get involved and stand with people with ME as we ask the government to #FundThePlan.
We’ve even got a new template script for the occasion 👇
We’ve even got a new template script for the occasion 👇
Thank you, Helen!
February 20, 2025 at 1:57 PM
Thank you, Helen!