These guys are patriots as well. Apparently.

As good a time as any to be reminded of this www.theguardian.com/politics/201...

These trials need to be monitoring for prolonged issues like ME/POTS etc. The bigger immune stimulus could be part of the reason PVS is triggered. It’s vital that this issue is understood. Possible that those at risk could be screened. We still don’t even know numbers of PVS from covid vaccine.

Autoantibodies would validate PVS as well.

Certainly hope they aren’t limiting this to “post infectious”, they’re excluding several groups if so.

That’s quite the caveat.

Agree 100%. But part of that obligation is that the fraction of a % that are harmed by their vaccination are properly supported with thorough investigation and then support for what can be life altering conditions. This side of the deal is not upheld. Ignoring the harmed helps drive hesitancy.

Many #pwME didn’t have viral trigger onset - stress, overtraining, vaccines etc. This is why IACC is a poor term - it excludes those of us that didn’t have an infection at onset.

Just pacing advice run by phycologists. (I did see cardiologist who ruled out myocarditis, but while saying via email I “probably” had POTS, would not actually diagnose it. He didn’t want to discuss trigger, but wrote covid all over my notes when I did finally have it 7 months after sx started).

Which was negative. My GP didn’t request any tests or investigation beyond standard bloods, and there was no pathway to see any specialists to confirm, rule out or even offer professional opinion on my illness. Eventually I got into local ME clinic, where there is no clinical investigation. (2/3)

I’d argue chronic reactions to both virus and vaccine were essentially ignored. When I speculated whether my new onset illness was possibly related to my vaccinations I was met with an urgent mental health assessment. It was the ZOE symptom study that requested a Nucleocapsid antibody test(1/3)

Increased chronic illness due to multiple factors including Covid pandemic. Be interested to know how much of that is labelled as mental health.

Seems to have been several important papers released recently shining a light on some of these chronic conditions. Real momentum seems to be building. Hopefully this will quickly lead to treatments and/or cures.

They also have no idea about symptom resolution. “Fatigue” can be two totally different outcomes and MHRA doesn’t follow up. Assumes patients get prompt in-depth investigation but it just doesn’t happen for chronic conditions - ask any woman. Suspected AE require a pathway to specialists.

Because he was PM in waiting. While it’s refreshing to hear such assessments, it’s not good diplomacy. Had Starmer made such proclamations I doubt he’d have had any of the small concessions from Trump on Steel and Ukraine for example.

Do you know if Swedish safety monitoring is active or passive? Example:they state “fatigue” is listed as a known side effect, I reported “fatigue“ as one of my side effects to MHRA. My “fatigue” is still affecting me 4 years later, but MHRA don’t know that because the system is passive?