Bart-Jan.Schuman.de
@schuman.de
Ataxia researcher and advocate.
My interests range from Friedreich Ataxia to VPS13D
My interests range from Friedreich Ataxia to VPS13D
Reposted by Bart-Jan.Schuman.de
We're very excited to that announce Heike Raab, Representative of the State of Rhineland-Palatinate to the Federal Government and for Europe and the Media, will be speaking at #EuroskyLive in Berlin this November.
#EuroskyLive #DigitalSovereignty #EuropeanTech
#EuroskyLive #DigitalSovereignty #EuropeanTech
October 9, 2025 at 2:03 PM
We're very excited to that announce Heike Raab, Representative of the State of Rhineland-Palatinate to the Federal Government and for Europe and the Media, will be speaking at #EuroskyLive in Berlin this November.
#EuroskyLive #DigitalSovereignty #EuropeanTech
#EuroskyLive #DigitalSovereignty #EuropeanTech
Reposted by Bart-Jan.Schuman.de
Hello everyone! Announcing Eurosky Live: Berlin 2025. Join founders, developers, media, policy-makers, and investors for a full-day public programe exploring the European open social web.
If you're building on ATProto and interested in showcasing, please reach out!
To register: luma.com/knk1342n
If you're building on ATProto and interested in showcasing, please reach out!
To register: luma.com/knk1342n
Eurosky Live: Berlin 2025 · Luma
Showcase • Keynotes • Panels
Join founders, developers, media, policy-makers, and investors for a full-day public programme exploring the European open social…
luma.com
September 16, 2025 at 10:01 AM
Hello everyone! Announcing Eurosky Live: Berlin 2025. Join founders, developers, media, policy-makers, and investors for a full-day public programe exploring the European open social web.
If you're building on ATProto and interested in showcasing, please reach out!
To register: luma.com/knk1342n
If you're building on ATProto and interested in showcasing, please reach out!
To register: luma.com/knk1342n
Reposted by Bart-Jan.Schuman.de
Heute, 25. Sept. 2025: International Ataxia Awareness Day!
Wir nutzen den Tag, um auf unseren Verein und Community aufmerksam zu machen.
336 Mitglieder engagieren sich gemeinsam für Menschen mit Friedreich-Ataxie und kämpfen für mehr Aufmerksamkeit, bessere Forschungs- und Therapiemöglichkeiten.
Wir nutzen den Tag, um auf unseren Verein und Community aufmerksam zu machen.
336 Mitglieder engagieren sich gemeinsam für Menschen mit Friedreich-Ataxie und kämpfen für mehr Aufmerksamkeit, bessere Forschungs- und Therapiemöglichkeiten.
September 25, 2025 at 4:44 PM
Heute, 25. Sept. 2025: International Ataxia Awareness Day!
Wir nutzen den Tag, um auf unseren Verein und Community aufmerksam zu machen.
336 Mitglieder engagieren sich gemeinsam für Menschen mit Friedreich-Ataxie und kämpfen für mehr Aufmerksamkeit, bessere Forschungs- und Therapiemöglichkeiten.
Wir nutzen den Tag, um auf unseren Verein und Community aufmerksam zu machen.
336 Mitglieder engagieren sich gemeinsam für Menschen mit Friedreich-Ataxie und kämpfen für mehr Aufmerksamkeit, bessere Forschungs- und Therapiemöglichkeiten.
Reposted by Bart-Jan.Schuman.de
Am 29.11.25 lädt Kulturförderkreis Altomünster und Rotary Club Dachau ein zur Benefizgala zugunsten der Friedreich-Ataxie-Aufmerksamkeit, in Kapplerbräusall Altomünster:
• mitreißendes Programm
• Tombola
• 3-Gänge-Menü
Tickets, Info: www.friedreich-ataxie.de/Verein/aktio...
• mitreißendes Programm
• Tombola
• 3-Gänge-Menü
Tickets, Info: www.friedreich-ataxie.de/Verein/aktio...
September 12, 2025 at 2:00 PM
Am 29.11.25 lädt Kulturförderkreis Altomünster und Rotary Club Dachau ein zur Benefizgala zugunsten der Friedreich-Ataxie-Aufmerksamkeit, in Kapplerbräusall Altomünster:
• mitreißendes Programm
• Tombola
• 3-Gänge-Menü
Tickets, Info: www.friedreich-ataxie.de/Verein/aktio...
• mitreißendes Programm
• Tombola
• 3-Gänge-Menü
Tickets, Info: www.friedreich-ataxie.de/Verein/aktio...
Reposted by Bart-Jan.Schuman.de
Der Monat neigt sich dem Ende und damit ist es wieder soweit.
Für den Zugangslink sende bitte eine kurze Mail an:
FA-Austausch@Friedreich-Ataxie.de
Für den Zugangslink sende bitte eine kurze Mail an:
FA-Austausch@Friedreich-Ataxie.de
August 30, 2025 at 2:10 PM
Der Monat neigt sich dem Ende und damit ist es wieder soweit.
Für den Zugangslink sende bitte eine kurze Mail an:
FA-Austausch@Friedreich-Ataxie.de
Für den Zugangslink sende bitte eine kurze Mail an:
FA-Austausch@Friedreich-Ataxie.de
Reposted by Bart-Jan.Schuman.de
The bsky team is heading to @ietf.org in Montreal in November.
The team has requested a "birds of a feather" (BOF) session at #IETF124 - a part of the process for having ATProto admitted as a standard.
We're also planning community gatherings. RSVP here if you're interested.
The team has requested a "birds of a feather" (BOF) session at #IETF124 - a part of the process for having ATProto admitted as a standard.
We're also planning community gatherings. RSVP here if you're interested.
ATProto Protocol Working Sessions at IETF124
IETF124 is happening in Montreal, Nov 1st to 7th https://www.ietf.org/meeting/124/
Attending the IETF Hackathon is free (date TBD, usually at the beginning), and we'll also plan ATProto working ...
smokesignal.events
August 29, 2025 at 10:24 PM
Reposted by Bart-Jan.Schuman.de
Spiellandschaft-2025
Kommt vorbei zur Spiellandschaft
Minigolf, Fußball-Billard & Golf Croquet! 🏑⚽⛳
📅 Termine:
Fr, 29.8. 16 – 22 Uhr
Sa, 30.8. 14 – 22 Uhr
So, 31.8. 12 – 20 Uhr
Grill- & Currywurst 🌭 | Pommes 🍟 | Grillkäse 🧀 | Wurstsalat 🥗 | Kuchen & Eis 🍰🍦
Weg am Schächle
78144 Schramberg
Kommt vorbei zur Spiellandschaft
Minigolf, Fußball-Billard & Golf Croquet! 🏑⚽⛳
📅 Termine:
Fr, 29.8. 16 – 22 Uhr
Sa, 30.8. 14 – 22 Uhr
So, 31.8. 12 – 20 Uhr
Grill- & Currywurst 🌭 | Pommes 🍟 | Grillkäse 🧀 | Wurstsalat 🥗 | Kuchen & Eis 🍰🍦
Weg am Schächle
78144 Schramberg
August 27, 2025 at 10:20 AM
Spiellandschaft-2025
Kommt vorbei zur Spiellandschaft
Minigolf, Fußball-Billard & Golf Croquet! 🏑⚽⛳
📅 Termine:
Fr, 29.8. 16 – 22 Uhr
Sa, 30.8. 14 – 22 Uhr
So, 31.8. 12 – 20 Uhr
Grill- & Currywurst 🌭 | Pommes 🍟 | Grillkäse 🧀 | Wurstsalat 🥗 | Kuchen & Eis 🍰🍦
Weg am Schächle
78144 Schramberg
Kommt vorbei zur Spiellandschaft
Minigolf, Fußball-Billard & Golf Croquet! 🏑⚽⛳
📅 Termine:
Fr, 29.8. 16 – 22 Uhr
Sa, 30.8. 14 – 22 Uhr
So, 31.8. 12 – 20 Uhr
Grill- & Currywurst 🌭 | Pommes 🍟 | Grillkäse 🧀 | Wurstsalat 🥗 | Kuchen & Eis 🍰🍦
Weg am Schächle
78144 Schramberg
Reposted by Bart-Jan.Schuman.de
At the last NGI Forum, when asked what I would like to have next to address the threats of tech authoritarianism, I answered that the first thing I wanted was a European Commissioner in charge of Tech Sovereignty.
Was this too harsh? 🧵
Was this too harsh? 🧵
August 26, 2025 at 4:35 PM
At the last NGI Forum, when asked what I would like to have next to address the threats of tech authoritarianism, I answered that the first thing I wanted was a European Commissioner in charge of Tech Sovereignty.
Was this too harsh? 🧵
Was this too harsh? 🧵
Reposted by Bart-Jan.Schuman.de
5 likes or more and I know I hit a gold mine
August 24, 2025 at 6:46 PM
5 likes or more and I know I hit a gold mine
Making money with ATproto?
YES: Cosmik has been awarded $1M from Open Philanthropy and Astera Institute! To support work at collaborative knowledge tools, AI, science social media.
Specifically, the development of Semble, a micro-knowledge sharing/discovery network for ATProto.
YES: Cosmik has been awarded $1M from Open Philanthropy and Astera Institute! To support work at collaborative knowledge tools, AI, science social media.
Specifically, the development of Semble, a micro-knowledge sharing/discovery network for ATProto.
August 15, 2025 at 8:29 PM
Making money with ATproto?
YES: Cosmik has been awarded $1M from Open Philanthropy and Astera Institute! To support work at collaborative knowledge tools, AI, science social media.
Specifically, the development of Semble, a micro-knowledge sharing/discovery network for ATProto.
YES: Cosmik has been awarded $1M from Open Philanthropy and Astera Institute! To support work at collaborative knowledge tools, AI, science social media.
Specifically, the development of Semble, a micro-knowledge sharing/discovery network for ATProto.
Reposted by Bart-Jan.Schuman.de
Version 1.0.4 of AT Toolbox is now live 🎉!
- iOS 26 support
- List blobs action
- Ability to download a repo's .car export and blobs
- And more!
🎉 Celebrating the new release, I am giving away 3 promo codes to download the app for free if you repost this within the next 24 hours!
- iOS 26 support
- List blobs action
- Ability to download a repo's .car export and blobs
- And more!
🎉 Celebrating the new release, I am giving away 3 promo codes to download the app for free if you repost this within the next 24 hours!
AT Toolbox
Unlock the power of AT Protocol with iOS Shortcuts! AT Toolbox brings ease to use automation to the Atmosphere, letting you interact with the same technology that powers Bluesky directly from your iP...
apps.apple.com
July 26, 2025 at 3:49 AM
Version 1.0.4 of AT Toolbox is now live 🎉!
- iOS 26 support
- List blobs action
- Ability to download a repo's .car export and blobs
- And more!
🎉 Celebrating the new release, I am giving away 3 promo codes to download the app for free if you repost this within the next 24 hours!
- iOS 26 support
- List blobs action
- Ability to download a repo's .car export and blobs
- And more!
🎉 Celebrating the new release, I am giving away 3 promo codes to download the app for free if you repost this within the next 24 hours!
YEAH, another MacPDS-project milestone - i.e. prototyping which might lead to a PDS running on MacOS, linux, Android, WSAM, Win…- :
createAccount worked !
Data in Postgress, HTTP 200 and did:plc looks reasonable …
Now I need to figure out what other PDS return …
😀
#codinginpublic #PDS #ATProtoKit
createAccount worked !
Data in Postgress, HTTP 200 and did:plc looks reasonable …
Now I need to figure out what other PDS return …
😀
#codinginpublic #PDS #ATProtoKit
July 7, 2025 at 5:04 PM
YEAH, another MacPDS-project milestone - i.e. prototyping which might lead to a PDS running on MacOS, linux, Android, WSAM, Win…- :
createAccount worked !
Data in Postgress, HTTP 200 and did:plc looks reasonable …
Now I need to figure out what other PDS return …
😀
#codinginpublic #PDS #ATProtoKit
createAccount worked !
Data in Postgress, HTTP 200 and did:plc looks reasonable …
Now I need to figure out what other PDS return …
😀
#codinginpublic #PDS #ATProtoKit
Reposted by Bart-Jan.Schuman.de
Heute Nachmittag findet die Jahreshauptversammlung des Friedreich Ataxie Förderverein statt ! Um 14.00 Uhr geht es los! Wir haben schon fast 50 Anmeldungen! Willst Du auch dabei sein? Dann melde Dich unter [email protected] für den Link!
July 6, 2025 at 8:53 AM
Heute Nachmittag findet die Jahreshauptversammlung des Friedreich Ataxie Förderverein statt ! Um 14.00 Uhr geht es los! Wir haben schon fast 50 Anmeldungen! Willst Du auch dabei sein? Dann melde Dich unter [email protected] für den Link!
Reposted by Bart-Jan.Schuman.de
Reposted by Bart-Jan.Schuman.de
#WorldBrainDay is coming up on July 22! We asked our network: "If you could change one thing in the health care system for Rare Neurological Diseases what would that be and why?"
This is what our patient representative Mary Kearney (Friedreich's #Ataxia) said.
#WorldBrainDay2025 #WorldBrainDay25
This is what our patient representative Mary Kearney (Friedreich's #Ataxia) said.
#WorldBrainDay2025 #WorldBrainDay25
Improving the health care system for RND - Mary Kearney (Patient Representative)
YouTube video by ERN-RND
www.youtube.com
June 30, 2025 at 2:20 PM
#WorldBrainDay is coming up on July 22! We asked our network: "If you could change one thing in the health care system for Rare Neurological Diseases what would that be and why?"
This is what our patient representative Mary Kearney (Friedreich's #Ataxia) said.
#WorldBrainDay2025 #WorldBrainDay25
This is what our patient representative Mary Kearney (Friedreich's #Ataxia) said.
#WorldBrainDay2025 #WorldBrainDay25
Reposted by Bart-Jan.Schuman.de
Auch in Juli ist einiges los in der FAmily.
Bei uns kein Sommerloch!
Bei uns kein Sommerloch!
June 29, 2025 at 10:19 PM
Auch in Juli ist einiges los in der FAmily.
Bei uns kein Sommerloch!
Bei uns kein Sommerloch!
Anybody know if something like this :
developer.apple.com/support/alt-...
is going to be available on MacOS also?
Or will Apple only abide to regulations on iOS?
From what I found so far this will (initially?) be >=18.6 (and EU) (only?)….
#ATProto #MacOS #Federated
developer.apple.com/support/alt-...
is going to be available on MacOS also?
Or will Apple only abide to regulations on iOS?
From what I found so far this will (initially?) be >=18.6 (and EU) (only?)….
#ATProto #MacOS #Federated
Alternative Distribution User Experience in the EU - Support - Apple Developer
developer.apple.com
June 28, 2025 at 3:13 PM
Anybody know if something like this :
developer.apple.com/support/alt-...
is going to be available on MacOS also?
Or will Apple only abide to regulations on iOS?
From what I found so far this will (initially?) be >=18.6 (and EU) (only?)….
#ATProto #MacOS #Federated
developer.apple.com/support/alt-...
is going to be available on MacOS also?
Or will Apple only abide to regulations on iOS?
From what I found so far this will (initially?) be >=18.6 (and EU) (only?)….
#ATProto #MacOS #Federated
Reposted by Bart-Jan.Schuman.de
Anti-gene oligonucleotides targeting Friedreich’s ataxia expanded GAA⋅TTC repeats increase Frataxin expression.
www.cell.com/molecular-th...
www.cell.com/molecular-th...
Anti-gene oligonucleotides targeting Friedreich’s ataxia expanded GAA⋅TTC repeats increase Frataxin expression
Zain and colleagues develop a novel therapeutic modality for Friedreich’s ataxia based
on DNA-targeting anti-gene oligonucleotides directed toward expanded GAA⋅TTC repeats.
By optimizing oligonucleoti...
www.cell.com
June 26, 2025 at 1:53 PM
Anti-gene oligonucleotides targeting Friedreich’s ataxia expanded GAA⋅TTC repeats increase Frataxin expression.
www.cell.com/molecular-th...
www.cell.com/molecular-th...
Reposted by Bart-Jan.Schuman.de
With Xcode 26 you can just run your app and Xcode will automatically start writings UI test for you 🤯
June 22, 2025 at 7:59 AM
With Xcode 26 you can just run your app and Xcode will automatically start writings UI test for you 🤯
Reposted by Bart-Jan.Schuman.de
Suchst Du ein Hotel damit Du am 19.07. dabei sein kannst?
May 4, 2025 at 2:18 PM
Suchst Du ein Hotel damit Du am 19.07. dabei sein kannst?
Hey @jaz.bsky.social ,
Just tried to take a look at bsky.jazco.dev/atlas and it currently creates ‘stopped loading, because multiple errors occurred’ with my iPhone 15.4.1 Safari.
Don’t get me wrong, this not to complain, only trying to help, right?
Just tried to take a look at bsky.jazco.dev/atlas and it currently creates ‘stopped loading, because multiple errors occurred’ with my iPhone 15.4.1 Safari.
Don’t get me wrong, this not to complain, only trying to help, right?
Atlas - Engagement-Based Social Graph for Bluesky by Jaz (jaz.bsky.social)
bsky.jazco.dev
May 1, 2025 at 12:37 PM
Hey @jaz.bsky.social ,
Just tried to take a look at bsky.jazco.dev/atlas and it currently creates ‘stopped loading, because multiple errors occurred’ with my iPhone 15.4.1 Safari.
Don’t get me wrong, this not to complain, only trying to help, right?
Just tried to take a look at bsky.jazco.dev/atlas and it currently creates ‘stopped loading, because multiple errors occurred’ with my iPhone 15.4.1 Safari.
Don’t get me wrong, this not to complain, only trying to help, right?
@mathewlowry.bsky.social
Really liked what you pitched #ahoy25 this morning.
Me being a developer working on tools allowing people to migrate from X (and co.) to BlueSky & Mastodon (and co.) appreciate someone daring to use the word ‘enterprise users’.
Thought I was the only thinking about that 😅
Really liked what you pitched #ahoy25 this morning.
Me being a developer working on tools allowing people to migrate from X (and co.) to BlueSky & Mastodon (and co.) appreciate someone daring to use the word ‘enterprise users’.
Thought I was the only thinking about that 😅
co.to
April 24, 2025 at 12:29 PM
@mathewlowry.bsky.social
Really liked what you pitched #ahoy25 this morning.
Me being a developer working on tools allowing people to migrate from X (and co.) to BlueSky & Mastodon (and co.) appreciate someone daring to use the word ‘enterprise users’.
Thought I was the only thinking about that 😅
Really liked what you pitched #ahoy25 this morning.
Me being a developer working on tools allowing people to migrate from X (and co.) to BlueSky & Mastodon (and co.) appreciate someone daring to use the word ‘enterprise users’.
Thought I was the only thinking about that 😅
First Test with OTProtoKit -by @cjrriley.com-, v0.25.
March 1, 2025 at 5:55 PM
First Test with OTProtoKit -by @cjrriley.com-, v0.25.
MacPoster does AI !
Now supporting #Apple Writing Tools, as well as Apple's Image Playground to help you generate the content of your message.
Now supporting #Apple Writing Tools, as well as Apple's Image Playground to help you generate the content of your message.
February 22, 2025 at 8:48 PM
MacPoster does AI !
Now supporting #Apple Writing Tools, as well as Apple's Image Playground to help you generate the content of your message.
Now supporting #Apple Writing Tools, as well as Apple's Image Playground to help you generate the content of your message.