Lily K
@elilykelsey.bsky.social
Doxie Mom, Proudly Autistic, Disney lover, pin collector
Vocal stim trend…are these actually vocal stims? Or just people quoting things? I mean…I guess they can be stims. Ironically, I don’t have any of the trendy ones. But my internalized echolalia won’t stop screaming “Sausage Roll! I love being a sausage dog!” 🤣🤣 gotta love special interests.
December 21, 2025 at 2:03 AM
Vocal stim trend…are these actually vocal stims? Or just people quoting things? I mean…I guess they can be stims. Ironically, I don’t have any of the trendy ones. But my internalized echolalia won’t stop screaming “Sausage Roll! I love being a sausage dog!” 🤣🤣 gotta love special interests.
Phone call struggles for autistics explained by someone that isn’t me (then add the communication disorders…yea, there are reasons why I legit have anxiety, panic, nightmares, insomnia, and dread for DAYS around phone calls).
December 14, 2025 at 10:14 PM
Phone call struggles for autistics explained by someone that isn’t me (then add the communication disorders…yea, there are reasons why I legit have anxiety, panic, nightmares, insomnia, and dread for DAYS around phone calls).
I don’t get to choose what my brain fixates on and somehow it got on “Bless the Broken Road”. This song makes little sense for me in so many ways. I’m not necessarily a romantic, if I get married & do anything nearly remotely typical it’s probably gonna be when I’m in a nursing home, also I’m
December 13, 2025 at 6:23 AM
I don’t get to choose what my brain fixates on and somehow it got on “Bless the Broken Road”. This song makes little sense for me in so many ways. I’m not necessarily a romantic, if I get married & do anything nearly remotely typical it’s probably gonna be when I’m in a nursing home, also I’m
Oh wow, I never knew. Tragedy, begets tragedy, begets tragedy. The person who set the fire they suspect was the wife of a man ☠️ in SF. It’s tragic what happened to her years after what happened to him and all of this was a situation I knew well b/c
www.santafenewmexican.com/news/local_n...
www.santafenewmexican.com/news/local_n...
Residents displaced by fatal Santa Fe fire try to recover
Santa Fe police have said they suspect 59-year-old Gloria Lucero Buschman, who died in the blaze, ignited it in her apartment.
www.santafenewmexican.com
December 8, 2025 at 3:49 AM
Oh wow, I never knew. Tragedy, begets tragedy, begets tragedy. The person who set the fire they suspect was the wife of a man ☠️ in SF. It’s tragic what happened to her years after what happened to him and all of this was a situation I knew well b/c
www.santafenewmexican.com/news/local_n...
www.santafenewmexican.com/news/local_n...
I think I’ve fixed the squeaking issue to be the least it could be at this point. Involved tightening everything a lot. The bottom pieces came so loose it was kind of freaky.
December 7, 2025 at 4:56 PM
I think I’ve fixed the squeaking issue to be the least it could be at this point. Involved tightening everything a lot. The bottom pieces came so loose it was kind of freaky.
My sensory swing stand has started making a horrendous creaking noise. Since the attachment point was metal on metal, I used white lightening bike grease, and it was like it did nothing. My swing came with straps that you would use for like a tree or something that didn’t have attachments so, I
December 7, 2025 at 5:33 AM
My sensory swing stand has started making a horrendous creaking noise. Since the attachment point was metal on metal, I used white lightening bike grease, and it was like it did nothing. My swing came with straps that you would use for like a tree or something that didn’t have attachments so, I
Oh, I was also craving spaghetti & I risked cooking again. I made gluten free spaghetti. Ultimately, I had edible food. And two meals additional. BUT it was a bit of a sh*t show. I kind of kept having moments where I was like “did I nearly risk starting a fire?” Or “yea, I escaped a burn there” so…
December 5, 2025 at 3:59 AM
Oh, I was also craving spaghetti & I risked cooking again. I made gluten free spaghetti. Ultimately, I had edible food. And two meals additional. BUT it was a bit of a sh*t show. I kind of kept having moments where I was like “did I nearly risk starting a fire?” Or “yea, I escaped a burn there” so…
Today I discovered there is a squishmallow hug mees version of Snickers from Bluey. Why is this exciting? Because Snickers is a black and tan doxie! Now to hope Paw Patrol answers back and makes a Liberty! Those particular style are really nice neck pillows! My OT brought her vibration plate over
December 5, 2025 at 3:54 AM
Today I discovered there is a squishmallow hug mees version of Snickers from Bluey. Why is this exciting? Because Snickers is a black and tan doxie! Now to hope Paw Patrol answers back and makes a Liberty! Those particular style are really nice neck pillows! My OT brought her vibration plate over
Not much of an update. Thanksgiving was good. Ate so much good food, which so glad I don’t have food aversions to Thanksgiving food now. My dessert turned out well, but definitely the pre-made crust was meh, so GF Oreos might be next in a 9in pan and then a higher quality chocolate. I think
November 29, 2025 at 5:54 PM
Not much of an update. Thanksgiving was good. Ate so much good food, which so glad I don’t have food aversions to Thanksgiving food now. My dessert turned out well, but definitely the pre-made crust was meh, so GF Oreos might be next in a 9in pan and then a higher quality chocolate. I think
Thanksgiving…
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
November 27, 2025 at 8:53 PM
Thanksgiving…
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Sleep is difficult again. Part of that was Miss Weenie shaking and poking me awake at 11pm. She was not due for pain meds for hours. I’m hoping it was the wind because I did get her to sleep on the couch again but was up at like 3am with pretty intermittent sleep. Yesterday was not a great day.
November 26, 2025 at 1:37 PM
Sleep is difficult again. Part of that was Miss Weenie shaking and poking me awake at 11pm. She was not due for pain meds for hours. I’m hoping it was the wind because I did get her to sleep on the couch again but was up at like 3am with pretty intermittent sleep. Yesterday was not a great day.
Last thoughts for the day…1) it was good while it lasted. Headaches are back. Symptoms are back. Inflammation is back. 2) I finished the laundry at least today. One task I don’t enjoy that I 95% out of the way. 3) doggo sleeping in a small pile of laundry I couldn’t get folded fast enough…
November 25, 2025 at 4:23 AM
Last thoughts for the day…1) it was good while it lasted. Headaches are back. Symptoms are back. Inflammation is back. 2) I finished the laundry at least today. One task I don’t enjoy that I 95% out of the way. 3) doggo sleeping in a small pile of laundry I couldn’t get folded fast enough…
A week without headaches was nice. It’s back… still gotta try to finish tasks.
November 24, 2025 at 7:04 PM
A week without headaches was nice. It’s back… still gotta try to finish tasks.
This this this this this!! Holy wow, they did amazing a putting together a full on about the whole “profound autism” thing and the parents who are “grieving” autism & and the ugly realities behind it.
thinkingautismguide.com/2022/11/grie...
thinkingautismguide.com/2022/11/grie...
Grievance Parents Are Autism's MAGA Movement — THINKING PERSON'S GUIDE TO AUTISM
Horrified by the misinformation peddled by MAGA truthers? You should be just as concerned about grievance-based autism parent orgs.
thinkingautismguide.com
November 24, 2025 at 3:57 PM
This this this this this!! Holy wow, they did amazing a putting together a full on about the whole “profound autism” thing and the parents who are “grieving” autism & and the ugly realities behind it.
thinkingautismguide.com/2022/11/grie...
thinkingautismguide.com/2022/11/grie...
Back pain & hip pain are returning. Day 5 of steroids I definitely noticed the potential for the negative side effects to start. It was nice to have the inflammation alleviated for a hot minute though. My OT is going to bring her vibration plate for me to try some time, which might be a way to
November 24, 2025 at 3:03 PM
Back pain & hip pain are returning. Day 5 of steroids I definitely noticed the potential for the negative side effects to start. It was nice to have the inflammation alleviated for a hot minute though. My OT is going to bring her vibration plate for me to try some time, which might be a way to
I made nachos! This is a major executive function win. Like, my brain wanted nachos, it realized I could try to make them, made a list of what was needed, was able to get the ingredients on a quick get them post laser therapy for Weenie, and then assembled a lunch, refrigerated left overs.
November 21, 2025 at 7:02 PM
I made nachos! This is a major executive function win. Like, my brain wanted nachos, it realized I could try to make them, made a list of what was needed, was able to get the ingredients on a quick get them post laser therapy for Weenie, and then assembled a lunch, refrigerated left overs.
In personal news…as I guess I choose dissociation or whatever since there’s a whole life of chronic illness that demands a lot out of me. 5 day course of steroids has actually been fine. It tends to be like this with the non-dose pack course. That tends to be less harsh for me. Actually getting
November 21, 2025 at 3:45 AM
In personal news…as I guess I choose dissociation or whatever since there’s a whole life of chronic illness that demands a lot out of me. 5 day course of steroids has actually been fine. It tends to be like this with the non-dose pack course. That tends to be less harsh for me. Actually getting
Today’s US news cycle 😬😬. Another day of something literally outrageous happening, but the needle has incrementally moved toward tolerance of this rhetoric. It happened in the past in…
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
November 21, 2025 at 3:40 AM
Today’s US news cycle 😬😬. Another day of something literally outrageous happening, but the needle has incrementally moved toward tolerance of this rhetoric. It happened in the past in…
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
Ah the joy of prednisone. It’s helping the sinus inflammation but aggravating the sleep issues. And having the hiccups for 45 mins didn’t help. Outcome of PCP appt was to do a course of steroids to knock down sinus inflammation to keep anything from turning to a bacterial sinus infection if possible
November 19, 2025 at 6:25 AM
Ah the joy of prednisone. It’s helping the sinus inflammation but aggravating the sleep issues. And having the hiccups for 45 mins didn’t help. Outcome of PCP appt was to do a course of steroids to knock down sinus inflammation to keep anything from turning to a bacterial sinus infection if possible
I’m thinking it’s probably a reality at this point that this might be playing a part in my life. I seriously wondered in 2022. I feel like I can confidently check yes on a lot of the stuff.
www.cdc.gov/me-cfs/signs...
www.cdc.gov/me-cfs/signs...
Symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
ME/CFS has 5 core symptoms. Diagnosis requires 3 main symptoms and at least 1 other symptom
www.cdc.gov
November 16, 2025 at 4:04 AM
I’m thinking it’s probably a reality at this point that this might be playing a part in my life. I seriously wondered in 2022. I feel like I can confidently check yes on a lot of the stuff.
www.cdc.gov/me-cfs/signs...
www.cdc.gov/me-cfs/signs...
On a day when you have a fever, it’s probably not wise to attempt an experiment especially after crazy medical issues, but I have adhd med generics that are part of the recall, not recalled that are “old” but not expired (I don’t think) same dose, name brand…why do I feel completely different at
November 16, 2025 at 12:04 AM
On a day when you have a fever, it’s probably not wise to attempt an experiment especially after crazy medical issues, but I have adhd med generics that are part of the recall, not recalled that are “old” but not expired (I don’t think) same dose, name brand…why do I feel completely different at
Snagged an appt with my PCP. Was going to wait til I could ideally get a Thurs/fri to get my vaccines since I had to wait 3 mos post covid, but I need a “I’m sick & my body is chronic illnessing in concerning ways” visit.
November 15, 2025 at 8:32 PM
Snagged an appt with my PCP. Was going to wait til I could ideally get a Thurs/fri to get my vaccines since I had to wait 3 mos post covid, but I need a “I’m sick & my body is chronic illnessing in concerning ways” visit.
I had a solid 2-3 hours where I was nearly 1 foot out the door to the ER this afternoon. I felt so unwell but it was just odd & off. Weakness. Shaking. I think I was experiencing dizziness in my head but I’m not 100% because I struggle to put words to what I’m feeling so I couldn’t describe it but
November 15, 2025 at 4:09 AM
I had a solid 2-3 hours where I was nearly 1 foot out the door to the ER this afternoon. I felt so unwell but it was just odd & off. Weakness. Shaking. I think I was experiencing dizziness in my head but I’m not 100% because I struggle to put words to what I’m feeling so I couldn’t describe it but
Woke up again feeling my 5th day of just blah but really 4th day of incapacitating flares. My OT actually had the same thing & is getting the same sinus pressure headaches that won’t go away. I crashed for like 3 hours & did manage GF Mac & cheese & broccoli for dinner & dried mango for later snack
November 14, 2025 at 3:59 AM
Woke up again feeling my 5th day of just blah but really 4th day of incapacitating flares. My OT actually had the same thing & is getting the same sinus pressure headaches that won’t go away. I crashed for like 3 hours & did manage GF Mac & cheese & broccoli for dinner & dried mango for later snack
This week looks like this. Rollercoaster weather pattern is not my friend. Sinus migraine has been back with a vengeance too
November 13, 2025 at 5:18 AM
This week looks like this. Rollercoaster weather pattern is not my friend. Sinus migraine has been back with a vengeance too