Dr Eden Robertson
@edenrobertson.bsky.social
Behavioural scientist dedicated to understanding and addressing the psychosocial needs of people impacted by a serious health condition - current inherited retinal diseases & AMD
⭐️ Postdoc, UNSW
⭐️ Senior researcher, CMRI
⭐️ Fulbright Scholar
⭐️ Postdoc, UNSW
⭐️ Senior researcher, CMRI
⭐️ Fulbright Scholar
📢 Participate in our survey to tell us what you think about the future of stem cell therapies for retinal conditions.
We want to hear from you if you:
👁️🗨️ have an inherited retinal disease;
👁️🗨️ have AMD; or
👁️🗨️ care for someone with either of these conditions.
bit.ly/stemcell2025
We want to hear from you if you:
👁️🗨️ have an inherited retinal disease;
👁️🗨️ have AMD; or
👁️🗨️ care for someone with either of these conditions.
bit.ly/stemcell2025
March 16, 2025 at 11:25 PM
📢 Participate in our survey to tell us what you think about the future of stem cell therapies for retinal conditions.
We want to hear from you if you:
👁️🗨️ have an inherited retinal disease;
👁️🗨️ have AMD; or
👁️🗨️ care for someone with either of these conditions.
bit.ly/stemcell2025
We want to hear from you if you:
👁️🗨️ have an inherited retinal disease;
👁️🗨️ have AMD; or
👁️🗨️ care for someone with either of these conditions.
bit.ly/stemcell2025
Kris Pierce from #SCN2A Australia & #ChildUnlimited, UNSW shares that #consumerengagement is especially critical for rare diseases due to the complexity, uncertainty, diagnostic challenges, limited research / tx options & lifelong impact of the disease. #RareDiseaseDay
February 28, 2025 at 3:47 AM
Kris Pierce from #SCN2A Australia & #ChildUnlimited, UNSW shares that #consumerengagement is especially critical for rare diseases due to the complexity, uncertainty, diagnostic challenges, limited research / tx options & lifelong impact of the disease. #RareDiseaseDay
@emmagenetics.bsky.social opens the #RareDiseaseDay event, highlighting some of the common challenges faced by the 300mill ppl impacted by a rare disease worldwide. From the diagnostic odyssey, limited info, to lack of holistic care - together w/ families, we must pave the future for rare diseases.
February 28, 2025 at 2:02 AM
@emmagenetics.bsky.social opens the #RareDiseaseDay event, highlighting some of the common challenges faced by the 300mill ppl impacted by a rare disease worldwide. From the diagnostic odyssey, limited info, to lack of holistic care - together w/ families, we must pave the future for rare diseases.
Looking forward to the #RareDisease Day tomorrow!
I will share some of my work in inherited retinal diseases to highlight some of the innovative rare disease research, care, advocacy and service design being conducted across the Randwick Health & Innovation Precinct. Hope to see you there!
I will share some of my work in inherited retinal diseases to highlight some of the innovative rare disease research, care, advocacy and service design being conducted across the Randwick Health & Innovation Precinct. Hope to see you there!
February 27, 2025 at 12:05 AM
Looking forward to the #RareDisease Day tomorrow!
I will share some of my work in inherited retinal diseases to highlight some of the innovative rare disease research, care, advocacy and service design being conducted across the Randwick Health & Innovation Precinct. Hope to see you there!
I will share some of my work in inherited retinal diseases to highlight some of the innovative rare disease research, care, advocacy and service design being conducted across the Randwick Health & Innovation Precinct. Hope to see you there!