Great to meet Minister for Health, Jennifer Carroll MacNeill, yesterday. We talked about the value of embedding research in the health service & the key role of health research charities. Looking forward to staying in touch.
@hrci.bsky.social
@brianmartinlynch.bsky.social
@roinnslainte.bsky.social

The lovely people in the @rarediseasectn.bsky.social have done a fantastic job of bringing a diverse range of perspectives together for the #RareResearch25 conference. Researchers, clinicians, industry reps, regulators and many patients and advocates in the room.

Good to see a strong focus both on patients and clinical trials at the #IPHAconference2025.
#HealthResearchMatters

Prof Des Tobin, @ucddublin.bsky.social, asks, if we use AI genomic health prediction to give information about people’s future health, ‘will they be able to bulldoze through life like the rest of us?’
@ria.ie & @acmedsci.bsky.social policy workshop on #genomics & #AI.
#HealthResearchMatters

At a policy workshop on #genomics & #AI, hosted by @ria.ie & @acmedsci.bsky.social. Generating lots of discussion about the potential for medicine, risk of exacerbating health inequalities, how to approach patient consent etc. In the words of a speaker, ‘it’s complicated’.
#HealthResearchMatters

Some helpful guides from my org:
👉Researchers & charities partnering: hrci.ie/hrci-ppi-ign...
AND hrci.ie/fair-market-...
👉Patient registries: hrci.ie/unlocking-th...
👉Research impact: hrci.ie/more-than-pu...
👉PPI toolkit: hrci.ie/making-a-sta...
👉Evidence-based advocacy: hrci.ie/evidence-for...

Proud to launch the report from the 10th anniversary event of the Irish Health Research Forum, including a powerful consensus statement from the Forum Steering Group, calling on the Government to act on high-level priorities to improve health research.

Full report 👉 hrci.ie/empower-inno...