Ana Mingorance
@cnsdrughunter.bsky.social
🧠 🧬 Neuroscientist. Looking for new medicines for #CDKL5, #SCN1A, #SHANK3, #DHPS and other neurological #RareDiseases with #epilepsy
You were the first person I added 😉
March 1, 2025 at 3:33 PM
You were the first person I added 😉
I have that problem also when trying to reduce text to fit the word limit, the more I read it the more I add 😆
January 29, 2025 at 3:26 PM
I have that problem also when trying to reduce text to fit the word limit, the more I read it the more I add 😆
For a broader picture, check also www.msnbc.com/opinion/msnb...
Opinion | I’m a health researcher. NIH’s pause on research grants could have a devastating cost.
This is a potentially devastating event — not just for the scientific community, but for all Americans.
www.msnbc.com
January 28, 2025 at 10:40 AM
For a broader picture, check also www.msnbc.com/opinion/msnb...
Of course! good to find you here 😊 I have also tracked down some of the PMS researchers and families in this network. As soon as CureSHANK gets an account we will put together the starter park.
January 28, 2025 at 7:19 AM
Of course! good to find you here 😊 I have also tracked down some of the PMS researchers and families in this network. As soon as CureSHANK gets an account we will put together the starter park.
Thank you for sharing such beautiful cozy moment 💜
January 26, 2025 at 3:56 PM
Thank you for sharing such beautiful cozy moment 💜
Hi Mark, I'm still getting to know the rare disease crowd here in bluesky and use it irregularly, so I wouldn't know myself. One of the main diseases that I work with is CDKL5, which is very close to Rett, so we keep an eye on your field and are cheering for those gene therapies 😁
January 20, 2025 at 3:44 PM
Hi Mark, I'm still getting to know the rare disease crowd here in bluesky and use it irregularly, so I wouldn't know myself. One of the main diseases that I work with is CDKL5, which is very close to Rett, so we keep an eye on your field and are cheering for those gene therapies 😁