The Association For Frontotemporal Degeneration
@theaftd.bsky.social
AFTD envisions a world with compassionate care, effective support, and a future free of Frontotemporal Degeneration (FTD). #EndFTD
https://www.theaftd.org/
https://www.theaftd.org/
Sharing an FTD diagnosis with family can feel overwhelming, especially during the holidays.
This week’s Help & Hope article offers guidance, practical steps, and resources to support meaningful conversations with loved ones, including children and teens.
📌 Learn more: https://bit.ly/48DD8i2
This week’s Help & Hope article offers guidance, practical steps, and resources to support meaningful conversations with loved ones, including children and teens.
📌 Learn more: https://bit.ly/48DD8i2
December 7, 2025 at 6:18 PM
Sharing an FTD diagnosis with family can feel overwhelming, especially during the holidays.
This week’s Help & Hope article offers guidance, practical steps, and resources to support meaningful conversations with loved ones, including children and teens.
📌 Learn more: https://bit.ly/48DD8i2
This week’s Help & Hope article offers guidance, practical steps, and resources to support meaningful conversations with loved ones, including children and teens.
📌 Learn more: https://bit.ly/48DD8i2
FTD is a progressive disease, and every FTD journey looks different. For most, life expectancy ranges from 7 to 13 years, but it can vary from 2 to 20 years after symptoms begin.
👉 Learn more: https://bit.ly/3KawwzP
👉 Learn more: https://bit.ly/3KawwzP
December 6, 2025 at 7:47 PM
FTD is a progressive disease, and every FTD journey looks different. For most, life expectancy ranges from 7 to 13 years, but it can vary from 2 to 20 years after symptoms begin.
👉 Learn more: https://bit.ly/3KawwzP
👉 Learn more: https://bit.ly/3KawwzP
Curious about the latest in FTD research?
Join our December 10 webinar with Dr. Penny Dacks and Dr. Chiadi Onyike to hear updates from 2025 and learn where the science is headed next.
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
Join our December 10 webinar with Dr. Penny Dacks and Dr. Chiadi Onyike to hear updates from 2025 and learn where the science is headed next.
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
December 5, 2025 at 8:56 PM
Curious about the latest in FTD research?
Join our December 10 webinar with Dr. Penny Dacks and Dr. Chiadi Onyike to hear updates from 2025 and learn where the science is headed next.
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
Join our December 10 webinar with Dr. Penny Dacks and Dr. Chiadi Onyike to hear updates from 2025 and learn where the science is headed next.
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
The legendary voice behind Toto's "Africa" and "Rosanna" is now living with FTD. Bobby Kimball's inspiring journey continues.
⚪ Read his story: https://bit.ly/4pdAjLD
⚪ Read his story: https://bit.ly/4pdAjLD
December 4, 2025 at 4:12 PM
The legendary voice behind Toto's "Africa" and "Rosanna" is now living with FTD. Bobby Kimball's inspiring journey continues.
⚪ Read his story: https://bit.ly/4pdAjLD
⚪ Read his story: https://bit.ly/4pdAjLD
From all of us at AFTD, thank you for your generosity and for supporting our mission on #GivingTuesday.
You help families navigate a diagnosis today and advance progress toward tomorrow’s breakthroughs.
💝 Didn’t get a chance to give? There’s still time to make an impact: https://bit.ly/4o5NZqM
You help families navigate a diagnosis today and advance progress toward tomorrow’s breakthroughs.
💝 Didn’t get a chance to give? There’s still time to make an impact: https://bit.ly/4o5NZqM
December 3, 2025 at 5:15 PM
From all of us at AFTD, thank you for your generosity and for supporting our mission on #GivingTuesday.
You help families navigate a diagnosis today and advance progress toward tomorrow’s breakthroughs.
💝 Didn’t get a chance to give? There’s still time to make an impact: https://bit.ly/4o5NZqM
You help families navigate a diagnosis today and advance progress toward tomorrow’s breakthroughs.
💝 Didn’t get a chance to give? There’s still time to make an impact: https://bit.ly/4o5NZqM
As #GivingTuesday comes to a close, add your reason and your gift to the movement.
There is still time to have your gift matched, thanks to our Board Alumni network (up to $25,000).
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
There is still time to have your gift matched, thanks to our Board Alumni network (up to $25,000).
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
December 2, 2025 at 10:02 PM
As #GivingTuesday comes to a close, add your reason and your gift to the movement.
There is still time to have your gift matched, thanks to our Board Alumni network (up to $25,000).
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
There is still time to have your gift matched, thanks to our Board Alumni network (up to $25,000).
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
You make a difference for people affected by FTD, across our support programs, research and education initiatives, and awareness and advocacy efforts.
❤️ Every #GivingTuesday donation will be matched up to $25,000, doubling your impact. #GiveForFTD: https://bit.ly/4o5NZqM
❤️ Every #GivingTuesday donation will be matched up to $25,000, doubling your impact. #GiveForFTD: https://bit.ly/4o5NZqM
December 2, 2025 at 6:14 PM
You make a difference for people affected by FTD, across our support programs, research and education initiatives, and awareness and advocacy efforts.
❤️ Every #GivingTuesday donation will be matched up to $25,000, doubling your impact. #GiveForFTD: https://bit.ly/4o5NZqM
❤️ Every #GivingTuesday donation will be matched up to $25,000, doubling your impact. #GiveForFTD: https://bit.ly/4o5NZqM
AFTD Persons with FTD Advisory Council member Sandy Howe and her husband, Dirk, share their perspective on what it means to find community, how AFTD helped them gain understanding and connection, and why they support others facing FTD.
❤️ Give today: https://bit.ly/4o5NZqM
❤️ Give today: https://bit.ly/4o5NZqM
December 2, 2025 at 2:01 PM
AFTD Persons with FTD Advisory Council member Sandy Howe and her husband, Dirk, share their perspective on what it means to find community, how AFTD helped them gain understanding and connection, and why they support others facing FTD.
❤️ Give today: https://bit.ly/4o5NZqM
❤️ Give today: https://bit.ly/4o5NZqM
AFTD Persons with FTD Advisory Council member Sandy Howe supports AFTD so that people recently diagnosed —and their caregivers — know they are not alone.
❤️ Join us tomorrow on #GivingTuesday to support AFTD’s mission. Every gift will be matched up to $25,000. #GiveForFTD: https://bit.ly/4o5NZqM
❤️ Join us tomorrow on #GivingTuesday to support AFTD’s mission. Every gift will be matched up to $25,000. #GiveForFTD: https://bit.ly/4o5NZqM
December 1, 2025 at 6:05 PM
AFTD Persons with FTD Advisory Council member Sandy Howe supports AFTD so that people recently diagnosed —and their caregivers — know they are not alone.
❤️ Join us tomorrow on #GivingTuesday to support AFTD’s mission. Every gift will be matched up to $25,000. #GiveForFTD: https://bit.ly/4o5NZqM
❤️ Join us tomorrow on #GivingTuesday to support AFTD’s mission. Every gift will be matched up to $25,000. #GiveForFTD: https://bit.ly/4o5NZqM
"Love will end FTD" ❤️
When her husband was 29, Katie Brandt faced an unimaginable diagnosis. Her journey from "caregiver detective" to advocate shows how love transforms grief into hope.
➡️ Learn more: https://bit.ly/3XR2yDX
When her husband was 29, Katie Brandt faced an unimaginable diagnosis. Her journey from "caregiver detective" to advocate shows how love transforms grief into hope.
➡️ Learn more: https://bit.ly/3XR2yDX
November 30, 2025 at 6:44 PM
"Love will end FTD" ❤️
When her husband was 29, Katie Brandt faced an unimaginable diagnosis. Her journey from "caregiver detective" to advocate shows how love transforms grief into hope.
➡️ Learn more: https://bit.ly/3XR2yDX
When her husband was 29, Katie Brandt faced an unimaginable diagnosis. Her journey from "caregiver detective" to advocate shows how love transforms grief into hope.
➡️ Learn more: https://bit.ly/3XR2yDX
“Without AFTD, we would still be alone.”
Dirk Howe supports AFTD to ensure other families don’t face FTD alone.
Every dollar you give this #GivingTuesday will be matched up to $25,000, doubling your impact on our mission.
Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
Dirk Howe supports AFTD to ensure other families don’t face FTD alone.
Every dollar you give this #GivingTuesday will be matched up to $25,000, doubling your impact on our mission.
Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
November 29, 2025 at 8:50 PM
“Without AFTD, we would still be alone.”
Dirk Howe supports AFTD to ensure other families don’t face FTD alone.
Every dollar you give this #GivingTuesday will be matched up to $25,000, doubling your impact on our mission.
Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
Dirk Howe supports AFTD to ensure other families don’t face FTD alone.
Every dollar you give this #GivingTuesday will be matched up to $25,000, doubling your impact on our mission.
Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
Join AFTD on December 10 at 3 p.m. ET for a discussion with Dr. Penny Dacks and Dr. Chiadi Onyike as we celebrate 2025 progress and explore how you can help drive FTD research forward in 2026.
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
November 28, 2025 at 6:50 PM
Join AFTD on December 10 at 3 p.m. ET for a discussion with Dr. Penny Dacks and Dr. Chiadi Onyike as we celebrate 2025 progress and explore how you can help drive FTD research forward in 2026.
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq
From our AFTD staff to you, Happy Thanksgiving 🦃🧡
Last week, our staff gathered for a potluck in the office, sharing food, connection, and gratitude for this community. Today, we extend that gratitude to you. Thank you!
👉 AFTD's office will be closed today and tomorrow for the holiday.
Last week, our staff gathered for a potluck in the office, sharing food, connection, and gratitude for this community. Today, we extend that gratitude to you. Thank you!
👉 AFTD's office will be closed today and tomorrow for the holiday.
November 27, 2025 at 3:50 PM
From our AFTD staff to you, Happy Thanksgiving 🦃🧡
Last week, our staff gathered for a potluck in the office, sharing food, connection, and gratitude for this community. Today, we extend that gratitude to you. Thank you!
👉 AFTD's office will be closed today and tomorrow for the holiday.
Last week, our staff gathered for a potluck in the office, sharing food, connection, and gratitude for this community. Today, we extend that gratitude to you. Thank you!
👉 AFTD's office will be closed today and tomorrow for the holiday.
This #NationalFamilyCaregiversMonth, members of the FTD community shared what they’ve learned along the way. From finding flexibility to accepting help, these insights remind us that caregiving is not about perfection. It’s about compassion, resilience, & support. Learn more: https://bit.ly/43qrxRZ
November 26, 2025 at 4:03 PM
This #NationalFamilyCaregiversMonth, members of the FTD community shared what they’ve learned along the way. From finding flexibility to accepting help, these insights remind us that caregiving is not about perfection. It’s about compassion, resilience, & support. Learn more: https://bit.ly/43qrxRZ
Each year, our community comes together on #GivingTuesday to make a difference for families facing FTD.
Join us next week on 12/2, and every gift will be matched up to $25,000, thanks to AFTD’s Board Alumni network.
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
Join us next week on 12/2, and every gift will be matched up to $25,000, thanks to AFTD’s Board Alumni network.
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
November 25, 2025 at 6:13 PM
Each year, our community comes together on #GivingTuesday to make a difference for families facing FTD.
Join us next week on 12/2, and every gift will be matched up to $25,000, thanks to AFTD’s Board Alumni network.
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
Join us next week on 12/2, and every gift will be matched up to $25,000, thanks to AFTD’s Board Alumni network.
❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM
The Fall 2025 issue of AFTD Insights is here!
In this issue, you'll find updates on critical FTD research, stories from families and volunteers, the latest on federal funding efforts, event highlights, and news.
📬 Read now: https://bit.ly/3XKfYS0
In this issue, you'll find updates on critical FTD research, stories from families and volunteers, the latest on federal funding efforts, event highlights, and news.
📬 Read now: https://bit.ly/3XKfYS0
November 24, 2025 at 7:02 PM
The Fall 2025 issue of AFTD Insights is here!
In this issue, you'll find updates on critical FTD research, stories from families and volunteers, the latest on federal funding efforts, event highlights, and news.
📬 Read now: https://bit.ly/3XKfYS0
In this issue, you'll find updates on critical FTD research, stories from families and volunteers, the latest on federal funding efforts, event highlights, and news.
📬 Read now: https://bit.ly/3XKfYS0
When living with FTD, the holidays don’t have to look the same to still hold meaning. ❤️
This week’s Help & Hope shares practical tips and real stories from families finding new ways to connect, adapt, and care for one another during the season.
Learn more: https://bit.ly/49yhxtM
This week’s Help & Hope shares practical tips and real stories from families finding new ways to connect, adapt, and care for one another during the season.
Learn more: https://bit.ly/49yhxtM
November 23, 2025 at 6:22 PM
When living with FTD, the holidays don’t have to look the same to still hold meaning. ❤️
This week’s Help & Hope shares practical tips and real stories from families finding new ways to connect, adapt, and care for one another during the season.
Learn more: https://bit.ly/49yhxtM
This week’s Help & Hope shares practical tips and real stories from families finding new ways to connect, adapt, and care for one another during the season.
Learn more: https://bit.ly/49yhxtM
Incredible work from our community! ❤️
🏃♀️ Kendra H. raised $5,862 at the Niagara Falls Half Marathon
🏃♀️ Kelly C. & Glenna S. raised $10,000+ running the Detroit Marathon
👉 Feeling inspired? You can host your own fundraiser and make a meaningful impact: https://bit.ly/48oOOq1
🏃♀️ Kendra H. raised $5,862 at the Niagara Falls Half Marathon
🏃♀️ Kelly C. & Glenna S. raised $10,000+ running the Detroit Marathon
👉 Feeling inspired? You can host your own fundraiser and make a meaningful impact: https://bit.ly/48oOOq1
November 22, 2025 at 7:45 PM
Incredible work from our community! ❤️
🏃♀️ Kendra H. raised $5,862 at the Niagara Falls Half Marathon
🏃♀️ Kelly C. & Glenna S. raised $10,000+ running the Detroit Marathon
👉 Feeling inspired? You can host your own fundraiser and make a meaningful impact: https://bit.ly/48oOOq1
🏃♀️ Kendra H. raised $5,862 at the Niagara Falls Half Marathon
🏃♀️ Kelly C. & Glenna S. raised $10,000+ running the Detroit Marathon
👉 Feeling inspired? You can host your own fundraiser and make a meaningful impact: https://bit.ly/48oOOq1
In our last fiscal year, we paved a path forward - raising FTD awareness, driving research, supporting people and families, educating healthcare professionals, and leading advocacy efforts.
🔴 Read more and explore stories from our community in our 2025 Impact Report: https://bit.ly/49pAsqz
🔴 Read more and explore stories from our community in our 2025 Impact Report: https://bit.ly/49pAsqz
November 21, 2025 at 7:18 PM
In our last fiscal year, we paved a path forward - raising FTD awareness, driving research, supporting people and families, educating healthcare professionals, and leading advocacy efforts.
🔴 Read more and explore stories from our community in our 2025 Impact Report: https://bit.ly/49pAsqz
🔴 Read more and explore stories from our community in our 2025 Impact Report: https://bit.ly/49pAsqz
Join us for an inside look at the progress shaping FTD research. On 12/10 at 3 pm, AFTD experts Dr. Penny D. and Dr. Chiadi O. will discuss advancements from 2025 & the momentum driving us toward effective treatments in the years ahead. Sponsored by Passage Bio
Register now: https://bit.ly/4rfNmOq
Register now: https://bit.ly/4rfNmOq
November 20, 2025 at 9:09 PM
Join us for an inside look at the progress shaping FTD research. On 12/10 at 3 pm, AFTD experts Dr. Penny D. and Dr. Chiadi O. will discuss advancements from 2025 & the momentum driving us toward effective treatments in the years ahead. Sponsored by Passage Bio
Register now: https://bit.ly/4rfNmOq
Register now: https://bit.ly/4rfNmOq
Caring for someone with FTD can be deeply meaningful, but it can also be stressful. Taking time to care for yourself helps you show up stronger for those you love. ❤️
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
November 20, 2025 at 4:10 PM
Caring for someone with FTD can be deeply meaningful, but it can also be stressful. Taking time to care for yourself helps you show up stronger for those you love. ❤️
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
A study led by AFTD grantee Dr. Tanav Popli finds high rates of diagnostic mismatching of #PSP cases in a national data set.
Click here to learn more: https://bit.ly/3JKIwYt
Click here to learn more: https://bit.ly/3JKIwYt
November 19, 2025 at 8:05 PM
A study led by AFTD grantee Dr. Tanav Popli finds high rates of diagnostic mismatching of #PSP cases in a national data set.
Click here to learn more: https://bit.ly/3JKIwYt
Click here to learn more: https://bit.ly/3JKIwYt
FTD is still too often misunderstood, even in healthcare, leaving families without the support they urgently need. In this clip, AFTD’s Meghan B. shares why your voice matters & how advocacy can transform the future for people living with FTD & their care partners.
Watch now: https://bit.ly/3WqDUcE
Watch now: https://bit.ly/3WqDUcE
November 19, 2025 at 5:10 PM
FTD is still too often misunderstood, even in healthcare, leaving families without the support they urgently need. In this clip, AFTD’s Meghan B. shares why your voice matters & how advocacy can transform the future for people living with FTD & their care partners.
Watch now: https://bit.ly/3WqDUcE
Watch now: https://bit.ly/3WqDUcE
Amylyx Pharmaceuticals announced that it is ending its phase 2b trial for #PSP after test group results turned out similarly to the placebo group. We’re grateful for Amylyx’s work furthering our understanding of PSP’s biology.
Learn more: https://bit.ly/43taApW
Learn more: https://bit.ly/43taApW
November 18, 2025 at 7:46 PM
Amylyx Pharmaceuticals announced that it is ending its phase 2b trial for #PSP after test group results turned out similarly to the placebo group. We’re grateful for Amylyx’s work furthering our understanding of PSP’s biology.
Learn more: https://bit.ly/43taApW
Learn more: https://bit.ly/43taApW
Holidays can feel different when FTD is part of the picture. These Thanksgiving tips can help create a calmer, more comfortable day for care partners, guests, & the persons diagnosed.
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL
November 18, 2025 at 4:10 PM
Holidays can feel different when FTD is part of the picture. These Thanksgiving tips can help create a calmer, more comfortable day for care partners, guests, & the persons diagnosed.
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL