CAPA
@capa-aca.bsky.social
The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.
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CAPA
@capa-aca.bsky.social
· Aug 11
L'ACA est ravie d'annoncer que nous organiserons notre premier webinaire en français cet automne ! Afin de mieux servir la communauté de l'ACA, nous demandons à nos membres de remplir ce mini-sondage pour nous aider à choisir le sujet qui VOUS intéresse le plus. buff.ly/vvL8YD8
🔬 #ResearchSpotlight!
A new patient facing rheumatoid arthritis outcomes dashboard shows promise in helping people living with RA understand their disease data more clearly and make decisions alongside their clinicians.
🔗 Read more: buff.ly/WqlOq9v
A new patient facing rheumatoid arthritis outcomes dashboard shows promise in helping people living with RA understand their disease data more clearly and make decisions alongside their clinicians.
🔗 Read more: buff.ly/WqlOq9v
February 11, 2026 at 3:01 PM
🔬 #ResearchSpotlight!
A new patient facing rheumatoid arthritis outcomes dashboard shows promise in helping people living with RA understand their disease data more clearly and make decisions alongside their clinicians.
🔗 Read more: buff.ly/WqlOq9v
A new patient facing rheumatoid arthritis outcomes dashboard shows promise in helping people living with RA understand their disease data more clearly and make decisions alongside their clinicians.
🔗 Read more: buff.ly/WqlOq9v
CLOSING FEB 16TH!
Lupus Ontario's Lupus Patient Experience Survey to better understand how lupus affects patients and their caregivers is closing soon. The survey explores quality of life, medication effectiveness, and the financial challenges many people face.
👉 Take the survey link in bio!
Lupus Ontario's Lupus Patient Experience Survey to better understand how lupus affects patients and their caregivers is closing soon. The survey explores quality of life, medication effectiveness, and the financial challenges many people face.
👉 Take the survey link in bio!
February 9, 2026 at 3:00 PM
CLOSING FEB 16TH!
Lupus Ontario's Lupus Patient Experience Survey to better understand how lupus affects patients and their caregivers is closing soon. The survey explores quality of life, medication effectiveness, and the financial challenges many people face.
👉 Take the survey link in bio!
Lupus Ontario's Lupus Patient Experience Survey to better understand how lupus affects patients and their caregivers is closing soon. The survey explores quality of life, medication effectiveness, and the financial challenges many people face.
👉 Take the survey link in bio!
✨ What We’ve Been Up To: Bringing Patient Voices to Preventive Health Care
We’ve been working to ensure the lived experiences and priorities of people living with arthritis are reflected in national preventive health care policy.
Stay tuned for more updates on how we’re amplifying patient voices!
We’ve been working to ensure the lived experiences and priorities of people living with arthritis are reflected in national preventive health care policy.
Stay tuned for more updates on how we’re amplifying patient voices!
February 6, 2026 at 3:00 PM
✨ What We’ve Been Up To: Bringing Patient Voices to Preventive Health Care
We’ve been working to ensure the lived experiences and priorities of people living with arthritis are reflected in national preventive health care policy.
Stay tuned for more updates on how we’re amplifying patient voices!
We’ve been working to ensure the lived experiences and priorities of people living with arthritis are reflected in national preventive health care policy.
Stay tuned for more updates on how we’re amplifying patient voices!
🔬 #ResearchSpotlight!
Rheumatoid arthritis flares aren’t always easy to define or measure.
The OMERACT RA Flare Tool was co-developed with people living with RA to better reflect real world flare experiences. By centring patient voices, this tool helps improve how flares are identified.
Rheumatoid arthritis flares aren’t always easy to define or measure.
The OMERACT RA Flare Tool was co-developed with people living with RA to better reflect real world flare experiences. By centring patient voices, this tool helps improve how flares are identified.
February 4, 2026 at 3:00 PM
🔬 #ResearchSpotlight!
Rheumatoid arthritis flares aren’t always easy to define or measure.
The OMERACT RA Flare Tool was co-developed with people living with RA to better reflect real world flare experiences. By centring patient voices, this tool helps improve how flares are identified.
Rheumatoid arthritis flares aren’t always easy to define or measure.
The OMERACT RA Flare Tool was co-developed with people living with RA to better reflect real world flare experiences. By centring patient voices, this tool helps improve how flares are identified.
February 2nd is Rheumatoid Arthritis Day 💙
RA is a chronic autoimmune disease that affects more than joints, it impacts energy, mental health, and daily life.
We stand with everyone living with RA and continue advocating for awareness, understanding, and better care.
RA is a chronic autoimmune disease that affects more than joints, it impacts energy, mental health, and daily life.
We stand with everyone living with RA and continue advocating for awareness, understanding, and better care.
February 2, 2026 at 3:30 PM
February 2nd is Rheumatoid Arthritis Day 💙
RA is a chronic autoimmune disease that affects more than joints, it impacts energy, mental health, and daily life.
We stand with everyone living with RA and continue advocating for awareness, understanding, and better care.
RA is a chronic autoimmune disease that affects more than joints, it impacts energy, mental health, and daily life.
We stand with everyone living with RA and continue advocating for awareness, understanding, and better care.
🎉 Coming Soon!
Join us for an upcoming webinar on navigating the healthcare system:
👉 Navigating Care: Real-Life Perspectives on the Healthcare System
🗓️ Wednesday, February 18, 2026
⏰ 7:00 PM (EDT)
➡️ buff.ly/cXm33Rq
Join us for an upcoming webinar on navigating the healthcare system:
👉 Navigating Care: Real-Life Perspectives on the Healthcare System
🗓️ Wednesday, February 18, 2026
⏰ 7:00 PM (EDT)
➡️ buff.ly/cXm33Rq
January 28, 2026 at 7:30 PM
🎉 Coming Soon!
Join us for an upcoming webinar on navigating the healthcare system:
👉 Navigating Care: Real-Life Perspectives on the Healthcare System
🗓️ Wednesday, February 18, 2026
⏰ 7:00 PM (EDT)
➡️ buff.ly/cXm33Rq
Join us for an upcoming webinar on navigating the healthcare system:
👉 Navigating Care: Real-Life Perspectives on the Healthcare System
🗓️ Wednesday, February 18, 2026
⏰ 7:00 PM (EDT)
➡️ buff.ly/cXm33Rq
PiPER is proud to share our impact in 2025.
📅 Jan 28 (12–1 PM EST): Join the Community of Practice event on lessons learned engaging people with lived experience in randomized controlled trials, with James Khan, Cathy Ammendolea, Nour Ayach, Sarah Miles & Therese Lane. 🔗 buff.ly/4uwYJRh #PiPER
📅 Jan 28 (12–1 PM EST): Join the Community of Practice event on lessons learned engaging people with lived experience in randomized controlled trials, with James Khan, Cathy Ammendolea, Nour Ayach, Sarah Miles & Therese Lane. 🔗 buff.ly/4uwYJRh #PiPER
Join our Cloud HD Video Meeting
Zoom is the leader in modern enterprise cloud communications.
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January 26, 2026 at 3:35 PM
PiPER is proud to share our impact in 2025.
📅 Jan 28 (12–1 PM EST): Join the Community of Practice event on lessons learned engaging people with lived experience in randomized controlled trials, with James Khan, Cathy Ammendolea, Nour Ayach, Sarah Miles & Therese Lane. 🔗 buff.ly/4uwYJRh #PiPER
📅 Jan 28 (12–1 PM EST): Join the Community of Practice event on lessons learned engaging people with lived experience in randomized controlled trials, with James Khan, Cathy Ammendolea, Nour Ayach, Sarah Miles & Therese Lane. 🔗 buff.ly/4uwYJRh #PiPER
🌟 Member Spotlight: Lucy Kovalova-Woods
A CAPA Patient Partner and author using her lived experience with RA and fibromyalgia to advocate for disability inclusion.
📘 Stronger Than Barriers is now available on Amazon.
A CAPA Patient Partner and author using her lived experience with RA and fibromyalgia to advocate for disability inclusion.
📘 Stronger Than Barriers is now available on Amazon.
January 23, 2026 at 7:30 PM
🌟 Member Spotlight: Lucy Kovalova-Woods
A CAPA Patient Partner and author using her lived experience with RA and fibromyalgia to advocate for disability inclusion.
📘 Stronger Than Barriers is now available on Amazon.
A CAPA Patient Partner and author using her lived experience with RA and fibromyalgia to advocate for disability inclusion.
📘 Stronger Than Barriers is now available on Amazon.
This week’s 🔬ResearchSpotlight: People are continuing TNFi treatment & using fewer corticosteroids during pregnancy—reflecting growing trust in TNFi safety.
For the #CAPA community, this shows confidence & choice for those planning a family.
Read here: bit.ly/47yIjPR
For the #CAPA community, this shows confidence & choice for those planning a family.
Read here: bit.ly/47yIjPR
January 22, 2026 at 7:01 PM
This week’s 🔬ResearchSpotlight: People are continuing TNFi treatment & using fewer corticosteroids during pregnancy—reflecting growing trust in TNFi safety.
For the #CAPA community, this shows confidence & choice for those planning a family.
Read here: bit.ly/47yIjPR
For the #CAPA community, this shows confidence & choice for those planning a family.
Read here: bit.ly/47yIjPR
🎉 C’est demain! Ne manquez pas notre premier webinaire entièrement en français :
👉 Naviguer parmi les options thérapeutiques pour l’arthrite
🗓️ 21 janvier 2026 | 18 h à 19 h (HE)
⏰ Dernière chance pour vous inscrire!
➡️ Inscrivez-vous dès maintenant — buff.ly/eWmzEZb
#arthrite #rhumatologie
👉 Naviguer parmi les options thérapeutiques pour l’arthrite
🗓️ 21 janvier 2026 | 18 h à 19 h (HE)
⏰ Dernière chance pour vous inscrire!
➡️ Inscrivez-vous dès maintenant — buff.ly/eWmzEZb
#arthrite #rhumatologie
January 20, 2026 at 5:03 PM
🎉 C’est demain! Ne manquez pas notre premier webinaire entièrement en français :
👉 Naviguer parmi les options thérapeutiques pour l’arthrite
🗓️ 21 janvier 2026 | 18 h à 19 h (HE)
⏰ Dernière chance pour vous inscrire!
➡️ Inscrivez-vous dès maintenant — buff.ly/eWmzEZb
#arthrite #rhumatologie
👉 Naviguer parmi les options thérapeutiques pour l’arthrite
🗓️ 21 janvier 2026 | 18 h à 19 h (HE)
⏰ Dernière chance pour vous inscrire!
➡️ Inscrivez-vous dès maintenant — buff.ly/eWmzEZb
#arthrite #rhumatologie
🌟 MEMBER SPOTLIGHT: Laurie Proulx is an arthritis advocate and CAPA’s Managing Director, check out the full story as she shares her experience with Juvenile RA and pregnancy in a powerful new video from the Healthy Pregnancy Hub.
👉
👉
Taking Care of Myself Was Part of Becoming a Mom
CAPA Managing Director Laurie Proulx shares her journey to motherhood while living with juvenile rheumatoid arthritis and hypertension. In this video Laurie talks about self-care, resilience, and…
buff.ly
January 16, 2026 at 7:30 PM
🌟 MEMBER SPOTLIGHT: Laurie Proulx is an arthritis advocate and CAPA’s Managing Director, check out the full story as she shares her experience with Juvenile RA and pregnancy in a powerful new video from the Healthy Pregnancy Hub.
👉
👉
C’est dans une semaine! Rejoignez-nous pour notre premier webinaire entièrement en français! 🎉 Le sujet — naviguer parmi les options thérapeutiques pour l’arthrite — a été choisi par vous, notre communauté!
📅 21 janvier 2026 | 18 h à 19 h (HE)
🎥 L’enregistrement disponible ici: buff.ly/eWmzEZb
📅 21 janvier 2026 | 18 h à 19 h (HE)
🎥 L’enregistrement disponible ici: buff.ly/eWmzEZb
January 14, 2026 at 5:03 PM
C’est dans une semaine! Rejoignez-nous pour notre premier webinaire entièrement en français! 🎉 Le sujet — naviguer parmi les options thérapeutiques pour l’arthrite — a été choisi par vous, notre communauté!
📅 21 janvier 2026 | 18 h à 19 h (HE)
🎥 L’enregistrement disponible ici: buff.ly/eWmzEZb
📅 21 janvier 2026 | 18 h à 19 h (HE)
🎥 L’enregistrement disponible ici: buff.ly/eWmzEZb
✨ What We’ve Been Up To: Speaking Up for Patients
We’ve been busy sharing patient perspectives to strengthen access to medications and ensure patient voices are heard in policy decisions, guiding drug evaluation and access decisions across Canada.
Stay tuned for more updates!
We’ve been busy sharing patient perspectives to strengthen access to medications and ensure patient voices are heard in policy decisions, guiding drug evaluation and access decisions across Canada.
Stay tuned for more updates!
January 12, 2026 at 7:30 PM
✨ What We’ve Been Up To: Speaking Up for Patients
We’ve been busy sharing patient perspectives to strengthen access to medications and ensure patient voices are heard in policy decisions, guiding drug evaluation and access decisions across Canada.
Stay tuned for more updates!
We’ve been busy sharing patient perspectives to strengthen access to medications and ensure patient voices are heard in policy decisions, guiding drug evaluation and access decisions across Canada.
Stay tuned for more updates!
“Hearing someone else’s story helped me see my diagnosis in a new way.”
If you missed our lived experience webinar, catch up with the full session now available online!
✨ Watch the webinar at buff.ly/fBsthMC
If you missed our lived experience webinar, catch up with the full session now available online!
✨ Watch the webinar at buff.ly/fBsthMC
January 9, 2026 at 6:30 PM
“Hearing someone else’s story helped me see my diagnosis in a new way.”
If you missed our lived experience webinar, catch up with the full session now available online!
✨ Watch the webinar at buff.ly/fBsthMC
If you missed our lived experience webinar, catch up with the full session now available online!
✨ Watch the webinar at buff.ly/fBsthMC
Rejoignez-nous pour notre premier webinaire entièrement en français! Le sujet du webinaire « naviguer parmi les options thérapeutiques pour l'arthrite » était déterminer par un sondage de notre communauté – alors vous!
🎥 Enregistrement disponible ici: buff.ly/eWmzEZb
🎥 Enregistrement disponible ici: buff.ly/eWmzEZb
January 7, 2026 at 8:15 PM
Rejoignez-nous pour notre premier webinaire entièrement en français! Le sujet du webinaire « naviguer parmi les options thérapeutiques pour l'arthrite » était déterminer par un sondage de notre communauté – alors vous!
🎥 Enregistrement disponible ici: buff.ly/eWmzEZb
🎥 Enregistrement disponible ici: buff.ly/eWmzEZb
✨ What We’ve Been Up To: Patient Partnership Edition
We hosted The Patient Room, a lunchtime webinar with Linda Wilhelm and Therese Lane to support patient partners and advisors working in research and policy.
If you missed it, visit this link for more: buff.ly/wLMFUr5
We hosted The Patient Room, a lunchtime webinar with Linda Wilhelm and Therese Lane to support patient partners and advisors working in research and policy.
If you missed it, visit this link for more: buff.ly/wLMFUr5
January 5, 2026 at 7:15 PM
✨ What We’ve Been Up To: Patient Partnership Edition
We hosted The Patient Room, a lunchtime webinar with Linda Wilhelm and Therese Lane to support patient partners and advisors working in research and policy.
If you missed it, visit this link for more: buff.ly/wLMFUr5
We hosted The Patient Room, a lunchtime webinar with Linda Wilhelm and Therese Lane to support patient partners and advisors working in research and policy.
If you missed it, visit this link for more: buff.ly/wLMFUr5
✨ New year, same you — and that’s enough.
If you’re reflecting on what matters most and what you want to prioritize, we’re right there with you. This year, the spotlight is on you. 💛
Follow us as we navigate this year together!
If you’re reflecting on what matters most and what you want to prioritize, we’re right there with you. This year, the spotlight is on you. 💛
Follow us as we navigate this year together!
January 1, 2026 at 5:30 PM
✨ New year, same you — and that’s enough.
If you’re reflecting on what matters most and what you want to prioritize, we’re right there with you. This year, the spotlight is on you. 💛
Follow us as we navigate this year together!
If you’re reflecting on what matters most and what you want to prioritize, we’re right there with you. This year, the spotlight is on you. 💛
Follow us as we navigate this year together!
🎄 It can be difficult to navigate pain and fatigue during the holidays.
If you’re looking for ways to protect your energy this season, our Five P’s (Priorities, Pacing, Planning, Posture, Problem-Solving) is one approach that may help!
🔗 More on this: buff.ly/iE5f1h5
If you’re looking for ways to protect your energy this season, our Five P’s (Priorities, Pacing, Planning, Posture, Problem-Solving) is one approach that may help!
🔗 More on this: buff.ly/iE5f1h5
December 30, 2025 at 6:45 PM
🎄 It can be difficult to navigate pain and fatigue during the holidays.
If you’re looking for ways to protect your energy this season, our Five P’s (Priorities, Pacing, Planning, Posture, Problem-Solving) is one approach that may help!
🔗 More on this: buff.ly/iE5f1h5
If you’re looking for ways to protect your energy this season, our Five P’s (Priorities, Pacing, Planning, Posture, Problem-Solving) is one approach that may help!
🔗 More on this: buff.ly/iE5f1h5
🎄 Pain, fatigue, and the holidays don’t always mix — but movement can still be gentle and flexible.
Try reflecting on today’s energy level: Low energy → gentle stretching → short walk → functional movement.
Decide on what movement works for you.
More info on our website!
Try reflecting on today’s energy level: Low energy → gentle stretching → short walk → functional movement.
Decide on what movement works for you.
More info on our website!
December 25, 2025 at 9:45 PM
🎄 Pain, fatigue, and the holidays don’t always mix — but movement can still be gentle and flexible.
Try reflecting on today’s energy level: Low energy → gentle stretching → short walk → functional movement.
Decide on what movement works for you.
More info on our website!
Try reflecting on today’s energy level: Low energy → gentle stretching → short walk → functional movement.
Decide on what movement works for you.
More info on our website!
💬 Rejoignez-nous pour notre tout premier webinaire entièrement en français: Naviguer parmi les options thérapeutiques pour l'arthrite.
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
December 23, 2025 at 4:38 PM
💬 Rejoignez-nous pour notre tout premier webinaire entièrement en français: Naviguer parmi les options thérapeutiques pour l'arthrite.
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
Message des fêtes de l’ACA!
Merci à notre communauté et à nos partenaires pour leur engagement en faveur de soins équitables et centrés sur les patients atteints d’arthrite. Joyeuses fêtes. Découvrez notre Rapport sur les réalisations de 2025, présenté par notre présidente: buff.ly/shD6f8J
Merci à notre communauté et à nos partenaires pour leur engagement en faveur de soins équitables et centrés sur les patients atteints d’arthrite. Joyeuses fêtes. Découvrez notre Rapport sur les réalisations de 2025, présenté par notre présidente: buff.ly/shD6f8J
December 23, 2025 at 3:30 PM
Message des fêtes de l’ACA!
Merci à notre communauté et à nos partenaires pour leur engagement en faveur de soins équitables et centrés sur les patients atteints d’arthrite. Joyeuses fêtes. Découvrez notre Rapport sur les réalisations de 2025, présenté par notre présidente: buff.ly/shD6f8J
Merci à notre communauté et à nos partenaires pour leur engagement en faveur de soins équitables et centrés sur les patients atteints d’arthrite. Joyeuses fêtes. Découvrez notre Rapport sur les réalisations de 2025, présenté par notre présidente: buff.ly/shD6f8J
CAPA Holiday Message
We are grateful to our community and partners for advancing patient-centred, equitable arthritis care. Wishing you a joyful holiday season.
Watch our 2025 Accomplishments Report, presented by our President, Linda Wilhelm. buff.ly/shD6f8J
We are grateful to our community and partners for advancing patient-centred, equitable arthritis care. Wishing you a joyful holiday season.
Watch our 2025 Accomplishments Report, presented by our President, Linda Wilhelm. buff.ly/shD6f8J
December 23, 2025 at 3:15 PM
CAPA Holiday Message
We are grateful to our community and partners for advancing patient-centred, equitable arthritis care. Wishing you a joyful holiday season.
Watch our 2025 Accomplishments Report, presented by our President, Linda Wilhelm. buff.ly/shD6f8J
We are grateful to our community and partners for advancing patient-centred, equitable arthritis care. Wishing you a joyful holiday season.
Watch our 2025 Accomplishments Report, presented by our President, Linda Wilhelm. buff.ly/shD6f8J
💬 Rejoignez-nous pour notre tout premier webinaire entièrement en français: Naviguer parmi les options thérapeutiques pour l'arthrite.
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
December 22, 2025 at 7:01 PM
💬 Rejoignez-nous pour notre tout premier webinaire entièrement en français: Naviguer parmi les options thérapeutiques pour l'arthrite.
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
🌟 Team Spotlight!
The Steering Committee is leading our patient-driven project to build evidence on assistive devices, life hacks, and independent living with arthritis.
🔎 Want to learn more or get involved?
Contact: [email protected]
More updates coming in 2026!
The Steering Committee is leading our patient-driven project to build evidence on assistive devices, life hacks, and independent living with arthritis.
🔎 Want to learn more or get involved?
Contact: [email protected]
More updates coming in 2026!
December 19, 2025 at 8:30 PM
🌟 Team Spotlight!
The Steering Committee is leading our patient-driven project to build evidence on assistive devices, life hacks, and independent living with arthritis.
🔎 Want to learn more or get involved?
Contact: [email protected]
More updates coming in 2026!
The Steering Committee is leading our patient-driven project to build evidence on assistive devices, life hacks, and independent living with arthritis.
🔎 Want to learn more or get involved?
Contact: [email protected]
More updates coming in 2026!
⏰ 1 month left to apply!
Take a Pain Check’s 2025/26 Young Scholars Program offers 2 scholarships of $2,500 for Canadian students with rheumatic diseases.
Deadline: Jan 19, 2026
STEM & non-STEM tracks available.
Eligibility + details ➡️ buff.ly/qcoRRoJ
Take a Pain Check’s 2025/26 Young Scholars Program offers 2 scholarships of $2,500 for Canadian students with rheumatic diseases.
Deadline: Jan 19, 2026
STEM & non-STEM tracks available.
Eligibility + details ➡️ buff.ly/qcoRRoJ
December 18, 2025 at 8:45 PM
⏰ 1 month left to apply!
Take a Pain Check’s 2025/26 Young Scholars Program offers 2 scholarships of $2,500 for Canadian students with rheumatic diseases.
Deadline: Jan 19, 2026
STEM & non-STEM tracks available.
Eligibility + details ➡️ buff.ly/qcoRRoJ
Take a Pain Check’s 2025/26 Young Scholars Program offers 2 scholarships of $2,500 for Canadian students with rheumatic diseases.
Deadline: Jan 19, 2026
STEM & non-STEM tracks available.
Eligibility + details ➡️ buff.ly/qcoRRoJ