Edna, ME Advocate & Carer 💙
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ednamacnamara.bsky.social
Edna, ME Advocate & Carer 💙
@ednamacnamara.bsky.social
💙 M.E.Carer of son aged 32, ME for 13yrs 💙.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal

X Edna, M.E.Advocate 🇨🇮

https://www.irishexaminer.com/news/arid-40218716.html

http://www.idonate.ie/aMothersWalkforMECFSresearch
Thank you.
Won't that be a momentus day for all #ME sufferers. It will happen, just slower in Ireland!
March 15, 2025 at 10:46 AM
What a wonderful piece of work Jo, inspiring hope that we are closer to a cure than ever.

An amazing initiative, the community of patients and carers need this now more than ever, especially as another tough New year passes.

ThankYou for your advocacy and empathy for the millions missing 💙
December 31, 2024 at 10:28 AM
Janet, you and Ron are absolute legends...
I love the way ye interact and you complement each other, putting the tough science jargon into understandable language for us. Thinking of Whitney as I do my son and the #millionsmissing. 🫂💙🫂 Love from Ireland
December 7, 2024 at 4:57 PM
Thank you kindly 💙
December 2, 2024 at 7:36 PM
Can you add me to the Carer/patient Advocacy list please. I'm trying to move over too from X. And only here for ME research etc.
ThankYou for all your advocacy. 💙
December 2, 2024 at 7:37 AM
Dr Weir was the first to diagnose our son, now 10yrs into this nightmare of ME, aged 31 now. Dr Weir is the only constant Medical professional who has stood by us, and thousands of others. A very warm and Happy Christmas to you William and your family. You deserve so much 💙
December 1, 2024 at 10:17 AM