@ehlersdanlos.bsky.social
@longcovidsupport.bsky.social
@longcovidkids.bsky.social
PoTS UK
Mast Cell Action

3/3

The OIA also launched its first resource (a brief guide for parliamentarians) which is available on the OIA's website, along with a list of attendees 👇

www.overlappingillnessalliance.org.uk/parliamentar...

#OverlappingIllness #OIA #MECFS #MCAS #PoTS #PoTSUK#EhlersDanlos #EDS #LongCovid

2/3

Thank you to everyone who contacted their MP 🧡

Almost 80% of all MPs received constituent requests to attend - your voices truly made a difference

Attendees recognised how essential this joined-up, collaborative approach is for driving change & strengthening our collective voice 🗣️

#pwME

⬇️

2/3

Thank you to everyone who contacted their MP 🧡

Almost 80% of all MPs received constituent requests to attend - your voices truly made a difference

Attendees recognised how essential this joined-up, collaborative approach is for driving change & strengthening our collective voice 🗣️

#pwME

⬇️

Donate during this year’s Big Give Christmas Challenge to have your donation DOUBLED, and help us continue to improve lives and accelerate understanding for people of all ages affected by ME.

#ChristmasChallenge #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis

🩺 Provide 128 bursaries to people with ME so they can access our ME-informed Doctors, Physiotherapists and Counsellors

👥 Reduce the isolation experienced by young people with ME through access to our Young People’s Community and Peer Support services.

🔬 Drive breakthrough research into ME, such as the DecodeME study and our research fellowship

🧡 Continue to be a ‘lifeline’ for people with ME of all ages, through our online information and resources, which have been accessed 3,500 times by the ME community in the past year.

2/2

The drop-in was well-attended and we truly appreciate the MPs who attended and showed their support for people living with ME/CFS, PoTS, EDS, MCAS and long Covid.

A more detailed update will be shared by OIA members later this week!

#MyalgicE

Read more about our Big Give Christmas Challenge on our website 👇
www.actionforme.org.uk/big-give-2025/

This has been made possible thanks to the generosity of Reed Foundation and other supporters of Action for ME 🙏

By donating during the Big Give Christmas Challenge campaign, you will be helping us to improve lives and accelerate understanding for people of all ages affected by ME.

3/3

It will also include recommendations that outline the steps that must be taken to improve the care and support available.

The report will be shared with all MPs and publicly, whilst also being used by the APPG to engage with the Government and create the change that is so urgently needed.

2/3

As a reminder, the APPG will be discussing the evidence pack and live evidence provided by people with lived experience of severe ME at a previous meeting.

Members will then work to produce a formal report to highlight the immediate harms facing people with severe ME.

#MECFS #MyalgicE

⬇️

Thank you to @tessamunt.bsky.social for her continued commitment to the ME community, and to all the MPs who attended. It was great to hear MPs referencing points made in our briefing.
👉 Read the AI summary here: www.actionforme.org.uk/ai-summary-o...