Down's Syndrome Association
@dsa-uk.bsky.social
We are a national organisation, committed to improving quality of life for people who have Down’s syndrome, promoting their right to be included on a full and equal basis with others.
Parent/guardian/carer survey: Eye care for your child who has Down's syndrome. 👁️
Just a reminder to please get involved with this survey if you are able to.
Follow the link to get involved: https://app.onlinesurveys.jisc.ac.uk/s/cardiff/parent-survey
Just a reminder to please get involved with this survey if you are able to.
Follow the link to get involved: https://app.onlinesurveys.jisc.ac.uk/s/cardiff/parent-survey
November 26, 2025 at 4:30 PM
Parent/guardian/carer survey: Eye care for your child who has Down's syndrome. 👁️
Just a reminder to please get involved with this survey if you are able to.
Follow the link to get involved: https://app.onlinesurveys.jisc.ac.uk/s/cardiff/parent-survey
Just a reminder to please get involved with this survey if you are able to.
Follow the link to get involved: https://app.onlinesurveys.jisc.ac.uk/s/cardiff/parent-survey
Down Syndrome Act Draft Guidance: Consultation Webinar
Tuesday 2 December 2025 | 7 – 8.30pm | FREE
Join us next week for a free, informative webinar hosted by the DSA - open to all members and the wider public.
Sign up here to register: https://loom.ly/uFPTIrg
Tuesday 2 December 2025 | 7 – 8.30pm | FREE
Join us next week for a free, informative webinar hosted by the DSA - open to all members and the wider public.
Sign up here to register: https://loom.ly/uFPTIrg
November 26, 2025 at 1:45 PM
Down Syndrome Act Draft Guidance: Consultation Webinar
Tuesday 2 December 2025 | 7 – 8.30pm | FREE
Join us next week for a free, informative webinar hosted by the DSA - open to all members and the wider public.
Sign up here to register: https://loom.ly/uFPTIrg
Tuesday 2 December 2025 | 7 – 8.30pm | FREE
Join us next week for a free, informative webinar hosted by the DSA - open to all members and the wider public.
Sign up here to register: https://loom.ly/uFPTIrg
The Casey Commission is an independent commission chaired by Baroness Casey of Blackstock DBE CB.
The DSA encourages members and supporters who have experience of the adult social care system to also engage.
To read more, please head to our blog on this on our website: https://loom.ly/0HtBJyU
The DSA encourages members and supporters who have experience of the adult social care system to also engage.
To read more, please head to our blog on this on our website: https://loom.ly/0HtBJyU
November 25, 2025 at 5:30 PM
The Casey Commission is an independent commission chaired by Baroness Casey of Blackstock DBE CB.
The DSA encourages members and supporters who have experience of the adult social care system to also engage.
To read more, please head to our blog on this on our website: https://loom.ly/0HtBJyU
The DSA encourages members and supporters who have experience of the adult social care system to also engage.
To read more, please head to our blog on this on our website: https://loom.ly/0HtBJyU
We have some fun Christmas activities coming up! Make sure to check them out. 🎅
Both activities are on Sunday 7 December:
DSEngage Singing Hands Christmas Sing-Along 2025: 10:30 am to 11:30 am.
DSEngage Singing Hands Christmas Pop Party 2025: 2 pm to 3 pm.
Book here: https://loom.ly/inKF0Gs
Both activities are on Sunday 7 December:
DSEngage Singing Hands Christmas Sing-Along 2025: 10:30 am to 11:30 am.
DSEngage Singing Hands Christmas Pop Party 2025: 2 pm to 3 pm.
Book here: https://loom.ly/inKF0Gs
November 25, 2025 at 12:30 PM
We have some fun Christmas activities coming up! Make sure to check them out. 🎅
Both activities are on Sunday 7 December:
DSEngage Singing Hands Christmas Sing-Along 2025: 10:30 am to 11:30 am.
DSEngage Singing Hands Christmas Pop Party 2025: 2 pm to 3 pm.
Book here: https://loom.ly/inKF0Gs
Both activities are on Sunday 7 December:
DSEngage Singing Hands Christmas Sing-Along 2025: 10:30 am to 11:30 am.
DSEngage Singing Hands Christmas Pop Party 2025: 2 pm to 3 pm.
Book here: https://loom.ly/inKF0Gs
The DSA are going to be engaging with Our Voice members about the Down Syndrome Act draft statutory guidance consultation.
It is important that we listen to people who have Down's syndrome on this topic.
For more information about the consultation process please visit https://loom.ly/XurzOHM
It is important that we listen to people who have Down's syndrome on this topic.
For more information about the consultation process please visit https://loom.ly/XurzOHM
November 24, 2025 at 6:02 PM
The DSA are going to be engaging with Our Voice members about the Down Syndrome Act draft statutory guidance consultation.
It is important that we listen to people who have Down's syndrome on this topic.
For more information about the consultation process please visit https://loom.ly/XurzOHM
It is important that we listen to people who have Down's syndrome on this topic.
For more information about the consultation process please visit https://loom.ly/XurzOHM
There's only two days to go until the BILD - (The British Institute of Learning Disabilities) #GrowingOlderWithLearningDisabilities webinar on 26 November at 12.30pm.
Please make sure to book on if you haven't already, and would like to attend.
Click the link to register: bild.org.uk/DWB
Please make sure to book on if you haven't already, and would like to attend.
Click the link to register: bild.org.uk/DWB
November 24, 2025 at 1:02 PM
There's only two days to go until the BILD - (The British Institute of Learning Disabilities) #GrowingOlderWithLearningDisabilities webinar on 26 November at 12.30pm.
Please make sure to book on if you haven't already, and would like to attend.
Click the link to register: bild.org.uk/DWB
Please make sure to book on if you haven't already, and would like to attend.
Click the link to register: bild.org.uk/DWB
#DSEngage Live | Dance Class 💃🕺
Wake up and dance with DanceSyndrome via Zoom!
Next Session: Thursday 27 November 2025. Time: 9.30 – 10.15am.
The sessions will be led by a Dance Leader from DanceSyndrome.
Book over on our website: https://loom.ly/fEn2yVs
Wake up and dance with DanceSyndrome via Zoom!
Next Session: Thursday 27 November 2025. Time: 9.30 – 10.15am.
The sessions will be led by a Dance Leader from DanceSyndrome.
Book over on our website: https://loom.ly/fEn2yVs
November 23, 2025 at 9:45 AM
#DSEngage Live | Dance Class 💃🕺
Wake up and dance with DanceSyndrome via Zoom!
Next Session: Thursday 27 November 2025. Time: 9.30 – 10.15am.
The sessions will be led by a Dance Leader from DanceSyndrome.
Book over on our website: https://loom.ly/fEn2yVs
Wake up and dance with DanceSyndrome via Zoom!
Next Session: Thursday 27 November 2025. Time: 9.30 – 10.15am.
The sessions will be led by a Dance Leader from DanceSyndrome.
Book over on our website: https://loom.ly/fEn2yVs
Parent/guardian/carer survey: Eye care for your child who has Down's syndrome. 👁️
If you'd like to share your opinion/get involved in this survey, please follow the steps on the poster.
If you'd like to share your opinion/get involved in this survey, please follow the steps on the poster.
November 21, 2025 at 5:30 PM
Parent/guardian/carer survey: Eye care for your child who has Down's syndrome. 👁️
If you'd like to share your opinion/get involved in this survey, please follow the steps on the poster.
If you'd like to share your opinion/get involved in this survey, please follow the steps on the poster.
Leading a healthy lifestyle, based around physical activity, a balanced diet and looking after our mental health, will improve every area of our lives. ❤️🩹
We have a new resource for you to check out: 'Weight and People who have Down’s syndrome.' Click here to read it: https://loom.ly/x8XDTpc
We have a new resource for you to check out: 'Weight and People who have Down’s syndrome.' Click here to read it: https://loom.ly/x8XDTpc
November 21, 2025 at 1:30 PM
Leading a healthy lifestyle, based around physical activity, a balanced diet and looking after our mental health, will improve every area of our lives. ❤️🩹
We have a new resource for you to check out: 'Weight and People who have Down’s syndrome.' Click here to read it: https://loom.ly/x8XDTpc
We have a new resource for you to check out: 'Weight and People who have Down’s syndrome.' Click here to read it: https://loom.ly/x8XDTpc
Eyecare for adults and getting older - A webinar with Professor Maggie Woodhouse. 👁️
Wednesday 11 March 2026 at 12 Noon to 1.15pm. FREE.
In this webinar Maggie will discuss eyecare for adults and the changes in vision that occur with ageing.
Register here: https://loom.ly/LQJ-2YU
Wednesday 11 March 2026 at 12 Noon to 1.15pm. FREE.
In this webinar Maggie will discuss eyecare for adults and the changes in vision that occur with ageing.
Register here: https://loom.ly/LQJ-2YU
November 18, 2025 at 12:30 PM
Eyecare for adults and getting older - A webinar with Professor Maggie Woodhouse. 👁️
Wednesday 11 March 2026 at 12 Noon to 1.15pm. FREE.
In this webinar Maggie will discuss eyecare for adults and the changes in vision that occur with ageing.
Register here: https://loom.ly/LQJ-2YU
Wednesday 11 March 2026 at 12 Noon to 1.15pm. FREE.
In this webinar Maggie will discuss eyecare for adults and the changes in vision that occur with ageing.
Register here: https://loom.ly/LQJ-2YU
All of us at the DSA are so excited to announce that the brilliant Ellie Goldstein is joining our patron team and is our latest patron! 💃
We can't wait to see what she brings to the DSA and look forward to seeing what she gets up to next! 💚
Photo credit: Zuzia Zawada.
We can't wait to see what she brings to the DSA and look forward to seeing what she gets up to next! 💚
Photo credit: Zuzia Zawada.
November 17, 2025 at 4:15 PM
All of us at the DSA are so excited to announce that the brilliant Ellie Goldstein is joining our patron team and is our latest patron! 💃
We can't wait to see what she brings to the DSA and look forward to seeing what she gets up to next! 💚
Photo credit: Zuzia Zawada.
We can't wait to see what she brings to the DSA and look forward to seeing what she gets up to next! 💚
Photo credit: Zuzia Zawada.
As #AntiBullyingWeek comes to an end, this is a reminder that anti-bullying isn’t just for Anti-Bullying Week!
We will commit to use our #PowerForGood all year round. 💙
Please make sure to check out our emotional well-being resource here: https://loom.ly/C_Emm74
We will commit to use our #PowerForGood all year round. 💙
Please make sure to check out our emotional well-being resource here: https://loom.ly/C_Emm74
November 14, 2025 at 5:45 PM
As #AntiBullyingWeek comes to an end, this is a reminder that anti-bullying isn’t just for Anti-Bullying Week!
We will commit to use our #PowerForGood all year round. 💙
Please make sure to check out our emotional well-being resource here: https://loom.ly/C_Emm74
We will commit to use our #PowerForGood all year round. 💙
Please make sure to check out our emotional well-being resource here: https://loom.ly/C_Emm74
DSEngage Live | Pilates Plus 🧘
Next Session: Friday 14 November 2025.
Time: 10am.
You will participate at your own risk during these sessions. Please stop at any time if you feel unwell.
Who's joing us this Friday? 🤩
Book to attend the session here: https://loom.ly/tUXbQg4
Next Session: Friday 14 November 2025.
Time: 10am.
You will participate at your own risk during these sessions. Please stop at any time if you feel unwell.
Who's joing us this Friday? 🤩
Book to attend the session here: https://loom.ly/tUXbQg4
November 12, 2025 at 12:45 PM
DSEngage Live | Pilates Plus 🧘
Next Session: Friday 14 November 2025.
Time: 10am.
You will participate at your own risk during these sessions. Please stop at any time if you feel unwell.
Who's joing us this Friday? 🤩
Book to attend the session here: https://loom.ly/tUXbQg4
Next Session: Friday 14 November 2025.
Time: 10am.
You will participate at your own risk during these sessions. Please stop at any time if you feel unwell.
Who's joing us this Friday? 🤩
Book to attend the session here: https://loom.ly/tUXbQg4
Have you checked out our guide on 'Policy Consultations' yet?
This document is all about helping you understand how you can share your thoughts and experiences before any big changes are made to policies, laws, or services.
You can check it out here: https://loom.ly/5R8mZCM
This document is all about helping you understand how you can share your thoughts and experiences before any big changes are made to policies, laws, or services.
You can check it out here: https://loom.ly/5R8mZCM
November 11, 2025 at 1:04 PM
Have you checked out our guide on 'Policy Consultations' yet?
This document is all about helping you understand how you can share your thoughts and experiences before any big changes are made to policies, laws, or services.
You can check it out here: https://loom.ly/5R8mZCM
This document is all about helping you understand how you can share your thoughts and experiences before any big changes are made to policies, laws, or services.
You can check it out here: https://loom.ly/5R8mZCM
Today marks the start of Anti-Bullying Week 2025 - this year's theme is 'Power For Good.'
In honour of this, we'd like to bring your attention to our Easy Read resource on bullying: https://loom.ly/cuh0F2c
We will be sharing various resources on bullying this week to show our support.
In honour of this, we'd like to bring your attention to our Easy Read resource on bullying: https://loom.ly/cuh0F2c
We will be sharing various resources on bullying this week to show our support.
November 10, 2025 at 7:45 AM
Today marks the start of Anti-Bullying Week 2025 - this year's theme is 'Power For Good.'
In honour of this, we'd like to bring your attention to our Easy Read resource on bullying: https://loom.ly/cuh0F2c
We will be sharing various resources on bullying this week to show our support.
In honour of this, we'd like to bring your attention to our Easy Read resource on bullying: https://loom.ly/cuh0F2c
We will be sharing various resources on bullying this week to show our support.
DSEngage LIVE | Evening Disco 🕺
Join us for some great tunes and show us your favourite dance moves!
Switch on your disco lights, wear your favourite outfit and lets get dancing. 🪩
Next Session: Tuesday 11 November 2025. Time: 7.00 – 8.00pm.
You can sign up here: https://loom.ly/wFaWeos
Join us for some great tunes and show us your favourite dance moves!
Switch on your disco lights, wear your favourite outfit and lets get dancing. 🪩
Next Session: Tuesday 11 November 2025. Time: 7.00 – 8.00pm.
You can sign up here: https://loom.ly/wFaWeos
November 9, 2025 at 12:15 PM
DSEngage LIVE | Evening Disco 🕺
Join us for some great tunes and show us your favourite dance moves!
Switch on your disco lights, wear your favourite outfit and lets get dancing. 🪩
Next Session: Tuesday 11 November 2025. Time: 7.00 – 8.00pm.
You can sign up here: https://loom.ly/wFaWeos
Join us for some great tunes and show us your favourite dance moves!
Switch on your disco lights, wear your favourite outfit and lets get dancing. 🪩
Next Session: Tuesday 11 November 2025. Time: 7.00 – 8.00pm.
You can sign up here: https://loom.ly/wFaWeos
Safe and healthy housing is essential for everyone, but it is especially important for adults who have Down’s syndrome.
In 2020, sadly two-year-old Awaab Ishak died after prolonged exposure to mould in his family’s flat.
Awaab’s Law came into force in 2025- read more here: https://loom.ly/0v7PQH4
In 2020, sadly two-year-old Awaab Ishak died after prolonged exposure to mould in his family’s flat.
Awaab’s Law came into force in 2025- read more here: https://loom.ly/0v7PQH4
November 8, 2025 at 3:30 PM
Safe and healthy housing is essential for everyone, but it is especially important for adults who have Down’s syndrome.
In 2020, sadly two-year-old Awaab Ishak died after prolonged exposure to mould in his family’s flat.
Awaab’s Law came into force in 2025- read more here: https://loom.ly/0v7PQH4
In 2020, sadly two-year-old Awaab Ishak died after prolonged exposure to mould in his family’s flat.
Awaab’s Law came into force in 2025- read more here: https://loom.ly/0v7PQH4
All of us at the DSA would like to say a big congratulations to our My Perspective 2025 winners! 👏
We had a wonderful evening at our My Perspective Awards Evening showcasing the amazing work of our finalists.
Roll on next year! 📷
#MyPerspective #MyPerspective2025
We had a wonderful evening at our My Perspective Awards Evening showcasing the amazing work of our finalists.
Roll on next year! 📷
#MyPerspective #MyPerspective2025
November 7, 2025 at 12:15 PM
All of us at the DSA would like to say a big congratulations to our My Perspective 2025 winners! 👏
We had a wonderful evening at our My Perspective Awards Evening showcasing the amazing work of our finalists.
Roll on next year! 📷
#MyPerspective #MyPerspective2025
We had a wonderful evening at our My Perspective Awards Evening showcasing the amazing work of our finalists.
Roll on next year! 📷
#MyPerspective #MyPerspective2025
A team from UCL want to know why delays happen when people with learning disabilities (e.g. Down’s syndrome, autism with learning disability) need screening/diagnostic tests. They want to understand how to improve diagnostic pathways.
To find out more/take part, click here: https://loom.ly/_DWwsEU
To find out more/take part, click here: https://loom.ly/_DWwsEU
November 7, 2025 at 8:01 AM
A team from UCL want to know why delays happen when people with learning disabilities (e.g. Down’s syndrome, autism with learning disability) need screening/diagnostic tests. They want to understand how to improve diagnostic pathways.
To find out more/take part, click here: https://loom.ly/_DWwsEU
To find out more/take part, click here: https://loom.ly/_DWwsEU
Carol Boys OBE, Chief Executive of the Down’s Syndrome Association provides an initial response to the Down Syndrome Act draft statutory guidance consultation.
Read more: https://loom.ly/mv4dCzA
Read more: https://loom.ly/mv4dCzA
November 6, 2025 at 3:06 PM
Carol Boys OBE, Chief Executive of the Down’s Syndrome Association provides an initial response to the Down Syndrome Act draft statutory guidance consultation.
Read more: https://loom.ly/mv4dCzA
Read more: https://loom.ly/mv4dCzA
The final report for the Curriculum and Assessment Review was published today.
Read this blog post for more information, as well as to read the DSA's thoughts on this: https://loom.ly/d9ehlzQ
Read this blog post for more information, as well as to read the DSA's thoughts on this: https://loom.ly/d9ehlzQ
November 5, 2025 at 5:45 PM
The final report for the Curriculum and Assessment Review was published today.
Read this blog post for more information, as well as to read the DSA's thoughts on this: https://loom.ly/d9ehlzQ
Read this blog post for more information, as well as to read the DSA's thoughts on this: https://loom.ly/d9ehlzQ
Musculoskeletal issues are quite common in people who have Down’s syndrome. There are different reasons for this including low muscle tone, lax ligaments and hypermobile joints.
For more information on this topic, please read our new resource here: https://loom.ly/LLurwco
For more information on this topic, please read our new resource here: https://loom.ly/LLurwco
November 5, 2025 at 12:02 PM
Musculoskeletal issues are quite common in people who have Down’s syndrome. There are different reasons for this including low muscle tone, lax ligaments and hypermobile joints.
For more information on this topic, please read our new resource here: https://loom.ly/LLurwco
For more information on this topic, please read our new resource here: https://loom.ly/LLurwco
Have you got an interesting story you'd like to share with us? 🤩
Sent out twice a year to all our members in March and September, the Journal contains news, resources, information, engaging features and fabulous stories from our members.
Send in your stories here: https://loom.ly/h0Rpz_E
Sent out twice a year to all our members in March and September, the Journal contains news, resources, information, engaging features and fabulous stories from our members.
Send in your stories here: https://loom.ly/h0Rpz_E
October 29, 2025 at 8:15 AM
Have you got an interesting story you'd like to share with us? 🤩
Sent out twice a year to all our members in March and September, the Journal contains news, resources, information, engaging features and fabulous stories from our members.
Send in your stories here: https://loom.ly/h0Rpz_E
Sent out twice a year to all our members in March and September, the Journal contains news, resources, information, engaging features and fabulous stories from our members.
Send in your stories here: https://loom.ly/h0Rpz_E
DSEngage Live | Dance Class
Join people who have Down’s syndrome from all over the country to 'Wake Up and Dance' with DanceSyndrome via Zoom!
Next Session: Thursday 30 October 2025. Time: 9.30 – 10.15am.
Who's coming along? 💃🕺
For more info and to sign up, click here: https://loom.ly/fEn2yVs
Join people who have Down’s syndrome from all over the country to 'Wake Up and Dance' with DanceSyndrome via Zoom!
Next Session: Thursday 30 October 2025. Time: 9.30 – 10.15am.
Who's coming along? 💃🕺
For more info and to sign up, click here: https://loom.ly/fEn2yVs
October 28, 2025 at 7:45 AM
DSEngage Live | Dance Class
Join people who have Down’s syndrome from all over the country to 'Wake Up and Dance' with DanceSyndrome via Zoom!
Next Session: Thursday 30 October 2025. Time: 9.30 – 10.15am.
Who's coming along? 💃🕺
For more info and to sign up, click here: https://loom.ly/fEn2yVs
Join people who have Down’s syndrome from all over the country to 'Wake Up and Dance' with DanceSyndrome via Zoom!
Next Session: Thursday 30 October 2025. Time: 9.30 – 10.15am.
Who's coming along? 💃🕺
For more info and to sign up, click here: https://loom.ly/fEn2yVs
The DSA are members of the HPIG.
The latest briefing from the Children and Young People’s Health Policy Influencing Group sets out recommendations for how the implementation of the NHS 10-Year Health Plan can deliver real change for babies, children and young people: https://tinyurl.com/2p9pcr4v
The latest briefing from the Children and Young People’s Health Policy Influencing Group sets out recommendations for how the implementation of the NHS 10-Year Health Plan can deliver real change for babies, children and young people: https://tinyurl.com/2p9pcr4v
October 27, 2025 at 4:30 PM
The DSA are members of the HPIG.
The latest briefing from the Children and Young People’s Health Policy Influencing Group sets out recommendations for how the implementation of the NHS 10-Year Health Plan can deliver real change for babies, children and young people: https://tinyurl.com/2p9pcr4v
The latest briefing from the Children and Young People’s Health Policy Influencing Group sets out recommendations for how the implementation of the NHS 10-Year Health Plan can deliver real change for babies, children and young people: https://tinyurl.com/2p9pcr4v