Chromosome 6 Foundation
@chromosome6.bsky.social
Chromosome 6 disorders awareness and fundraising for the Chromosome 6 Project
https://www.chromosome6foundation.org/English/Donate-options/
https://www.chromosome6foundation.org/English/Donate-options/
🎈🤩Thank you!☀️🎉
A huge thank you to ‘Grandpa and Grandma Jol’ who dedicated their 70th birthdays and 50th wedding anniversary to their grandson Owen, who has a Chromosome 6 disorder.
They raised a wonderful amount for the research!
Congratulations ‘family Jol’!!
#Chromosome6
#Chromosome6Project
A huge thank you to ‘Grandpa and Grandma Jol’ who dedicated their 70th birthdays and 50th wedding anniversary to their grandson Owen, who has a Chromosome 6 disorder.
They raised a wonderful amount for the research!
Congratulations ‘family Jol’!!
#Chromosome6
#Chromosome6Project
September 3, 2025 at 12:46 PM
🎈🤩Thank you!☀️🎉
A huge thank you to ‘Grandpa and Grandma Jol’ who dedicated their 70th birthdays and 50th wedding anniversary to their grandson Owen, who has a Chromosome 6 disorder.
They raised a wonderful amount for the research!
Congratulations ‘family Jol’!!
#Chromosome6
#Chromosome6Project
A huge thank you to ‘Grandpa and Grandma Jol’ who dedicated their 70th birthdays and 50th wedding anniversary to their grandson Owen, who has a Chromosome 6 disorder.
They raised a wonderful amount for the research!
Congratulations ‘family Jol’!!
#Chromosome6
#Chromosome6Project
🧬Did you know🧬
☀️Our Professor Conny van Ravenswaaij nr. 38 on the top 100 list according to the members of the VvAA. ☀️
‘Who has made the greatest contribution to Dutch healthcare?’
www.artsenauto.nl/vvaatop100/?...
☀️Our Professor Conny van Ravenswaaij nr. 38 on the top 100 list according to the members of the VvAA. ☀️
‘Who has made the greatest contribution to Dutch healthcare?’
www.artsenauto.nl/vvaatop100/?...
Uitslag VvAA-top 100 - Arts en Auto
Wie heeft de grootste betekenis (gehad) voor de Nederlandse zorg? Leden droegen in totaal 374 namen aan. Met stip op 1: Els Borst
www.artsenauto.nl
August 10, 2025 at 8:54 PM
🧬Did you know🧬
☀️Our Professor Conny van Ravenswaaij nr. 38 on the top 100 list according to the members of the VvAA. ☀️
‘Who has made the greatest contribution to Dutch healthcare?’
www.artsenauto.nl/vvaatop100/?...
☀️Our Professor Conny van Ravenswaaij nr. 38 on the top 100 list according to the members of the VvAA. ☀️
‘Who has made the greatest contribution to Dutch healthcare?’
www.artsenauto.nl/vvaatop100/?...
🧬Wist je datje🧬
Wie heeft de grootste betekenis (gehad) voor de Nederlandse zorg?
In aanloop naar het VvAA-jubileum (130.000 leden) stelden ze deze vraag. Leden droegen in totaal maar liefst 374 namen aan. Met op nr. 38 onze Professor Conny van Ravenswaaij. ☀️
www.artsenauto.nl/vvaatop100/?...
Wie heeft de grootste betekenis (gehad) voor de Nederlandse zorg?
In aanloop naar het VvAA-jubileum (130.000 leden) stelden ze deze vraag. Leden droegen in totaal maar liefst 374 namen aan. Met op nr. 38 onze Professor Conny van Ravenswaaij. ☀️
www.artsenauto.nl/vvaatop100/?...
Uitslag VvAA-top 100 - Arts en Auto
Wie heeft de grootste betekenis (gehad) voor de Nederlandse zorg? Leden droegen in totaal 374 namen aan. Met stip op 1: Els Borst
www.artsenauto.nl
August 10, 2025 at 8:41 PM
🧬Wist je datje🧬
Wie heeft de grootste betekenis (gehad) voor de Nederlandse zorg?
In aanloop naar het VvAA-jubileum (130.000 leden) stelden ze deze vraag. Leden droegen in totaal maar liefst 374 namen aan. Met op nr. 38 onze Professor Conny van Ravenswaaij. ☀️
www.artsenauto.nl/vvaatop100/?...
Wie heeft de grootste betekenis (gehad) voor de Nederlandse zorg?
In aanloop naar het VvAA-jubileum (130.000 leden) stelden ze deze vraag. Leden droegen in totaal maar liefst 374 namen aan. Met op nr. 38 onze Professor Conny van Ravenswaaij. ☀️
www.artsenauto.nl/vvaatop100/?...
‘Jack & Colleen’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 4:58 PM
‘Jack & Colleen’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
‘Jack & Josie’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 4:37 PM
‘Jack & Josie’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
‘Samantha’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 4:29 PM
‘Samantha’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
‘Anne & Laura’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 4:26 PM
‘Anne & Laura’
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
‘Julian’
Did you know that…?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
Did you know that…?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 4:24 PM
‘Julian’
Did you know that…?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
Did you know that…?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
‘Roeland’
Did you know that?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
Did you know that?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 8:28 AM
‘Roeland’
Did you know that?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
Did you know that?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
‘Filip’ Did you know that?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 6:28 AM
‘Filip’ Did you know that?
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions.
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
☀️Today, June 6, Launching ‘International Chromosome 6 Awareness Day’. 🧬
Join us spreading knowledge.
#chromosome6awarenessday
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
Join us spreading knowledge.
#chromosome6awarenessday
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 6, 2025 at 6:22 AM
☀️Today, June 6, Launching ‘International Chromosome 6 Awareness Day’. 🧬
Join us spreading knowledge.
#chromosome6awarenessday
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
Join us spreading knowledge.
#chromosome6awarenessday
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
STAY TUNED……
#chromosome6awarenessday
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
#chromosome6awarenessday
#Chromosome6
#chromosome6foundation
#chromosome6research
#Chromosome6Project
#Hope4chromosome6
June 1, 2025 at 8:02 PM
🤩🙌 We would like to thank the collectors, the proceeds counters and donors of the local collection in Utrecht (NL) for their efforts! 🙏🏻🥰
This brings the interactive website, with customized
patient-specific information,
of the 🧬 ‘Chromosome 6 Project’ 🧬one step closer!
www.chromosome6.org
This brings the interactive website, with customized
patient-specific information,
of the 🧬 ‘Chromosome 6 Project’ 🧬one step closer!
www.chromosome6.org
Chromosome 6 Project - Chromosome 6 Research Project
Parent-driven research for phenotype-genotype studies on chromosome 6 disorders. Collecting data directly from parents all over the world.
www.chromosome6.org
May 5, 2025 at 11:08 AM
🤩🙌 We would like to thank the collectors, the proceeds counters and donors of the local collection in Utrecht (NL) for their efforts! 🙏🏻🥰
This brings the interactive website, with customized
patient-specific information,
of the 🧬 ‘Chromosome 6 Project’ 🧬one step closer!
www.chromosome6.org
This brings the interactive website, with customized
patient-specific information,
of the 🧬 ‘Chromosome 6 Project’ 🧬one step closer!
www.chromosome6.org
🤩Heb je de collecte gemist van de ‘Chromosome 6 Foundation’ ouders 🧬voor het ‘Chromosome 6 Project’ om het interactieve websitesysteem dichterbij te brengen dan kan dat alsnog via de de link! 🥰🙏🏻
www.ing.nl/payreq/m/?tr...
Meer informatie:
www.chromosome6foundation.org/Nederlands/O...
www.ing.nl/payreq/m/?tr...
Meer informatie:
www.chromosome6foundation.org/Nederlands/O...
May 4, 2025 at 8:35 AM
🤩Heb je de collecte gemist van de ‘Chromosome 6 Foundation’ ouders 🧬voor het ‘Chromosome 6 Project’ om het interactieve websitesysteem dichterbij te brengen dan kan dat alsnog via de de link! 🥰🙏🏻
www.ing.nl/payreq/m/?tr...
Meer informatie:
www.chromosome6foundation.org/Nederlands/O...
www.ing.nl/payreq/m/?tr...
Meer informatie:
www.chromosome6foundation.org/Nederlands/O...
🌟A step closer to the final #Chromosome6 #Research #Project goal!🤩🧬
‘Presenting Clinical Information on Rare Chromosome 6 Disorders via a Parent-Centered Website: Parental and Professional Views’
onlinelibrary.wiley.com/doi/10.1002/...
‘Presenting Clinical Information on Rare Chromosome 6 Disorders via a Parent-Centered Website: Parental and Professional Views’
onlinelibrary.wiley.com/doi/10.1002/...
Presenting Clinical Information on Rare Chromosome 6 Disorders via a Parent‐Centered Website: Parental and Professional Views
The scarcity of clinical information surrounding rare chromosome disorders poses challenges for parents and clinicians. To bridge this gap for chromosome 6 disorders, the Chromosome 6 Project collect....
onlinelibrary.wiley.com
March 22, 2025 at 11:23 PM
🌟A step closer to the final #Chromosome6 #Research #Project goal!🤩🧬
‘Presenting Clinical Information on Rare Chromosome 6 Disorders via a Parent-Centered Website: Parental and Professional Views’
onlinelibrary.wiley.com/doi/10.1002/...
‘Presenting Clinical Information on Rare Chromosome 6 Disorders via a Parent-Centered Website: Parental and Professional Views’
onlinelibrary.wiley.com/doi/10.1002/...
#RareDiseaseDay is about awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
#chromosome6
#chromosome6
February 26, 2025 at 10:59 PM
#RareDiseaseDay is about awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
#chromosome6
#chromosome6
😍Share your love to reach the final goal of www.chromosome6.org by supporting us on Valentine’s day via:
•PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
or
•Whydonate: Donate or start a global fundraiser and share it on your social media:
whydonate.com/nl/fundraisi...
•PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
or
•Whydonate: Donate or start a global fundraiser and share it on your social media:
whydonate.com/nl/fundraisi...
February 14, 2025 at 10:50 AM
😍Share your love to reach the final goal of www.chromosome6.org by supporting us on Valentine’s day via:
•PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
or
•Whydonate: Donate or start a global fundraiser and share it on your social media:
whydonate.com/nl/fundraisi...
•PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
or
•Whydonate: Donate or start a global fundraiser and share it on your social media:
whydonate.com/nl/fundraisi...
🤩From us to you!🥰
February 14, 2025 at 10:49 AM
🤩From us to you!🥰
With your help, technology that allows parents and doctors to get tailored information about what to expect in their child will become a reality.
Thank you in advance!
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
Thank you in advance!
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
February 11, 2025 at 8:42 PM
With your help, technology that allows parents and doctors to get tailored information about what to expect in their child will become a reality.
Thank you in advance!
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
Thank you in advance!
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
Met uw hulp wordt de technologie, waarmee ouders en artsen informatie op maat kunnen krijgen over wat ze kunnen verwachten bij hun kind, realiteit.
Alvast bedankt!
whydonate.com/nl/fundraisi...
U kunt ons ook steunen via
een bankoverschrijving:
NL76INGB0102064768 t.a.v. De Chromosome 6 Foundation.
Alvast bedankt!
whydonate.com/nl/fundraisi...
U kunt ons ook steunen via
een bankoverschrijving:
NL76INGB0102064768 t.a.v. De Chromosome 6 Foundation.
February 11, 2025 at 7:35 PM
Met uw hulp wordt de technologie, waarmee ouders en artsen informatie op maat kunnen krijgen over wat ze kunnen verwachten bij hun kind, realiteit.
Alvast bedankt!
whydonate.com/nl/fundraisi...
U kunt ons ook steunen via
een bankoverschrijving:
NL76INGB0102064768 t.a.v. De Chromosome 6 Foundation.
Alvast bedankt!
whydonate.com/nl/fundraisi...
U kunt ons ook steunen via
een bankoverschrijving:
NL76INGB0102064768 t.a.v. De Chromosome 6 Foundation.
🤩Kees, whose son has a very rare Chromosome 6 disorder, made a wish via the wish tree at his work which resulted in a very nice donation to our foundation!🧬 Thank you very much 🫶 for your initiative Kees!👏
February 11, 2025 at 6:29 PM
🤩Kees, whose son has a very rare Chromosome 6 disorder, made a wish via the wish tree at his work which resulted in a very nice donation to our foundation!🧬 Thank you very much 🫶 for your initiative Kees!👏
All specific Chromosome 6 abnormalities, each with different symptoms, are all extremely rare.
February 10, 2025 at 6:16 PM
All specific Chromosome 6 abnormalities, each with different symptoms, are all extremely rare.
🌟The more people donate❤️, the sooner the gathered knowledge can be found by parents and doctors.🧬
This will help to take better care for our chromosome 6 children!WHYDONATE
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
#Chromosome6Project
#Chromosome6
This will help to take better care for our chromosome 6 children!WHYDONATE
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
#Chromosome6Project
#Chromosome6
January 12, 2025 at 9:49 PM
🌟The more people donate❤️, the sooner the gathered knowledge can be found by parents and doctors.🧬
This will help to take better care for our chromosome 6 children!WHYDONATE
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
#Chromosome6Project
#Chromosome6
This will help to take better care for our chromosome 6 children!WHYDONATE
whydonate.com/nl/fundraisi...
PayPal, Debit or Credit Card:
www.paypal.com/donate/?host...
#Chromosome6Project
#Chromosome6
🌟For you all!🌟
January 1, 2025 at 5:10 PM
🌟For you all!🌟
From us to you!🥰
December 24, 2024 at 3:31 PM
From us to you!🥰