Double Your Impact This Giving Tuesday 💙

Every dollar given will be MATCHED 1:1 up to $15k - helping us reach our $50,000 goal to fuel hope for families facing genetic FTD.

www.zeffy.com/en-US/donati...

We have an exciting announcement! 📣

Cure MAPT FTD merch is finally live!All proceeds will benefit our cause.

Whether you're a caregiver, researcher, or passionate advocate, we've got you covered. What other empowering phrases would you like to see in our store?

www.bonfire.com/store/cure-m...

Back by popular demand, we’re having another social hour this month! All families and community members are invited 🍁

Register here:
us06web.zoom.us/meeting/regi...

Our first Family Social Hour is today at 8PM! Join us to meet other #MAPTFTD families ❤️

#cureMAPTFTD #FTD

us06web.zoom.us/meeting/regi...

MAPT FTD is inherited in an autosomal dominant pattern, meaning if one parent has a MAPT gene, each child has a 50% chance of inheriting it.

Almost everyone with the gene will develop symptoms (full penetrance), usually between ages 40-60. In rare cases, onset can be later or never happen at all

FTD Genes cause different symptoms:

MAPT → Changes personality first. Loss of social skills, repetitive behaviors.

GRN → Often causes depression/anxiety first, plus movement problems. May affect speech.

C9orf72 → Often overlaps with ALS, causing apathy and memory impairment.

Anyone with dementia, cancer or any serious disease in their family should be very concerned about the proposed 40% budget cuts at NIH. Standing with our renowned scientists by signing their petition. #NIH #dementiaresearch #cancerresearch #maptftd

www.standupforscience.net/bethesda-dec...

Join us this Friday for a Friday Families meeting! All MAPT FTD families & individuals are welcome. Our esteemed speaker Dr. Nupur Ghoshal, MD PhD will be discussing the Tau protein & how it relates to FTD.

Time: 2:30 EST / 11:30 PST

RSVP here:

addcal.io/e/8dvuabbn7why

We are so excited for this year's AFTD Education conference! Come meet us in person, this Thursday and Friday. We have a table! See you all there ❤️

@theaftd.bsky.social

#curemaptftd #maptftd #ftd

This week, Cure MAPT FTD member Linde Jacobs was featured on the podcast "What's Health Got to Do with It?", sharing her experience with FTD.

Listen to the podcast here: news.wjct.org/show/whats-h...

Available now on all podcast streaming platforms!

#curemaptftd #maptftd #npr #nprpodcast #ftd

Front page on @nytimes.com on Christmas Day❤️ Fighting for all those afflicted with FTD and hoping for a world with more understanding, grace and patience towards those who seem “different”. #endftd