Billy Hanlon
@bhanlon15.bsky.social
ME/CFS | Long COVID | IACC
UT Health SA's Center for Chronic Infectious Diseases website
'Our Center brings together a dedicated core team, an engaged advisory board, and accomplished faculty who share a commitment to advancing infectious disease research...'
lsom.uthscsa.edu/infectious-d...
'Our Center brings together a dedicated core team, an engaged advisory board, and accomplished faculty who share a commitment to advancing infectious disease research...'
lsom.uthscsa.edu/infectious-d...
Center for Chronic Infectious Diseases - Infectious Diseases
lsom.uthscsa.edu
December 1, 2025 at 8:58 PM
UT Health SA's Center for Chronic Infectious Diseases website
'Our Center brings together a dedicated core team, an engaged advisory board, and accomplished faculty who share a commitment to advancing infectious disease research...'
lsom.uthscsa.edu/infectious-d...
'Our Center brings together a dedicated core team, an engaged advisory board, and accomplished faculty who share a commitment to advancing infectious disease research...'
lsom.uthscsa.edu/infectious-d...
Reposted by Billy Hanlon
From what I’ve put together online it seems like a 2 day CPET can give data which shows PEM outside of symptom tracking.
I’m worried about not lasting very long either considering I have trouble standing for meaningful amounts of time.
I’m worried about not lasting very long either considering I have trouble standing for meaningful amounts of time.
December 1, 2025 at 12:52 AM
From what I’ve put together online it seems like a 2 day CPET can give data which shows PEM outside of symptom tracking.
I’m worried about not lasting very long either considering I have trouble standing for meaningful amounts of time.
I’m worried about not lasting very long either considering I have trouble standing for meaningful amounts of time.
Reposted by Billy Hanlon
You misunderstand me: I've been saying I have COVID-induced ME/CFS for years.
I've just never heard it framed as "ME/CFS is the most severe form of Long COVID". Which I knew it was. Just never worded it as such until now.
I've just never heard it framed as "ME/CFS is the most severe form of Long COVID". Which I knew it was. Just never worded it as such until now.
Day 1072—Why does ME/CFS score so low in quality of life? Because it stunts one's ability to perform daily activities. You can't function. You can't attend functions. Try as you might to carefully pace, PEM crashes are inevitable—and severe. So you remain. Alive but not living; barely even here.
December 1, 2025 at 2:46 AM
You misunderstand me: I've been saying I have COVID-induced ME/CFS for years.
I've just never heard it framed as "ME/CFS is the most severe form of Long COVID". Which I knew it was. Just never worded it as such until now.
I've just never heard it framed as "ME/CFS is the most severe form of Long COVID". Which I knew it was. Just never worded it as such until now.
Reposted by Billy Hanlon
Yeah, Ezra. Thank you for sharing that. Resonates with me, too. For me, the hardest thing is waking in the night. I'm always full of adrenaline from dysautonomia heart-racing then. Or the doom feeling. Would be so nice to have someone there to say "Are you okay? Do you need anything?"
November 28, 2025 at 8:28 PM
Yeah, Ezra. Thank you for sharing that. Resonates with me, too. For me, the hardest thing is waking in the night. I'm always full of adrenaline from dysautonomia heart-racing then. Or the doom feeling. Would be so nice to have someone there to say "Are you okay? Do you need anything?"