Eden Dora Trust
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edendoratrust.bsky.social
Eden Dora Trust
@edendoratrust.bsky.social
Helping children & families affected by childhood Encephalitis & Acquired Brain Injury, feel less misunderstood & alone, through dedicated support, research & more.
For more info:
Www.edendoratrust.org
We’re incredibly grateful to Brain Injury Group for choosing us as a charity partner at their conference next week💙
We can't wait to see everyone😀
This support means so much to us, not only to raise vital funds, but also to spread awareness
#ABI #Encephalitis #ThankYou #CharityPartner
January 9, 2026 at 6:06 PM
Learning about childhood ABI is vital to ensure YP receive the best support, care & future - we know this 1st hand!
We’re so proud that this is just 1 of the things we are able to do as a charity, because of YOU our fantastic supporters
Thank you, we couldn’t do it without you💙

#ABI #Encephalitis
Our workshops offer clear, practical guidance on childhood-acquired brain injury, helping you support families from the very first moment of concern. Kindly funded by @edendoratrust.bsky.social, who support children + young people affected by encephalitis + acquired brain injury: buff.ly/zO9syVP
January 2, 2026 at 8:32 PM
There's still time to support us with our appeal, any donation you’re able to give will do so much to ensure children affected by #Encephalitis and #ABI have the support they need when they need it 💙
Thank you, every single penny WILL make a difference!

www.justgiving.com/campaign/edt...
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...
www.justgiving.com
December 30, 2025 at 10:43 PM
Thank you to all our supporters, families, and companies who make our work possible. Your generosity & support helps children and families affected by encephalitis and acquired brain injuries.

We couldn’t do it without you 💙

Merry Christmas from all at Eden Dora Trust 🎄
December 19, 2025 at 3:12 PM
Reposted by Eden Dora Trust
Through CPD workshops + tailored sessions, we share practical tools, real experiences + evidence-based strategies. Our Understanding Childhood Acquired Brain Injury Workshop equips professionals with insight and practical tools. We are grateful to the @edendoratrust.bsky.social for funding these.
December 14, 2025 at 10:01 AM
Reposted by Eden Dora Trust
A huge thank you to everyone who joined our recent Understanding Childhood Acquired Brain Injury workshop at Bolt Burdon and Kemp in London. These workshops are kindly funded by @edendoratrust.bsky.social, whose generosity makes it possible for professionals across the UK to access them for free!
December 15, 2025 at 3:03 PM
We had a great day recording this podcast with The Brain Injury Group, discussing all things Eden Dora Trust, how we got here & why we do what we do, thank you B.I.G!💙

Please have a listen here 👇

open.spotify.com/show/1dwrExT...

#Encephalitis #ABI #Teamwork #Collaboration
Charity Partner Spotlight - The Eden Dora Trust
open.spotify.com
December 11, 2025 at 12:00 PM
We're so proud to fund the vital 'UCABI' workshops, making it free for anyone working with a child that has an ABI to attend 💙
Huge thanks to @cbituk.bsky.social for running this incredible workshop, we know 1st hand how important this workshop and ABI training is! 🫶

#Encephalitis #ABI #Teamwork
We’re looking forward to our UCABI workshop for professionals next Tuesday in London. The in-person session is now full, but applications for our virtual January workshops are open: buff.ly/SL2Bf9U
Funded by @edendoratrust.bsky.social, supporting children affected by encephalitis + ABI.
December 8, 2025 at 3:02 PM
Festive Fundraising Challenge 🎄
Take on a xmas challenge & help us support families affected by Encephalitis & ABI

You could do a -
🎅 Santa run
🧦 Jumper challenge
🍰 Festive bake sale
or anything you'd like!

Start your fundraiser here 👉 www.justgiving.com/campaign/edt...

Thank you 🫶
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...
www.justgiving.com
December 4, 2025 at 5:49 PM
✨ Our Christmas Appeal is LIVE! ✨🎄

“When our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.”

You can help us reach more families like theirs
Please support our Christmas Appeal🎄💙

www.justgiving.com/campaign/edt...
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families living Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future, ens...
www.justgiving.com
December 1, 2025 at 4:18 PM
🎄✨ Skipping the Christmas Cards This Year? ✨🎄

If you’re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead 💙

Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. 🧠

Thank you 🎅🎄💙

#Encephalitis #ABI
November 18, 2025 at 5:13 PM
The fabulous team we work with @nables.bsky.social have a new resource:
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis

ukabif.org.uk/page/NABLESA...
NABLES Patient Passport - United Kingdom Acquired Brain Injury Forum
ukabif.org.uk
November 13, 2025 at 4:41 PM
Reposted by Eden Dora Trust
"We need to bring the best of the NHS, to the rest of the NHS"

At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!

(1/2)
November 5, 2025 at 8:01 AM
Reposted by Eden Dora Trust
Dr. Hope Kent delivered an exceptional talk at the @ukabif.bsky.social #Summit2025. She shared her ongoing research, highlighting the lack of SEN support for young people with #ABI, as they aren't listed on the school census.

#BrainInjuryAwareness #EducationMatters #Inclusivity
November 6, 2025 at 8:01 AM
Reposted by Eden Dora Trust
On #AntiBullyingWeek, it's vital to highlight the importance of creating nurturing, respectful environments, particularly in schools. If you have a student with an #AcquiredBrainInjury (ABI), understanding and empathy are crucial!

🔗 More information:
National Acquired Brain Injury In Learning And Education Syndicate help make educators aware of abi
The National ABI Education and Learning Syndicate (N-ABLES) was set up to identify ways to support all education professionals in gaining a minimum level of awareness and understanding about acquired…
ukabif.org.uk
November 12, 2025 at 12:02 PM
Reposted by Eden Dora Trust
"Teachers have the professional skills to support these children, but don’t have the knowledge... there is a lack of consistent training for #ABI"

Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.
November 13, 2025 at 1:42 PM
So many incredible, passionate people wanting to make a difference @ukabif.bsky.social summit & @n-ables.bsky.social speakers were amazing. So proud (bursting!) of our very own young expert by experience (Eden 🌟) speaking with Baroness Estelle Morris🧠
The day really was superb 💙

#ABI #Encephalitis
November 5, 2025 at 5:22 PM
Reposted by Eden Dora Trust
📧 Join our mailing list!

🔗 Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: [email protected].

Thank you for your continued support!

#BrainInjuryAwareness #EducationMatters
October 28, 2025 at 12:05 PM
🧠TOPS-UK supports young people (13–19) with an ABI to manage everyday challenges
Struggling with planning, organisation, or feeling overwhelmed?

💡 Learn simple strategies
📱Online & accessible (with coach support)
🌐tops-uk.org
📧[email protected]

#ABI #Encephalitis
October 27, 2025 at 1:20 PM
Half term is approaching, with lots of activities planned 🎃
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫶
We are here to support you via our helpline, email, or through our online resources 💙
#ABI #encephalitis #halfterm
October 24, 2025 at 9:15 AM
Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project🧠
👉 www.exeter.ac.uk/study/fundin...

Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social
www.exeter.ac.uk
October 18, 2025 at 7:19 PM
Reposted by Eden Dora Trust
Last chance to sign-up to our @twinklresources.bsky.social Teachmeet tomorrow.

The key areas of focus include...
📚 Inclusion
🧠 Fatigue Management
🌟 Peers and Participation

🔗 Sign-up here: www.eventbrite.co.uk/e/improve-in...
Improve Inclusion, Attendance and Engagement for Pupils with an ABI
Create a brain injury-aware school to boost inclusion, attendance & engagement for students with acquired brain injuries (ABI).
www.eventbrite.co.uk
October 6, 2025 at 7:01 AM
We know 1st hand just how important it is to understand a young person with an ABI & how helpful, informative & necessary the 'UCABI' workshop is🧠
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below 💙
#ABI #Encephalitis
Do you work with children or young people? Our workshops are fully funded by @edendoratrust.bsky.social, who support children and families affected by childhood encephalitis and acquired brain injury. Spaces are limited, so make sure to book your place today: buff.ly/bo0Ayp9
September 9, 2025 at 1:37 PM
Thank you to all the amazing people who chose to take part in the Great North Run for us today. You are amazing & we couldn’t do what we do with out you! Thank you 💙

#ABB #encephalitis #support #marathon #GreatNorthRun
September 7, 2025 at 6:33 PM
Please help us while you shop...👇🏼
Sign up to @easyfundraising.bsky.social & when you shop online, they’ll donate to us👏
It's free & your shopping won't cost you any extra - the retailers you shop with will donate, not you! join.easyfundraising.org.uk/theedendorat...
September 4, 2025 at 3:10 PM