Smart Patients
@smartpatients.bsky.social
97 followers 450 following 83 posts
Smart Patients - a peer-to-peer support forum where patients learn from each other about treatments, challenges, and how it all fits into the context of their experience. www.smartpatients.com https://linktr.ee/smartpatients
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smartpatients.bsky.social
Care that focuses on comfort, dignity, and quality of life is what makes us human. Our community members discuss the small but profound things that matter most: managing pain, finding joy in daily rituals, and having honest conversations with loved ones.

#WorldHospiceAndPalliativeCareDay
smartpatients.bsky.social
Watch this short video to learn more about why we wanted to team up with MyChild'sCancer, an incredible organization that helps parents to turn heartbreak into hope: https://ow.ly/BK6v50X5EfZ

Join the community here: https://ow.ly/X0oh50X5Eg3

#MyChildsCancer #SmartPatients #PediatricCancer
smartpatients.bsky.social
If you have metastatic breast cancer, life is a mix of courage, uncertainty, & moments that still matter deeply.

Smart Patients members remind us that awareness is about people navigating real conversations about treatment, fear, and resilience.

#MetastaticBreastCancerAwarenessDay #SmartPatients
smartpatients.bsky.social
Today is Know Your Lemons Day!

Here’s a simple reminder: know your body, its signs, and when to act. The “lemons” message teaches awareness of breast health and seeing changes early can save lives.

#KnowYourLemonsDay #BreastHealth #SmartPatients
smartpatients.bsky.social
At Smart Patients, every new connection matters. You’re part of a community that believes no one should face illness alone.

Welcome to a place where stories are shared, questions are answered, and strength grows together.

www.smartpatients.com
smartpatients.bsky.social
I am listening to the whispers my body tried to hide.
I am more than the silence liver cancer tried to keep me in.

Read our I Am...More than Liver Cancer: https://ow.ly/ioGs50X72Z8

Thanks to https://ow.ly/Qoqn50X72Z7 for ongoing support to liver research!

#IAmSeries #LiverCancerAwareness
Liver Central - Reinventing Liver Cancer Education
Welcome to Liver Central, The Global Liver Institute hub for research and care resources.
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smartpatients.bsky.social
We know you are all heroes for asking tough questions, working through the struggles and uncertainty, and showing up in hospital rooms or on late-night message boards.

Yesterday was #NationalHeroDay. We admire your capes, bravery and resilience as a Smart Patients is a hero.

#SmartPatients
smartpatients.bsky.social
We’re proud to continue celebrating our partnership with https://ow.ly/4t6T50X3Ouu ! No one should face serious illness without access to treatment options. If medicine exists, but a patient can’t access it, is that really progress?
https://ow.ly/k5rL50X3Ous

#EveryoneOrg #SmartPatients
smartpatients.bsky.social
We are looking forward to doing more to support caregivers and families with the resources and community they need together to manage pediatric cancer with our new partner!
smartpatients.bsky.social
Today is Child Health Day! No better way to honor it than by launching our partnership with MyChild’sCancer, an organization dedicated to making lifesaving information on childhood cancers available to parents and doctors.

Please join us: https://ow.ly/qGjW50X3W3b
#MyChild'sCancer #SmartPatients
smartpatients.bsky.social
Liver cancer creeps in with aches, fatigue, dizziness; symptoms that don't feel urgent until the pattern made sense.

Read the latest in our I Am series and see why you are never just a number: https://ow.ly/ezrz50X4Ee2

#IAmSeries #OctoberIs4Livers #SmartPatients
smartpatients.bsky.social
Recovery doesn’t end when you leave the hospital. The real work begins when you have to rebuild strength, mobility, and confidence in daily life.

At Smart Patients, we remind each other that recovery is physical, emotional, and deeply personal.
www.smartpatients.com

#SmartPatients #RehabMatters
smartpatients.bsky.social
Thanks to our partners who worked tirelessly to build ovarian cancer awareness: Below The Belt Women's Cancer Outreach, Georgia Ovarian Cancer Alliance - GOCA, NormaLeah Ovarian Cancer Initiative, Ovations ForThe Cure, St. Louis Ovarian Cancer Awareness, & Women of Teal.
Read more: ow.ly/ZNZp50X3RAQ
What I Wish I Had Known About Ovarian Cancer — Smart Patients
This story is written in the first person, but it is not the story of one woman alone. It is a composite drawn from the voices of many Smart Patients members who have shared what they wish they had kn...
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smartpatients.bsky.social
Age is not just a number. In Japan, they dedicate a national holiday, Respect for the Aged Day (Keirō no Hi), to honor the experience and contributions of older adults.

What a beautiful idea to celebrate those who’ve come before us.

#InternationalDayOfOlderPersons #SmartPatients
smartpatients.bsky.social
Support isn’t a luxury—it’s a lifeline. That's why we are partnering with the Pancreatic Cancer Action Network to create 2 free, trusted online communities for people facing pancreatic cancer.

Press release with more details: pancan.org/press-releas...

#PanCAN #SmartPatients #PancreaticCancer
smartpatients.bsky.social
We are proud to partner with Everyone.org, an organization dedicated to making medicines accessible to people around the world.

Treatment & community shouldn’t depend on where you live.

We invite you to learn more and join the conversation today: ow.ly/NMhv50X1EIo

#EveryoneOrg #SmartPatients
smartpatients.bsky.social
Thank you to one of our Smart Patients members for reminding us that it’s World FTD Awareness Week.

This is why awareness matters: when families and patients speak up, they drive visibility, accelerate research toward better diagnoses, treatments, and—someday—a cure.
#FTDAwareness #SmartPatients
smartpatients.bsky.social
Truth: We don’t think about our lungs until they stop working the way they should.

Query: If every breath is precious, why do we wait until it’s hard to breathe to pay attention?

On World Lung Day, we salute our community and partners.

#WorldLungDay #SmartPatients #LCFA #LungCancerConnection
smartpatients.bsky.social
Big news! We’re proud to announce a new partnership with the Pancreatic Cancer Action Network (PanCAN). Together, we’re launching a free, trusted online community for people facing pancreatic cancer to connect and learn, find hope and support.

Join today: ow.ly/4b8450WXGIV

#PanCAN #SmartPatients
smartpatients.bsky.social
A big thank you to 1 of Us for helping us spread the word about Smart Patients at the Gail Parkins Memorial Ovarian Cancer Walk & 5k Run! Events like these remind us of the power of community. Together, we build spaces for support, resilience, and hope.
smartpatients.bsky.social
On the outside, you might look fine. On the inside, you feel like your skeleton is crumbling. This Blood Cancer Awareness Month, our Smart Patients myeloma community is making the invisible visible. Their stories are raw, practical, and rooted in hope.

Read the full story: ow.ly/p9lV50WX9wm
Hope Grows Stronger When We Share It — Smart Patients
These words aren’t just one person’s alone - they’re stitched together from the stories, questions, and hard-won lessons shared by many people in the Smart Patients multiple myeloma community. What f...
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smartpatients.bsky.social
Yesterday was World Patient Safety Day. We revisited a powerful Smart Patients discussion and shared it as a story filled with resources, practical tips, and the voices of patients and caregivers.

No try outs necessary. Read & join the team: ow.ly/TCot50WYiGz

#WorldPatientSafetyDay #SmartPatients
When Patients Speak Up, Hospitals Get Safer — Smart Patients
From bedside notes to good catches, patients are helping make hospitals safer. Here’s what families can do to prevent medical errors.
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smartpatients.bsky.social
When we talk about patient safety, it’s often about medical errors or treatment risks. But safety also means something deeply human, such as feeling safe enough to ask questions or having the clarity to know what’s true. At Smart Patients, safety comes from connection.

#WorldPatientSafetyDay