Stefania
@rainbowsteph.bsky.social
370 followers 310 following 2.1K posts
Rescue cats, books, classical music, CPFC. Collector of frustrating chronic illnesses inc hEDS, ME/CFS, fibromyalgia, long covid, colitis and spinal injury with SCS bionics
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rainbowsteph.bsky.social
Totally. I always have to sleep in the afternoons to try to compensate for very little night sleep. If I don’t, I just end up in migraine mode. I think life would be much easier if I could get a full 8 hours, but 3 is usually the most in a row ☹️. Sorry you know this well too
rainbowsteph.bsky.social
You should treat yourself for your birthday
rainbowsteph.bsky.social
Sorting finances is always stressful. Thinking of you lovely. Take it in shall chunks with rest and self kindness built in. Hugs xx
rainbowsteph.bsky.social
Oh no that sounds horrible. I’m so sorry. Hope the side effects will calm down. Quinn is ok, on pain meds now and losing weight still but purring and having cuddles at times so I think we have a little longer with him. Thanks for asking xx
rainbowsteph.bsky.social
Sleep issues is one of the worst parts of #fibromyalgia and #chronicpain ☹️
rainbowsteph.bsky.social
Oh so much. Someone who never gives up on a patient, now that would be a novelty. Plus staring into those eyes would be very therapeutic 😂
rainbowsteph.bsky.social
Hope the new meds are going ok and your body is coping with them
rainbowsteph.bsky.social
Shame it didn’t get renewed after S6
rainbowsteph.bsky.social
Just started season 5 with the very sad beginning. The Covid episodes in season 4 were very upsetting and I’m glad they moved on to other things quite fast. I’m gonna be lost when it’s finished. It’s also making me sad about how shit real life doctors are, I’m sure you’re the same xx
rainbowsteph.bsky.social
Utterly deranged words!
rainbowsteph.bsky.social
Cats are the best pain nurses
rainbowsteph.bsky.social
Yup. I do a lot of stuff alone but things like this, it’s nicer to have some support 😢
rainbowsteph.bsky.social
No worries. My youngest said she’d come with me but then went off out with friends and hasn’t even asked me how it went!
rainbowsteph.bsky.social
Great line, totally agree. I was scared of being on my own but actually it was way way easier in the end. Give me cats for company any day instead
rainbowsteph.bsky.social
Neck MRI scan done this afternoon, hospital is working til 8pm at weekends to catch up scans. Just hope it shows what the hell is going on. Was also able to talk to a very nervous patient dreading her first MRI and calm her down. And then pumpkin Starbucks reward 🎃
rainbowsteph.bsky.social
My counsellor once told me to mute people’s voices and just watch their actions. One of the wisest pieces of advice I ever got. It’s easy to come up with promises and empty words, but when it’s not matched by the right actions, you can see straight through the lies
rainbowsteph.bsky.social
You got this, right now it might seem insurmountable but in time you’ll look back and realise you made a good decision to get back much needed peace and calm in your life. I’ve been single now for 12 years and frankly it’s way easier, especially with the illness issues
rainbowsteph.bsky.social
So sorry you had to give up your car. If I could just run the lottery, I’d buy you one lovely xx
rainbowsteph.bsky.social
Hate clock change. Good plan to start slowly moving things. Pain meds is always a tough one for me
rainbowsteph.bsky.social
Sorry to hear this. My youngest daughter has SAD. She doesn’t find the lights very helpful either. It’s always a really tough time for her too. Sending gentle hugs xx
rainbowsteph.bsky.social
So glad you’re reunited and hope there’s no side effects for you from the jabs xxx