Carole Bruce
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cabruce.bsky.social
Carole Bruce
@cabruce.bsky.social
Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Wise words in these turbulent times. Wise words for any time.
Rainer Maria Rilka. Austrian 1875-1926.
November 10, 2025 at 10:28 AM
💔
November 6, 2025 at 2:01 PM
This is the loveliest book. Cloth bound with words and drawings that are so healing. An antidote to so much of the horror of the world. 💛
@robgmacfarlane.bsky.social
October 25, 2025 at 9:20 AM
October 17, 2025 at 12:57 PM
#ME Installation in front of the Ministry of Research, Berlin.
Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives.
Also a memorial for those that have died from this appallingly neglected illness.
October 16, 2025 at 10:49 AM
💔
September 16, 2025 at 12:56 PM
@simonforstroud.bsky.social I and a lot of fellow sufferers from severe #ME bedbound etc, would be so grateful if you could find the time to attend this APPGME and add your first hand knowledge and expertise to this urgent situation.
September 3, 2025 at 7:41 AM
Printed tee shirts, totes etc all profits to Medical Aid for Palestinians, The Hands Up Project & 4 Gazan writers.
Poems by @ZaffarKunial & others
rwag.teemill.com
August 29, 2025 at 11:59 AM
If you’re a newly qualified #GP take some time to study everything you can about #ME (ME/CFS) including new research from @DecodeMEstudy There are very few ME aware Drs in the UK and no consultants at all. It’s a yawning gap that needs filling for over 400,000 patients plus many #LongCovid patients
August 12, 2025 at 8:59 AM
Alice Oswald, pacifist, mother, poet was arrested today for supporting Palestine Action.
Such courage, as our politicians hide indoors under their meaningless soundbites.
August 10, 2025 at 9:06 AM
This is a terrorist?

What a shameful day.

A few hundred MPs voted that this would be a good idea.

It wasn’t in the government’s manifesto that they would blindly support Israel whatever they do regardless of human rights or common humanity.

This is the end of Labour.
August 10, 2025 at 6:55 AM
This has been my lived reality for 32 years in this one room. Severe #ME. No treatment because there has been no serious research funding. The psych/behavioural lobby make sure of this despite ample proof of physiological damage. How many more generations will live in dark rooms alone and ignored?
August 8, 2025 at 6:05 AM
From Sarah Boothby, Maeve’s mother “please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.”
@swiftsandswallows.bsky.social has been arrested.
#ME
July 31, 2025 at 9:55 AM
More from @Bridget_OShea, who died last week, on Substack in 2023. I wish, so much, that those who hamper real research and education about #ME would acknowledge that they are responsible for an ever growing list of deaths from the illness.
July 21, 2025 at 6:27 AM
Being an #ME patient of all levels of severity is like screaming under water until we drown and still we are not recognised. There are millions of us screaming at huge detriment to our slivers of health. No response…ever.
July 20, 2025 at 9:52 AM
This arrived today. Poems by Palestinians.
A publishing initiative by Alice Oswald, Robert Macfarlane, Zaffar Kunial and Max Porter. (My favourite poets and writers)
A poem by 17 year old Saleh in Gaza.
July 16, 2025 at 11:00 AM
June 22, 2025 at 8:16 AM
Want!
June 19, 2025 at 11:08 AM
Meanwhile…..xx
June 14, 2025 at 6:49 AM
It needs to be repeated. (#Gaza)
The poem is by a 17 year old Palestinian poet.

Both the poem and ‘Repeating Ourselves from can be purchased from this link, all proceeds going directly to the poet.

theohersey.com/store/p/repe...
June 12, 2025 at 5:46 AM
At 1.0 am the IDF surrounded the Madleen with boats, drones and sprayed them with chemicals. The 12 people aboard were instructed to throw phones into the water and are now off the Madleen and with the IDF. They are all apparently safe. An illegal act carried out by Israel in international waters.
June 9, 2025 at 5:34 AM
June 8, 2025 at 12:23 PM
Details in comments:
#Madleen #FreedomFlotilla
June 8, 2025 at 12:23 PM
The communications blackout has officially begun, the #Madleen will probably have all channels blocked very soon. So keep sharing, keep caring xx #FreedomFlotilla
June 8, 2025 at 10:53 AM
The Years…….the years.
#ME #MEcfs #MillionsMissing #FundThePlan
June 1, 2025 at 4:55 PM