Salem Oaks
@salemoaks.bsky.social
We create patient education about Pharma R&D to empower patients and patient organizations.
From all of us:
We’d like to wish everyone to have a RARE Valentine’s Day!
💌
XOXO,
Salem Oaks, LLC 🧡
We’d like to wish everyone to have a RARE Valentine’s Day!
💌
XOXO,
Salem Oaks, LLC 🧡
February 14, 2024 at 3:51 PM
From all of us:
We’d like to wish everyone to have a RARE Valentine’s Day!
💌
XOXO,
Salem Oaks, LLC 🧡
We’d like to wish everyone to have a RARE Valentine’s Day!
💌
XOXO,
Salem Oaks, LLC 🧡
Just a quick reminder to check out our Season 5 Premiere episode before the new episode drops. 🎧🧬
www.raisingrare.fm/episodes/ane...
www.raisingrare.fm/episodes/ane...
February 13, 2024 at 11:19 PM
Just a quick reminder to check out our Season 5 Premiere episode before the new episode drops. 🎧🧬
www.raisingrare.fm/episodes/ane...
www.raisingrare.fm/episodes/ane...
We are happy to share, the NEW SEASON is now out!!!
Listen to wherever you find podcasts! ♥️
Listen to wherever you find podcasts! ♥️
February 2, 2024 at 11:03 PM
We are happy to share, the NEW SEASON is now out!!!
Listen to wherever you find podcasts! ♥️
Listen to wherever you find podcasts! ♥️
Happy New Years from all of us at Salem Oaks & on the Raising Rare podcast! 🎆
January 1, 2024 at 3:54 PM
Happy New Years from all of us at Salem Oaks & on the Raising Rare podcast! 🎆
May you & yours have a safe and good 2024.
Please join us for Season 5 releasing soon, you can find Raising Rare on your favorite Podcast platform.🎧
Please join us for Season 5 releasing soon, you can find Raising Rare on your favorite Podcast platform.🎧
December 31, 2023 at 4:38 PM
May you & yours have a safe and good 2024.
Please join us for Season 5 releasing soon, you can find Raising Rare on your favorite Podcast platform.🎧
Please join us for Season 5 releasing soon, you can find Raising Rare on your favorite Podcast platform.🎧
Our team is not here to give medical advice or guidance but, we can and will let you know Raising Rare cares!
We have high hopes for 2024 and that hopeful wish carries over to our audience, Caregivers & Rare Disease Patients. 💛
We have high hopes for 2024 and that hopeful wish carries over to our audience, Caregivers & Rare Disease Patients. 💛
December 31, 2023 at 4:37 PM
Our team is not here to give medical advice or guidance but, we can and will let you know Raising Rare cares!
We have high hopes for 2024 and that hopeful wish carries over to our audience, Caregivers & Rare Disease Patients. 💛
We have high hopes for 2024 and that hopeful wish carries over to our audience, Caregivers & Rare Disease Patients. 💛
We here at Salem Oaks would like to remind our audiences, if you’re struggling or don’t know how you’re feeling, we hear you & we see you. 🤗
December 31, 2023 at 4:37 PM
We here at Salem Oaks would like to remind our audiences, if you’re struggling or don’t know how you’re feeling, we hear you & we see you. 🤗
Season 4 had an Mental Health Awareness tone & we’re incredibly grateful to all of our guests and Co-Hosts in sharing their truths/stories, challenges and insights on Mental Health in the world, in the Rare Disease Communities.
💛
💛
December 31, 2023 at 4:36 PM
Season 4 had an Mental Health Awareness tone & we’re incredibly grateful to all of our guests and Co-Hosts in sharing their truths/stories, challenges and insights on Mental Health in the world, in the Rare Disease Communities.
💛
💛
Good Morning & Happy New Year’s Eve.
Our final Top #mostlistened to episode was: Our Season 4 Premiere.
Even though we didn’t have a guest on this episode, we still got updates from our Co-Hosts.
From changes in their lives, to the holidays, struggles and hopes for the new year; 2023. 💛
Our final Top #mostlistened to episode was: Our Season 4 Premiere.
Even though we didn’t have a guest on this episode, we still got updates from our Co-Hosts.
From changes in their lives, to the holidays, struggles and hopes for the new year; 2023. 💛
December 31, 2023 at 4:34 PM
Good Morning & Happy New Year’s Eve.
Our final Top #mostlistened to episode was: Our Season 4 Premiere.
Even though we didn’t have a guest on this episode, we still got updates from our Co-Hosts.
From changes in their lives, to the holidays, struggles and hopes for the new year; 2023. 💛
Our final Top #mostlistened to episode was: Our Season 4 Premiere.
Even though we didn’t have a guest on this episode, we still got updates from our Co-Hosts.
From changes in their lives, to the holidays, struggles and hopes for the new year; 2023. 💛
Kacy & Tim share their experiences as a Rare Family & what their journey has been like over the years.
They also share with the Co-hosts, how they’ve remained so hopeful & what it has been like taking part in fellowship with others in the:
Cystinosis Research Network.
They also share with the Co-hosts, how they’ve remained so hopeful & what it has been like taking part in fellowship with others in the:
Cystinosis Research Network.
December 30, 2023 at 5:08 PM
Kacy & Tim share their experiences as a Rare Family & what their journey has been like over the years.
They also share with the Co-hosts, how they’ve remained so hopeful & what it has been like taking part in fellowship with others in the:
Cystinosis Research Network.
They also share with the Co-hosts, how they’ve remained so hopeful & what it has been like taking part in fellowship with others in the:
Cystinosis Research Network.
With Kacy being a Rare Patient, her dad is a special Rare Parent. Tim had the opportunity to gift his right kidney to his daughter in 2015. 💛
December 30, 2023 at 5:08 PM
With Kacy being a Rare Patient, her dad is a special Rare Parent. Tim had the opportunity to gift his right kidney to his daughter in 2015. 💛
Coming in at No. 2, we highlight the story of Kacy & Tim Wyman. Kacy is a 21 year old college student who was diagnosed with Cystinosis at age the age of 4 years old. Tim & Kacy have a truly Rare Disease story. 💛
December 30, 2023 at 5:07 PM
Coming in at No. 2, we highlight the story of Kacy & Tim Wyman. Kacy is a 21 year old college student who was diagnosed with Cystinosis at age the age of 4 years old. Tim & Kacy have a truly Rare Disease story. 💛
Sophie’s Hope which is one of the organizations Jamas has created.
The purpose of the creation was to share Sophie’s story with the world but, also as sort of a patient support group. CureGSD1B is the second no-profit he created to provide support to research and those studying the disease. 💛
The purpose of the creation was to share Sophie’s story with the world but, also as sort of a patient support group. CureGSD1B is the second no-profit he created to provide support to research and those studying the disease. 💛
December 29, 2023 at 5:50 PM
Sophie’s Hope which is one of the organizations Jamas has created.
The purpose of the creation was to share Sophie’s story with the world but, also as sort of a patient support group. CureGSD1B is the second no-profit he created to provide support to research and those studying the disease. 💛
The purpose of the creation was to share Sophie’s story with the world but, also as sort of a patient support group. CureGSD1B is the second no-profit he created to provide support to research and those studying the disease. 💛
Being a Rare Disease family comes with challenges for sure however, Jamas & his wife have really made a big impact already.
December 29, 2023 at 5:49 PM
Being a Rare Disease family comes with challenges for sure however, Jamas & his wife have really made a big impact already.
No. 3, We have Jamas LaFreniere’s story of being a GSD/Rare parent. Jamas’ daughter Sophie has Glycogen Storage Disease 1B.
Jamas discusses how their diagnosis journey has been for him, his wife & Sophie. 💛
Jamas discusses how their diagnosis journey has been for him, his wife & Sophie. 💛
December 29, 2023 at 5:48 PM
No. 3, We have Jamas LaFreniere’s story of being a GSD/Rare parent. Jamas’ daughter Sophie has Glycogen Storage Disease 1B.
Jamas discusses how their diagnosis journey has been for him, his wife & Sophie. 💛
Jamas discusses how their diagnosis journey has been for him, his wife & Sophie. 💛
Rare Parents like Megan, she had to regroup quickly and learn how to start advocating for her daughters. As their journey continues, Megan has also tried to teach her daughters how to become better advocates for themselves. 💛
December 29, 2023 at 5:41 PM
Rare Parents like Megan, she had to regroup quickly and learn how to start advocating for her daughters. As their journey continues, Megan has also tried to teach her daughters how to become better advocates for themselves. 💛
At No. 4, we have Megan Loden’s story, Megan has three kiddos. 2 of her 3 kiddos are Twin Daughters, who both have a genetic rare disease: Familial Cerebral Cavernous Malformation aka FCCM.
Megan’s daughters were diagnosed during Covid. 💛
Megan’s daughters were diagnosed during Covid. 💛
December 29, 2023 at 5:40 PM
At No. 4, we have Megan Loden’s story, Megan has three kiddos. 2 of her 3 kiddos are Twin Daughters, who both have a genetic rare disease: Familial Cerebral Cavernous Malformation aka FCCM.
Megan’s daughters were diagnosed during Covid. 💛
Megan’s daughters were diagnosed during Covid. 💛
His Rare journey started a decade ago. Dillon is our intern but, more importantly he is our dear friend. 10 Years ago, he got the life-changing clinical diagnosis of Friedreich’s Ataxia 🧬
December 28, 2023 at 1:07 AM
His Rare journey started a decade ago. Dillon is our intern but, more importantly he is our dear friend. 10 Years ago, he got the life-changing clinical diagnosis of Friedreich’s Ataxia 🧬
Now let’s countdown the Top 5 Most Listened to episodes…
Coming in at No. 5,
Meet Dillon Loomis-Head. Dillon is a 28 year old, FARA ambassador, a Mental Health Advocate & a Rare Disease patient. 💛
Coming in at No. 5,
Meet Dillon Loomis-Head. Dillon is a 28 year old, FARA ambassador, a Mental Health Advocate & a Rare Disease patient. 💛
December 28, 2023 at 1:06 AM
Now let’s countdown the Top 5 Most Listened to episodes…
Coming in at No. 5,
Meet Dillon Loomis-Head. Dillon is a 28 year old, FARA ambassador, a Mental Health Advocate & a Rare Disease patient. 💛
Coming in at No. 5,
Meet Dillon Loomis-Head. Dillon is a 28 year old, FARA ambassador, a Mental Health Advocate & a Rare Disease patient. 💛
Being a Rare Parents was not something Susan & her husband planned but, they have done a wonderful job in raising awareness and embracing the love of/for their communities. 💛
Please Check Out:
apricityhope.org for more information for Caregivers.
Please Check Out:
apricityhope.org for more information for Caregivers.
Apricity Hope – Warmth, light, and hope in the darkest daysExpandExpandExpandExpandExpandExpandExp...
apricityhope.org
December 27, 2023 at 10:28 PM
Being a Rare Parents was not something Susan & her husband planned but, they have done a wonderful job in raising awareness and embracing the love of/for their communities. 💛
Please Check Out:
apricityhope.org for more information for Caregivers.
Please Check Out:
apricityhope.org for more information for Caregivers.
In this special episode, we had to absolute pleasure speaking to Rare Mama: Susan Geoghegan. Susan has two kiddos w/Mitochondrial Disease & her story is empowering and embracing. However difficult & grief filled Susan’s story is, she has found light. 💛
December 27, 2023 at 10:26 PM
In this special episode, we had to absolute pleasure speaking to Rare Mama: Susan Geoghegan. Susan has two kiddos w/Mitochondrial Disease & her story is empowering and embracing. However difficult & grief filled Susan’s story is, she has found light. 💛
We want our audiences to remember, it’s okay to take breaks, breathe, check-in with yourself and don’t force yourself to not ask for help as well.😌
December 27, 2023 at 7:34 PM
We want our audiences to remember, it’s okay to take breaks, breathe, check-in with yourself and don’t force yourself to not ask for help as well.😌
Being parents of Rare Disease kiddos; Brittany & Sanath, who each have kiddos w/different diseases, tell/discuss how their lives have changed & how they’ve changed as people too. 💛
December 27, 2023 at 7:30 PM
Being parents of Rare Disease kiddos; Brittany & Sanath, who each have kiddos w/different diseases, tell/discuss how their lives have changed & how they’ve changed as people too. 💛
Our Raising Rare Co-Hosts have a discussion that lets the audiences in on all the costs that come with Raising Rare. Caregiving is not easy & it comes w/some harsh truths.
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💛
December 27, 2023 at 7:30 PM
Our Raising Rare Co-Hosts have a discussion that lets the audiences in on all the costs that come with Raising Rare. Caregiving is not easy & it comes w/some harsh truths.
💛
💛
Back in August 2023; when we recorded, Terry updated us on how the past 3 years have gone, his 4 million dollar gamble, a massive career change & how Michael is doing now after receiving a dose of Gene Therapy.
December 27, 2023 at 6:29 PM
Back in August 2023; when we recorded, Terry updated us on how the past 3 years have gone, his 4 million dollar gamble, a massive career change & how Michael is doing now after receiving a dose of Gene Therapy.