Valentine’s-chest pain, severe flu symptms & exhaustion.
Grueling day in #MyalgicEncephalomyelitis 23 yr journey.
Reason? Few extra steps 3.5 days ago.
Managing PENE(post exertional Neuro immune exacerbation) when it’s delayed +24hrs is impossible for accurate pacing.
HRV or HR aren’t accurate.

Horizontal day.
Watching threads app shred to pieces.
Will we ever have a space that allows free speech, community wout censorship & with good tools to moderate trolls?

Loved the shadows playing about on our little porch flautist.

Always trying to find my reset.
My catapult out of horizontal world.
It would be poetic if green glasses released me back into my native habitat of hiking, kayaking & my feet honoring our green wild spaces that I desperately yearn for.

#MyalgicEncephalomyelitis per #MEICC w #POTS, #MCAS, #Lyme,

I was always the person who was low maintenance.
Being fragile is sadly accurate & humbling.

Deconstructing my internal ableism.

#ToxicPositivity & inaccurate medical advice to continue to exercise, landed me in a severe condition.

As if inflammation wasn’t rough enough bouncing around my body. My brain is particularly not fond of it. Fall slide is upon me.