@solvingms.bsky.social
@solvingms.bsky.social
To fund scientific and/or medical research and to advocate for people with Multiple Sclerosis (MS). #SolvingMS
https://www.solvingms.org
Research Database
https://solvingms.org/research-database
https://www.solvingms.org
Research Database
https://solvingms.org/research-database
Reposted by @solvingms.bsky.social
Yesterday’s micro-live @themsgym.bsky.social
It’s not JUST our hip flexors that are weak, #feedforMSfolk. It starts with our intrinsic kinetic chain. MS doesn’t just hit at one foot, or hand and foot - it’s lesion and down!
#neuroplasticity #neurorehab #themsgym
www.youtube.com/watch?v=lAHP...
It’s not JUST our hip flexors that are weak, #feedforMSfolk. It starts with our intrinsic kinetic chain. MS doesn’t just hit at one foot, or hand and foot - it’s lesion and down!
#neuroplasticity #neurorehab #themsgym
www.youtube.com/watch?v=lAHP...
LIVE TRAINING - Hip Flexor Strengthening With Coach T
YouTube video by The MS Gym
www.youtube.com
November 21, 2024 at 3:43 PM
Yesterday’s micro-live @themsgym.bsky.social
It’s not JUST our hip flexors that are weak, #feedforMSfolk. It starts with our intrinsic kinetic chain. MS doesn’t just hit at one foot, or hand and foot - it’s lesion and down!
#neuroplasticity #neurorehab #themsgym
www.youtube.com/watch?v=lAHP...
It’s not JUST our hip flexors that are weak, #feedforMSfolk. It starts with our intrinsic kinetic chain. MS doesn’t just hit at one foot, or hand and foot - it’s lesion and down!
#neuroplasticity #neurorehab #themsgym
www.youtube.com/watch?v=lAHP...
Reposted by @solvingms.bsky.social
Thank you for hearing us, Dr. Giovanonni. #MS peeps, please encourage Dr. G. To join Bluesky. This will be an interesting follow: #covid #longcovid #antivirals #TAF #vemliidy #valacyclovir #bcelldepletion
“Long Covid and it’s relationship to MS”
gavingiovannoni.substack.com/p/long-covid...
“Long Covid and it’s relationship to MS”
gavingiovannoni.substack.com/p/long-covid...
Long COVID and its relationship to MS
If intermittent EBV reactivation drives long COVID and MS, it should respond to EBV antiviral strategies. I am aware that many pwMS have started taking antivirals off-label to manage their MS ....
gavingiovannoni.substack.com
November 22, 2024 at 12:13 PM
Thank you for hearing us, Dr. Giovanonni. #MS peeps, please encourage Dr. G. To join Bluesky. This will be an interesting follow: #covid #longcovid #antivirals #TAF #vemliidy #valacyclovir #bcelldepletion
“Long Covid and it’s relationship to MS”
gavingiovannoni.substack.com/p/long-covid...
“Long Covid and it’s relationship to MS”
gavingiovannoni.substack.com/p/long-covid...
Reposted by @solvingms.bsky.social
“Autologous Epstein–Barr virus-specific adoptive T-cell therapy in a patient with lupus nephritis” November 19, 2024
onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com/doi/full/10....
November 22, 2024 at 4:43 PM
“Autologous Epstein–Barr virus-specific adoptive T-cell therapy in a patient with lupus nephritis” November 19, 2024
onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com/doi/full/10....
Research Database - Solving MS
solvingms.org
November 21, 2024 at 1:09 PM
Trevor Wicken! He’s the real deal. He’s made such an incredible difference in the lives of MS’ers. And the MS Gym is now on Bluesky! @themsgym.bsky.social @klstenhouse.bsky.social is an admin at The MS Gym and knows and helps a ton. Hit her up!
November 20, 2024 at 11:56 PM
Trevor Wicken! He’s the real deal. He’s made such an incredible difference in the lives of MS’ers. And the MS Gym is now on Bluesky! @themsgym.bsky.social @klstenhouse.bsky.social is an admin at The MS Gym and knows and helps a ton. Hit her up!
Thank you! @brunoamaral.eu is the Bruno Karen is referring to.
November 19, 2024 at 2:36 PM
Thank you! @brunoamaral.eu is the Bruno Karen is referring to.
We hope to see her! Having any chronic illness is hard and finding your people is priceless. There are always trolls but it’s great we have a dedicated feed and can block people! Send her our best!
November 18, 2024 at 2:43 PM
We hope to see her! Having any chronic illness is hard and finding your people is priceless. There are always trolls but it’s great we have a dedicated feed and can block people! Send her our best!
Follow us for research and look at our followers: many are here for research or share research.
November 18, 2024 at 1:10 PM
Follow us for research and look at our followers: many are here for research or share research.
Reposted by @solvingms.bsky.social
There is some data that the acyclovir prodrug #valacyclovir (which I take to halt ebv reactivations) is more effective than #guanasineanalogue antivirals.
Better results may come in a trial of late onset #MS or secondary MSers. Viral control ability depleted. 1/2
pubmed.ncbi.nlm.nih.gov/38131621/
Better results may come in a trial of late onset #MS or secondary MSers. Viral control ability depleted. 1/2
pubmed.ncbi.nlm.nih.gov/38131621/
A phase 2a open-label clinical trial to determine the effect of famciclovir on EBV activity as measured by EBV shedding in the saliva of patients with multiple sclerosis - PubMed
No significant effect of famciclovir on EBV shedding was seen in this small pilot study. Given the low numbers, a small effect of famciclovir cannot be excluded. Salivary EBV shedding in this natalizu...
pubmed.ncbi.nlm.nih.gov
November 16, 2024 at 5:09 PM
There is some data that the acyclovir prodrug #valacyclovir (which I take to halt ebv reactivations) is more effective than #guanasineanalogue antivirals.
Better results may come in a trial of late onset #MS or secondary MSers. Viral control ability depleted. 1/2
pubmed.ncbi.nlm.nih.gov/38131621/
Better results may come in a trial of late onset #MS or secondary MSers. Viral control ability depleted. 1/2
pubmed.ncbi.nlm.nih.gov/38131621/
Temperature intolerance/changes in barometric pressure are a result of demyelination of the nerves.
November 18, 2024 at 1:20 AM
Temperature intolerance/changes in barometric pressure are a result of demyelination of the nerves.
The BEHIND-MS project introduces the project’s objectives and groundbreaking research efforts. This five-year European research initiative is focused on understanding the role of the EBV in the onset and progression of MS. #EBVcausesMS
youtu.be/LvbXvLLsVLw
youtu.be/LvbXvLLsVLw
BEHIND-MS: Exploring the Link Between Epstein-Barr Virus and Multiple Sclerosis
YouTube video by EMSP Brussels
youtu.be
November 17, 2024 at 3:32 AM
The BEHIND-MS project introduces the project’s objectives and groundbreaking research efforts. This five-year European research initiative is focused on understanding the role of the EBV in the onset and progression of MS. #EBVcausesMS
youtu.be/LvbXvLLsVLw
youtu.be/LvbXvLLsVLw
This is what this group does! We will be posting very soon!
November 15, 2024 at 10:21 PM
This is what this group does! We will be posting very soon!
@allyann.bsky.social please add #MS
November 14, 2024 at 2:30 AM
@allyann.bsky.social please add #MS