Carol Brill
@carolbrill.bsky.social
Chair/founder Usher Syndrome Ireland
Deafblind golfer
Deafblind golfer
Reposted by Carol Brill
This is a fantastic charity, created by people with usher syndrome. It does amazing work to address policies and research as well
as raising the profile of this rare disease that causes deafblindness
as raising the profile of this rare disease that causes deafblindness
Can we ask you for your help please? Can you nominate Usher Syndrome Ireland for the AIB Community €1 Million Fund here: aib.ie/personal-for...
We'd be so grateful as your nomination could help us access much-needed funding to support our work. More info in the image 💚
#SpeirGorm #SpeirGhorm
We'd be so grateful as your nomination could help us access much-needed funding to support our work. More info in the image 💚
#SpeirGorm #SpeirGhorm
May 27, 2025 at 3:12 PM
This is a fantastic charity, created by people with usher syndrome. It does amazing work to address policies and research as well
as raising the profile of this rare disease that causes deafblindness
as raising the profile of this rare disease that causes deafblindness
Reposted by Carol Brill
Today marks 10 yrs since Carol Brill & others urged the State to recognise deafblindness as a unique disability. The call was clear & supported - yet still has not been implemented.
We’re reigniting it with #ImNotInvisible10YearsOn. Post your photo & tag @usherireland.org
#Speirgorm #UsherSyndrome
We’re reigniting it with #ImNotInvisible10YearsOn. Post your photo & tag @usherireland.org
#Speirgorm #UsherSyndrome
May 28, 2025 at 7:19 AM
Today marks 10 yrs since Carol Brill & others urged the State to recognise deafblindness as a unique disability. The call was clear & supported - yet still has not been implemented.
We’re reigniting it with #ImNotInvisible10YearsOn. Post your photo & tag @usherireland.org
#Speirgorm #UsherSyndrome
We’re reigniting it with #ImNotInvisible10YearsOn. Post your photo & tag @usherireland.org
#Speirgorm #UsherSyndrome
Reposted by Carol Brill
Will you be part of the #TeamUSHIreland & help raise funds for Usher Syndrome Ireland?
🔗 Sign up: www.vhiwomensminimarathon.ie
💙 Set up your fundraiser & click ‘Join Team’: www.idonate.ie/team/ushirel...
#UsherSyndrome #VhiWMM #RunForCharity
#Running #RunIreland #RareDisease #VolunteerCharity
🔗 Sign up: www.vhiwomensminimarathon.ie
💙 Set up your fundraiser & click ‘Join Team’: www.idonate.ie/team/ushirel...
#UsherSyndrome #VhiWMM #RunForCharity
#Running #RunIreland #RareDisease #VolunteerCharity
April 4, 2025 at 9:14 AM
Will you be part of the #TeamUSHIreland & help raise funds for Usher Syndrome Ireland?
🔗 Sign up: www.vhiwomensminimarathon.ie
💙 Set up your fundraiser & click ‘Join Team’: www.idonate.ie/team/ushirel...
#UsherSyndrome #VhiWMM #RunForCharity
#Running #RunIreland #RareDisease #VolunteerCharity
🔗 Sign up: www.vhiwomensminimarathon.ie
💙 Set up your fundraiser & click ‘Join Team’: www.idonate.ie/team/ushirel...
#UsherSyndrome #VhiWMM #RunForCharity
#Running #RunIreland #RareDisease #VolunteerCharity
Reposted by Carol Brill
#SpeirGorm #SpeirGhorm community! On this gorgeous, stunning day, why not do a little bit of good by reposting this 😎
We’re a very small, volunteer-run charity & we really need all the help to find someone willing to dedicate 3-4 hours a month as our company secretary! No other duties involved 🙏
We’re a very small, volunteer-run charity & we really need all the help to find someone willing to dedicate 3-4 hours a month as our company secretary! No other duties involved 🙏
Are you organised & detail-oriented? Would you like to dedicate just a few hours a month to a small, but worthy Irish cause? We’re urgently looking for a volunteer company secretary to join our team. More details here: www.boardmatch.ie/board-vacanc...
#SpeirGorm #IrishBlueSky #SpeirGhorm #Repost
#SpeirGorm #IrishBlueSky #SpeirGhorm #Repost
Company Secretary
Usher Syndrome Ireland is seeking a Volunteer Company Secretary to support our governance and compliance requirements. This role offers an opportunity to contribute to a dedicated, volunteer-led organ...
www.boardmatch.ie
April 2, 2025 at 12:07 PM
#SpeirGorm #SpeirGhorm community! On this gorgeous, stunning day, why not do a little bit of good by reposting this 😎
We’re a very small, volunteer-run charity & we really need all the help to find someone willing to dedicate 3-4 hours a month as our company secretary! No other duties involved 🙏
We’re a very small, volunteer-run charity & we really need all the help to find someone willing to dedicate 3-4 hours a month as our company secretary! No other duties involved 🙏
Reposted by Carol Brill
March 18, 2025 at 1:41 PM
Reposted by Carol Brill
Curious about our USH Connect Parents Support Group? You can read the highlights of key discussions from the latest meeting here: usherireland.org/life-with-us...
#UsherSyndrome #Parents #SupportingParents #Education #Supports #Careers #SpeirGorm
#UsherSyndrome #Parents #SupportingParents #Education #Supports #Careers #SpeirGorm
March 8, 2025 at 1:04 PM
Curious about our USH Connect Parents Support Group? You can read the highlights of key discussions from the latest meeting here: usherireland.org/life-with-us...
#UsherSyndrome #Parents #SupportingParents #Education #Supports #Careers #SpeirGorm
#UsherSyndrome #Parents #SupportingParents #Education #Supports #Careers #SpeirGorm
Reposted by Carol Brill
Hey #SpeirGorm - would you like to dedicate a few hours p/m to a good cause? We’re looking for a Company Secretary (voluntary role) to join our team! Email [email protected] to learn more. Experience required.
Pls share & help us get the word out
#Volunteer #UsherSyndrome #VolunteerIreland
Pls share & help us get the word out
#Volunteer #UsherSyndrome #VolunteerIreland
March 12, 2025 at 8:14 AM
Hey #SpeirGorm - would you like to dedicate a few hours p/m to a good cause? We’re looking for a Company Secretary (voluntary role) to join our team! Email [email protected] to learn more. Experience required.
Pls share & help us get the word out
#Volunteer #UsherSyndrome #VolunteerIreland
Pls share & help us get the word out
#Volunteer #UsherSyndrome #VolunteerIreland
Reposted by Carol Brill
We're almost there! Irish Summer Time kicks in just 16 days, and from then until September, the sun won’t set before 7:56pm. 🎉 A big relief for SO many of us - especially those with Usher syndrome who experience night blindness!
#Ireland #UsherSyndrome #RetinitisPigmentosa #HappyFriday #SpeirGorm
#Ireland #UsherSyndrome #RetinitisPigmentosa #HappyFriday #SpeirGorm
March 14, 2025 at 11:07 AM
We're almost there! Irish Summer Time kicks in just 16 days, and from then until September, the sun won’t set before 7:56pm. 🎉 A big relief for SO many of us - especially those with Usher syndrome who experience night blindness!
#Ireland #UsherSyndrome #RetinitisPigmentosa #HappyFriday #SpeirGorm
#Ireland #UsherSyndrome #RetinitisPigmentosa #HappyFriday #SpeirGorm
🎤 Ahem…testing…hello Bluesky…👋🏻
March 14, 2025 at 5:56 PM
🎤 Ahem…testing…hello Bluesky…👋🏻